Essential Tremor Support Group

Essential Tremor (ET) is a neurological disorder characterized by shaking of hands (and sometimes other parts of the body including the head), evoked by intentional movements. The incidence is unknown, but is estimated to be as common as one person in 20, and it is the most common type of tremor and also the most commonly observed movement disorder.

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  • I recently went on a 3 week trip to the Philippines and within two days there my head tremor disappeared! It has not returned yet and I've been back in the US for a week. I've had the tremor for a few years when performing any fine motor task like dishwashing and writing. Has this happened to anyone else? I'm really hoping it never comes back but I have my doubts. I'm wondering what could...
  • barbarasusan

    wrist weights

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    I've heard wrist weights can help with hand tremors. Does anyone know how heavy they should be?
  • When I was diagnosed with ET I also had and still have weakness in my hands. Does anyone else have weakness too? I'm very frustrated because the neurologist keeps telling me that weakness isn't a symptom of ET. Does the anger ever go away??
  • walkingwithet

    Am I all alone?

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    ET has affected my walk and balance over the last few years...falls and near falls a plenty... I was prescribed a cane to help, have been walking with it for several months now.Am I the only one? I hardly ever hear of anyone else with ET walking with a cane or walker.Please chime in.Mike
  • roger77

    Gamma Knife

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    Hi all :)More that 2 months ago I underwent Gamma Knife treatment that was supposed to eliminate my tremors altogether. Unfortunatelly, for the time being the reduction of tremors hovers about 30 - 50 % which is not satisfactory. I still cannot drink a cup of coffee even at home, let alone in public. Has anyone undergone Gamma Knife treatment? How long after the treatment have noticed results?
  • crypticaltiger

    i'm new here

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    Does any one else have a problem with their tremors getting worse when its hot outside? If so is there anything I can do aside from not going out when its hot to help?
  • oyvind

    Assistive Devices

    Hello All,Does anyone have experience with using assistive devices for coping with their tremors (hands). For instance when:- eating, drinking or preparing food- getting dressed- using computers/iPads/Cell phones- writingI've googled the topic and found a small selection of cutlery made to dampen tremor (heavier than ordinary cutlery) and some software for keyboard/mouse use. Thanks,yvind
  • Wag

    ET and Balance

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    Hello, I have had ET for many years. It affects my right hand more than the left. I am sometimes unable to eat using my right hand. Now I am experiencing balance issues. I have had some major falls this past year. My Neurologist said that it is definitely due to the ET. Has anyone experienced this? Gosh, don't you find that it takes so much energy to try to function normally day to day?
  • camillelynn

    HI

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    As of Thursday I was diagnoised with ET. My doctor really didnt talk to me about what to expect she just gave me Propranolol and told me to come back in two weeks. Being 19 this is kind of a scary thing and i dont really know how to handle it. My tremor takes place in my jaw and is kind of like a constant chattering of my teeth. It feels like my whole life is on hold. Im too embaressed to go to...
  • I have had ET for about 12 years. I was prescribed propanolol and took it for a while, even though it didn't really help. I no longer have insurance so my resources are limited. I am currently going to college and recently had a math test that I couldn't finish because my hands were shaking so bad. It took me 40 minutes to get through 2 problems! I'm not sure what can be done at this point, but I...
  • luvmygirlz

    Before ET...

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    I know it's not healthy to dwell on the past but I really miss so much of what I used to be able to do before I got the ET in my 20's, I'm 42 now...I really wish I could do things that people who don't have ET probably take for granted...before ET: I could drink without a straw...I could apply my mascara & eyeliner perfectly...I could eat soup without it spilling off of the spoon...I could...
  • misslizziegirl

    Pineal Cyst

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    Hello, I am 19 years old and was diagnosed with essential tremor at 16. My most recent MRI revealed a benign pineal cyst. It is supposed to be asymptomatic, but I have been having problems with a bunch of migraines recently, as well as my tremors being worse. I was wondering if any of you had experienced the same thing.
  • So I don't know why this hasn't been researched and I'm kind of upset that it took 30 years to discover this. I've had ET since I was 12 and it's progressive, so it's gotten worse after my late 30's and more so after I turned 41. One of the treatments not researched at all is high doses of vitamin D (5000-8000 IU/day). So far since I began it's been about 30% more effective than propanolol (my...
  • I was 14 when I first started having tremors and, despite the many many visits to doctors and hospitals and the plethora of tests done, I wasn't diagnosed until I was 17 and I went to Dr. Mya Schiess in Houston, TX.At the time I had had a "spike" in my condition, taking it from a level that I could physically suppress by tensing up the muscles in my arms to rendering that method as obsolete....
  • Hey, I'm 20 years old and I'm recently diagnosed with essential tremors, although i had them my whole life. They increased now and cause problems. Im on inderal for past 1 week but its side effects are so scary. I couldn't stop crying when i started taking it. Im not depressed now but my heart feels heavy. Does anyone else also experience this? And now if tremors are getting worse, if it true...