Epilepsy & Seizures Support Group
Epilepsy (often referred to as a seizure disorder) is a chronic neurological condition characterized by recurrent unprovoked seizures. It is commonly controlled with medication, although surgical methods are used as well. Seizures (or convulsions) are temporary abnormal electrophysiologic phenomena of the brain, resulting in abnormal synchronization of electrical neuronal...
Hi
I have posted twice now and have not had any response at all. Has nobody experienced what my daughter is going through? can nobody help? Im going frantic with worry here.
This is what I posted both in the heart forum and the epilepsy forum:
hi
i've been a member of DS for several years, but in other groups. however, a prominent right atrium with normal size heart has shown up on x ray.
my daughter had a PDA from birth but they only noticed it when she was 9 years old. she grew up with an enlarged heart but by the time she reached 13 yrs it had evened itself out in proportion with her body size and she was discharged by the cardiologist with the all clear.
BUT she continued to get chest pain, palpitations, breathlessness, fatigue, cyanosis and pains in her arm. reently, i asked the gp to send her for a chest x ray to check her lungs for scarring after having had double pneumonia prior to the PDA as i thought this might have explained some of the symptoms she's getting. great news that the lungs were clear. BUT the radiologist report stated that she had a prominent right atrium with normal size heart and sent a copy of the report to the cardiologist advising that in her opinion, a second opinion was necessary.
can anyone tell me if this condition is serious please, or even dangerous? what can i do to help her?
she has also recently been diagnosed with epilepsy (june 5 this year) and, although she's medicated now, she is still having anything from 10 to 25 seizures a day. can the seizures be brought about by a heart condition? i read it could, but i'm completely new to both epilepsy and heart conditions.
i am worried silly right now as during one of her seizures her heart stopped and i really need to know whats going on. for info, mollie is only just 18, bless her.
thanks everyone. look forward to hearing back soon.
Posted on 07/14/12, 06:00 am
I have posted twice now and have not had any response at all. Has nobody experienced what my daughter is going through? can nobody help? Im going frantic with worry here.
This is what I posted both in the heart forum and the epilepsy forum:
hi
i've been a member of DS for several years, but in other groups. however, a prominent right atrium with normal size heart has shown up on x ray.
my daughter had a PDA from birth but they only noticed it when she was 9 years old. she grew up with an enlarged heart but by the time she reached 13 yrs it had evened itself out in proportion with her body size and she was discharged by the cardiologist with the all clear.
BUT she continued to get chest pain, palpitations, breathlessness, fatigue, cyanosis and pains in her arm. reently, i asked the gp to send her for a chest x ray to check her lungs for scarring after having had double pneumonia prior to the PDA as i thought this might have explained some of the symptoms she's getting. great news that the lungs were clear. BUT the radiologist report stated that she had a prominent right atrium with normal size heart and sent a copy of the report to the cardiologist advising that in her opinion, a second opinion was necessary.
can anyone tell me if this condition is serious please, or even dangerous? what can i do to help her?
she has also recently been diagnosed with epilepsy (june 5 this year) and, although she's medicated now, she is still having anything from 10 to 25 seizures a day. can the seizures be brought about by a heart condition? i read it could, but i'm completely new to both epilepsy and heart conditions.
i am worried silly right now as during one of her seizures her heart stopped and i really need to know whats going on. for info, mollie is only just 18, bless her.
thanks everyone. look forward to hearing back soon.
Posted on 07/14/12, 06:00 am
I am sorry to hear your daughter is going through this. I myself have never had this happen. But I will help you with what I do know. Yes a heart condition can cause the seizures to happen. I would take the heart Dr. Advice and seek a 2nd opinion. I myself would take it 1step further though. I would get a neurologist involved as well. Stress of any level can cause seizures to happen. This way the two Drs could both be a benefit to your daughter. Hope I was of some help.
Jason
This is a link to a page that talks about the link between heart probs and seizures. I really don't know... Maybe it's because the brain isn't getting enough O2 or nutrients because the heart isn't pumping effectively? Most people with epilepsy have seizures because their are hyperactive neurons in the brain. But I definitely agree with Tiger, in that you shoudl start with a cardiologist and work also with a neurologist, since it's two different systems that are involved. Good luck. :)
i will come back and update you as and when if thats ok with you guys.
take care and thanks again:)