Hello ! I hate to have to say this but I triley believe that over the past 5 years I have suffered from pnes. Neither I nor my Dr know weather or not this is the case for sure. I am currently taking 2 different meds for mainly partial complex type. I tend to have these partial type where I can walk from point a to b and crawl while its occurring. These last usually 3-4 minutes. I don't know that its the main trigger but I did realize that the frequency of seizures increased about five or so years ago which was after a major emotional trauma w a break up that I went through. Still now at times when I see anything that may make me think of the individual or things we did, it w trigger an aura seems like w will lead to a small seizure. Just my personal opinion not validated by any Dr. ;-)

I did a thorough research on every form of seizure last spring (there are about 45 of them) and there was one type brought on by past trauma. I'm not sure, but I think the term "conversion" or "psychogenic" was used. Do a google search to get your answers. I also recall my neuro doctor asking about childhood trauma during exhaustive history taking.

hello
I have just been diagnosed with PNES this year and after my diagnosis I was doing great! using coping strategies to keep my stress level down, and it was working for a good amount of time, but just about a week ago I started to twitch, and it was frequent and uncontrollable, after a long talk my therapist who is also a certified nurse, we realized it was another part of my PNES.
I go to a school in CT and when they happen which is almost every day, they just think I am crazy and faking them, which I know is not true, but it just gets me all riled up and that does not make them go away, just makes them get more frequent and violent

Sorry i just came back to this page. I also have PNES but I don't have Epilepsy. I have meet a lot of people who suffer from both. I was diagnosed in 2009 and have been in therapy since then. I also suffer from PTSD. CBT has helped me greatly in reducing my seizures. I used to have at least 20 a week now I have maybe one or two a week.

the neuro i have been seeing ..i forget how long it has been and want to laugh but i won't right now, he is treating me as if i have epilepsy because he thinks i do, but he also says i have several different types of seizures brought on by extreme stress.
i do have compound, it is called complex-PostTraumaticStressINJURY.

the name that is given these seizures is one that makes it difficult for many to accept or get treatment for - wonder why not simply - NES... i suppose it could be a comfort to know what to connect it to - like to PTSI - tired of the PTSD name too, weary of it

Being: i have aura symptoms, had no idea about them - always htough auras were the lights pre migraine and i don't get those, but i DO get these odd aura symptoms, sometimes without the migraine headache part. i have what i called body migraines. same neuro for these - he absorbs the information - i think he sees the pain i am in, maybe he thinks i am completely ditzed from the pain and unable to hear his.....conclusions?? i could hear him. MS is also a dx from him - no wonder, he probably really doesn't think i could assimilate the information. i will write him a note when i am feeling up for it and give it to him.

Hi there!

My name is Kim (Brave.)
I had surgery for epilepsy
almost 14 years ago. I've
been seizure free ever
since.

Just recently I started having PNES.

My doctor recently turned
me down to drive now.
I've become quite depressed from this!

Kim

Hang in there Kim. Sending you lots of love. My seizures have changed so much over the years. Who knows, you may be driving again.

By the way, what are PNES like?

hi jane,
they are like other seizures; it is the cause that is different. i had absence seizures - these are controlled by medication now. i had a variety of seizures now under control. my neuro still doesn't rule out other causes. i have had a couple of big seizures fairly recently and he is considering changing my medication.

stress reduction sounds like a good thing to do - but medication is a must for seizure prevention.. imo

i can't imagine being told to relax my way out of this seizure disorder. that is simply not something that is going to happen.

to Kim: i have had about a year seizure free when i felt safe to drive again. i did drive on a limited basis. i drove during the day and only to my dr's appointments or the grocery store. i wanted to work my way into feeling more sure. i took my own drivers license away. he might have he said when my seizures were getting stronger, but i already had stopped driving.

give yourself time. i know how disappointing it can feel. after all you have been through to get well, it must be hard. you will get passed this too. you are not alone in this, gentle hugs



i have PTSD, but i also have MS which i now find out can cause me to have seizures also : (