Endometriosis Support Group

Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.

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Not worse during period?

hotchocolate
hotchocolate
Everything I've read online about endo says that the symptoms are always worse during your period. While I've always had horrible periods, they've gotten much better since surgery and being on the pill.

The really bad times, both before and after surgery, have been when I haven't had my period. I get this stabbing pain that makes me double over. I rarely get it on my period, though.

I'm assuming this is still endo. Does anyone else have worse pain when not on their period?
deleted_user
deleted_user
Mine is different pain when not having my period, it's shooting ovary pain. When I have my period, it's very bad cramping and extreme back pain.
Littlemisscyn
Littlemisscyn
I have the same sort of thing but I do get the painful periods. About a week before my period I get a sharp stabbing pain in my stomach and and the week after I do. I have talked to doctor and was told it is from the endo but he sent me off to get tested for IBS and did not find anything.
besler17
besler17
that is unusual but really endo is soooo subjective. some women dont even have pain at all and the only reason they know they have it is because of difficulty conceiving. just like some women experience total relief from something as simple as switching birth control whereas some women try this and that and still find no relief. I think its great you have a little window of relief huh? So i guess in a way you look forward to your period lol?
whyme123
whyme123
I didn't start having painful periods until about 8 years after i was first diagnosed and 4 laps later but had bad pain during the rest of the month. Then it went to me having pain every single day with horrible pain on my period. Everyone's endo symptoms are different.
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