Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
I was pretty sore for a couple weeks following mine. I probably could have done light work at 1 week but no lifting. At almost exactly one week I tried to scoot my 2 year old niece up in her car seat and regretted it big time, hurt very badly. And she is pretty small! At 2 weeks I felt pretty good, still tender to lift/bend but could pretty much do most pre-op activities. At 3 weeks my surgeon gave me the full clear.
I still have painful sex so I feel for you with that one...still pursuing options to help with that. I don't have much swelling so I'll leave that for the other ladies. Best of luck with your upcoming lap - I hope they can get your symptoms cleared up!
My first two days sucked, i wont lie but if you follow docs orders and take it easy (and I know thats hard to do!) you'll be better in no time :-)
I found that ice packs helps tummy pain ALOT and a heating pad on your back helps that gas get outa your abdomen. I felt silly with two ice packs on my tummy and a heating pad on my back, but hey, whatever helps the pain! haha :-) Good luck!
I had very little do e with each surgery..,went back to work after ten days....and wasn't back to myself fully until 6 weeks after.
As for the bloating, do you also have digestive issues too? I get diarrhea and constipation all the time, it is common with endo to have these issues.
Endowife- I do have digestive issues as well. I was diagnosed with Celiac about 3 years ago, so when I started having digestive issues again 2 years ago I went back to the gastroenterologist who, after performing every test possible, told me I have IBS. Now I'm beginning to wonder if it could actually be caused by endo instead.
Also take the pain med on schedule for the first couple days even if you don't feel you need it. You are still under the effects of the anesthesia for awhile and so it may feel like you are great! But then the pain hits and then you are "behind" the pain...and it can be really hard to play catch up with the meds!
You may want to buy Dr. Cook's recent book on Endometriosis (it's on Amazon, came out this summer) - he goes through all of the endo related pains. Although digestive issues are not necessarily caused by endo, they can be linked to endo. For example, I always have scar tissue growing because of the endo, and the scar tissue grows on my bowels, and voila. Digestive problems.
IBS is one of the catch all diseases that is often a misdiagnosis.
It's like fibromyalgia (a disease which causes pain all over, but in truth, its describing a condition, not a disease). IBS to me means "we don't know what's wrong with you, but you have tummy troubles, so let's call it something."
I was first diagnosed with IBS too. Many of us have been.
I hope you start to get some answers. I was diagnosed 6 months ago and keep searching for better and better doctors in my area. They are hard to find.
Are you going with a surgeon or an OB GYN?
I am going with an OB GYN, I tried to find a specialist but I couldn't. I do know a gynecologic oncologist, and she does a lot of surgeries, so I asked her for recommendations and she recommended two different OB GYNs, so I just decided to stick with my own since I've been with him for three years now.
I went with my standard ob gyn the first time around and am sad that I did. I don't mean to slow things down, but most ob gyn's don't really know how to diagnose endo and most are not skilled enough surgeons to remove it if they find it. my ob gyn for example found a cyst, but didn't feel skilled enough to remove it completely so she left it. the 2nd surgery was with a gyno oncologist and it went much better. smaller scars (he even fixed one botched scar the other doc did!), more stuff removed, quicker recovery time.
Should I be looking for a gyno oncologist instead? I thought they only dealt with cancer. I guess I also don't know what to search for, because you don't get any results with "endometriosis surgeon."
I just wanted to share this link with you: http://www.endometriosisassn.org/advisors.html
I found it very helpful when I was looking for a specialist. Not everyone on the list is a surgeon, but if they are a surgeon and on the list it is a safe bet they have treated a good number of patients w/ endo.
You might have some luck calling around locally, and if the same name keeps popping up, it might be worth checking them out, but it looks like the closest doc on the list of advisors is in San Antonio. There are several in Houston and a few in the DFW area. Possibly you might have to travel? If it is out of your network, you may still be able to get coverage because endo is a condition that requires specialized surgery from a highly skilled provider, and very few docs are qualified to treat it properly.
If I'd had surgery with the first ob/gyn I saw, I would have had to schedule a second surgery to remove the tennis-ball sized blob of endo from my intestines. Most docs wouldn't have touched it, and I probably would have lost a section of intestine if I'd waited much longer to have it treated!
From what I understand, if you hear coagulation or vaporization, run. A bad surgery can make things worse. I quizzed my doctor pretty thoroughly before surgery, and I knew I was in VERY good hands. Make sure you trust the person who is about to cut on you! That is my best advice. Good luck!!!