hi there

whoever wrote this i dont think meant to offend or scare you. i think they meant to be honest and giving support is about being honest as well as being there for someone. not only is this a support group but many ask questions and are looking for the truth. yes the truth can be scary but its better to know then to not know.

I am sorry if you took this message the wrong way. I dont know who wrote it but sabby is right. its just giving honest facts. I had my hysterectomy this year for endo and I know its not a cure. I havent delt with endo as long as some women here but its also nice to know what chances we have after a hyst. All women are different. My sister in law had stage 4 endo and it is true, you have to remove all of it or it will come back. She no longer has any pain but she also had here ovarys removed as they do produce estrogen. I remember asking you if your Dr put you on anything to stop your estrogen because even though you wont have the horrible periods any more you will still be in pain every day like I am and many other women who have had hysterectomy's. There are so many different options out there but very little chances of a cure no matter what we do. I have only delt with endo for just about 3 years and didnt get diagnosed till this year. Let me tell ya I'm up for any advice!..lol. I dont think this person was trying anything but giving the facts..We all have to deal with endo here and its just advice, facts, caring, and sympathy for one another..Take care..xx..Staci

Anyone who says there is no answer to endo is probably in a very angry stage of their life and has not gotten all the options or found something that works. FOr some women, acupuncture might be the answer (it helped me HUGELY). For some, an amazing surgeon or drugs. Some of us have great success with diet and others can't be bothered or don't get any relief form it. Some of us love taking the pill to prevent pain, others like me, hated it. I never tell a women on here it is 'wrong'. I just inform her of the actual benefits and risks and hope for the best.
The only way to tell is to try and keep fighting for answer.

I was told I had to 'learn to live' with the horrible cramps I had for 15 years. I kept fighting and found a surgeon that did 'pre sacral neurectomies'. He did one on me and I went from laying in bed screaming for 2 days a month (and non-functioning the rest of the time), to not even knowing my period was there!!!!! Had I not joined this group - I would have NEVER known neurectomies existed!

The best thing for all of us to do is: share info, provide support for those who aren't getting answers, who don't like the answers they have gotten, or who simply have to deal with pain regardless of what they have tried.

I find that on here, the people who have the most problems and anger are the ones who have not ACTUALLY tried everything, but have tried some traditional or non-traditional methods and then given up. Many say doctors have told them 'there is no answer for you'. Those doctors are morons and it is sad those women have not chosen to keep fighting and insisting on more answers, because even people who have TERMINAL CANCER have people around them who offer support and ideas to keep fighting!

When I was non-functioning, I went on the strict diet, which was so hard. I exercised, which seemed impossible. I spent money I didn't have on acupuncture and looked into surgeons and what hysterectomies do. Some women on here gave me great advice (and one even told me about the neurectomy and the name of the surgeon who would eventually do it on me!). I wonder if the women telling you not to have a hyst has had one? Has she had a neurectomy offered to her? Has she tried all the things I listed? If not, she is not in a position to discuss it really. I don't discuss lupron with women on here, because i have never tried it.

Hang in there, make your own choices and we are all here to support them, REGARDLESS of what they are.

i see, yes i understand what you all are saying however its the fact that if you really believe that what your doing is going to help you then its kind of a blow to see well only 81 percent of women find relief from acupuncture so good luck, no one ever says that on here its always when someone opts for a hysterectomy that they have to hear about statistics and percentages and all that nonsense. why the double standard? and why such a stigma with hysterectomy just because some nameless website that doesnt want you to have a hysterectomy because they want you to buy your product says so?

I think the best advice on hystos is from books and surgeons (good ones). Every woman's body is different. I guess the reason women get so wrought up about hystos is that it is permanent. But I have noticed a lot of women insist the diet is bulls@#t too when I mention it, and I always want to ask them "Oh, you tried it religiously for 12 months!??" because i know they didn't.

I think as long as you have tried EVERY other option (because a hysto is so medically dangerous and hard on the body due to menopause), and if you know the risks, you can feel comfortable doing what is right. There are good statistics out there, but I agree, better to get that info from books and doctors than some woman online!

i think that we should all just make it a point to not shoot people down when they try whatever it is that they think is going to help....or at least try to be as postitive as possible as i really feel like that post was just really confrontational and in your face whereas the post before it was from a woman who had a hysto and the endo returned, she was alot more gentle about it. but im going to drop it now i just had to say those things.

simple really if you dont want to know the facts dont ask the questions. and as for menopause being a walk in the park lol thats a joke. if you are going to betray someone from what they have been told at least have the balls to name them.

I would also like to say that it was me that stated the first reply that this disscussion is all about. if you like living with your head in the clouds thats fine with me. but i deal with the facts

utah , i have tried everything available and nothing has worked for me, this however does not mean i have given up for i have not given up and i am still trying to find something that will give me some kind of relief.

what annoys me the most is when young girls like this one think they have tried every thing and then have a hysto at such a young age thinking this will be an end to endo, think again, you are now more likely to have more complications because of this for the rest of your life.

but hey thats your choice, just dont come crying to me when the shite hits the fan.


my comment was not meant to offend or scared any one, i believe giving support is being truthfull and honest, and i know i would rather some one be up front with me rather than telling me only what i want to here.

has your gyno put you on hormone replacement pills yet cos you will have to take those till you are about 45 and more than not all of them have some level of estrogen witch means the endo will come back.

its not what u say its how u say it witchipoo that is the problem...your comment was cold and calloused and basically just plain rude. now id like to say more but i will bite my tongue for fear you will cast a spell upon me....

witchiepoo, I did not know you had a neurectomy or LUNA....I am surprised having it gave you no relief, as this is the procedure done in Canada when someone does not respond to other treatments.
I know since I could not be helped through removal or hormonal treatment, the neurectomy COMPLETELY got rid of my cramps.
Again, I am so shocked you tried this and it did not work. What a shame.

i've got to say, i'd really prefer to get true info. i really dislike it when people sugar-coat things for me, because they don't want a negative reaction from me. i'd rather know the facts, and that includes statistics, because it gives a realistic view.
that being said, i think we can all agree that statistics don't mean much to the individual. i think we've all experienced even a small breakthrough due to a treatment we (if we weren't so desperate) might not have tried.
so lets share information, and let's all try to be nice to each other, huh? and let's keep in mind that we're all here for each other, not to be unkind or hurt each other ok? that's what we're here for. :D no more name-calling and mud slinging... sisterhood is power!! :D

besler17, you have show your immaturity by the words you have used. You dont know me or what i am about.

i have suffered for 24 years from endo, and i am annoyed that nothing had given me any relief, i have dealt with many drs and specialists , last year i had 5 diff specialists working along side me....... to no avail.

i do not put spells on people for i dont work that way.

i am very blunt and straight to the point no sugar coating for anything, i am like this on here and also in how i live my life.

i wonder how you would feel if you had suffered as i have.

i have never been told i am cold and callous before thanx for that

i have great pleasure in stating that i will no longer comment on any of your discussions because you dont want to hear the truth you obvisouly like everything sugar coated.

good luck