Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
Good info, but its just the tip of the iceburg. That article kinda reminds me of the little packet my OB/GYN gave me when he finally diagnosed me, post op with a RX for Lupron (no explanation) which I never took, and cant. Hes like; you have endo, here...and passes me this small pamphlet, with info like this, and an RX for Lupron. I was happy to be diagnosed finally after 10 years of knowing and suffering, and everyone doubting me, but then I realized, this is it? And so began my continual journey of trying to get help with endo and never finding help.
Thats what this reminds me of because of the packet.
You asked what we thought, and I appreciate you posting the article, I just think its stuff most of us have read, and also, Im not sure I agree with the entirety of the article. As most of us know, excision surgery is the golden standard treatment, and this article mentions a ton about hormonal treatment. I for one, cannot go on hormonal treatments, and I know there others who cant too...so if we read that only, we'd be isolated because he mentions surgery vaguely. They do mention surgery can be a last ditch attempt if hormones dont help, or if medically you cant do hormonal treatments, but doesnt go into surgery at all; only for the sake of infertility.
And this article barely touched on the symptoms of endo. Its a strictly, casual and depthless explanation of endo.
Also, didnt mention that a good amount of us arent lucky enough to get any relief from OTC's, and require RX pain killers. Especially today, after the new "big brother" laws on these meds (which I understand because people are abusing them in HUGE amounts), but they did not mention the need for a lot of us to use them legatimately for agonizing pain. Unfortunately, these meds are a part of the disease very much, and need to be recognized as its getting harder and harder for us to get them, even though we have medical proof we're in serious pain. I think that shouldve been touched on. I mean there was a paragraph dedicated to pain management, and that was not mentioned?
Thanks for sharing, its good to know how the "powers that be" define endo, and in my humble opinion; this article is sadly a vague and superficial explanation. But Id expect no different. Leaving on a positive note, happy the articles calling for action. Just my initial thoughts after reading it.
Luckymommy - yeah, right? I'm so new to the disease, I feel like I received some of this info before, but not in one place.
Yankee - I hear ya! I work with grant recipients in other areas and all I can think is: we should start our own endo association and start lobbying the universities and doctors for change! They do such a crappy job with us, what gives?
adkgirl and wildorchid - thanks!
Its so sad that theres less than like 20 endo specialists in the US, what a shame and a disgrace!
I read that out of like 30 countries including developing countries, the US had the most deaths from endo! I know its very uncommon to have someone die due to endo, but how disgusting is it that this disease is so neglected in the US that we have the highest death amount???? Even out of countries with little to know health care!
But good article, and im happy you're spreading the message-informative medical articles are great tools! Keep on sista! Thanks! We'll keep fighting! XX!