Remain hopeful if you can. I was in agony for years and couldn't function. After 7 surgeries I'm suffering much less pain

The doctor recommended that I have the total hysterectomy. The Endometriosis is affecting other organs and I have already lost my gallblader and appendix. I'm afraid to have the surgery but I don't want any other of my vital organs to go too. I honestly don't know what else to do but to keep praying that someone will find a cure for it. Hang in there! We are in the same boat.

Unfortunately, there does not seem to be any one thing that works for us endo gals to make this go into submission. Surgery, hormonal therapy, getting pregnant...sometimes one of these things will get rid of it, and often women have to go to the extreme of hysterectomy....and it may still not go away.

I hope that you find something that works well to help you suffer a little less.

why did you have 5 surgerys for your endo. they wont even give me one.

I have been in pain since September. I went to the doctors and they gave me 3 ultrasounds overall. The 1st ultrasound said I was born with 2 uteruses and I had no cyst. The 2nd ultrasound said I have a whole bunch of cyst and 1 uterus. The 3rd ultrasound, they saw nothing.
Here I was still getting all kinds of pain in the mean time. My family doctor gave me Naproxin and she said she wouldnt give me anything stronger then that and to ride out the pain. She refered me to a gyn that finally gave me a precription for Codine (this medicine works for me and finnally I can sleep comfortablely at night. Before I was only getting 1-2 hrs of sleep. She insisisted (since she didnt see anything in the 3rd ultra sound)that she needed to a laproscopy surgery. She said "If we dont see anything during the surgery, You are going to need to see your primary care doctor and a pain specialist". So in other words, she didnt fully believe my pain, but atleast she was giving me a strong pain medicine then that family doctor who treated my pain like it was some of joke. So May finnally comes around, and I was given surgery in the hospital thats when they found out I had endometriosis. Scar tissue was completly wrapping around 1 of my ovary's, and another piece of scar tissue was pushing down on the other 1.
The pain after the surgery was intense. The nurses made me feel guilty and put a guilt trip on me because I couldn't say my pain level was a 3. So finally I gave in and said my pain level was a 3. I went home ate a sandwitch, well I shouldnt of done that, I threw up the whole thing, and didnt eat or get out of bed on that next day. 2 days after the surgery someone takes my temp, and its 101. I was taken to Emergency room, treated for UTI, and dehydration. I couldn't move or walk around because of the pain, I was in a wheelchair for awhile.
It has been 3 weeks since my surgery and I am still having pain. I really hope when I call the doctor tommorow that she believes me and refills my medicine that is helping me so much.

I honestly don't want to have another surgery ever again. I suffered too much from this 1. I don't want to ever be pregnant either. I am currently taking Yaz, and that seems to be helping somewhat. I understand what its like to be in pain, and I also know how bad it hurts when a doctor doesn't believe you.

I have been in pain since September. I went to the doctors and they gave me 3 ultrasounds overall. The 1st ultrasound said I was born with 2 uteruses and I had no cyst. The 2nd ultrasound said I have a whole bunch of cyst and 1 uterus. The 3rd ultrasound, they saw nothing.
Here I was still getting all kinds of pain in the mean time. My family doctor gave me Naproxin and she said she wouldnt give me anything stronger then that and to ride out the pain. She refered me to a gyn that finally gave me a precription for Codine (this medicine works for me and finnally I can sleep comfortablely at night. Before I was only getting 1-2 hrs of sleep. She insisisted (since she didnt see anything in the 3rd ultra sound)that she needed to a laproscopy surgery. She said "If we dont see anything during the surgery, You are going to need to see your primary care doctor and a pain specialist". So in other words, she didnt fully believe my pain, but atleast she was giving me a strong pain medicine then that family doctor who treated my pain like it was some of joke. So May finnally comes around, and I was given surgery in the hospital thats when they found out I had endometriosis. Scar tissue was completly wrapping around 1 of my ovary's, and another piece of scar tissue was pushing down on the other 1.
The pain after the surgery was intense. The nurses made me feel guilty and put a guilt trip on me because I couldn't say my pain level was a 3. So finally I gave in and said my pain level was a 3. I went home ate a sandwitch, well I shouldnt of done that, I threw up the whole thing, and didnt eat or get out of bed on that next day. 2 days after the surgery someone takes my temp, and its 101. I was taken to Emergency room, treated for UTI, and dehydration. I couldn't move or walk around because of the pain, I was in a wheelchair for awhile.
It has been 3 weeks since my surgery and I am still having pain. I really hope when I call the doctor tommorow that she believes me and refills my medicine that is helping me so much.

I honestly don't want to have another surgery ever again. I suffered too much from this 1. I don't want to ever be pregnant either. I am currently taking Yaz, and that seems to be helping somewhat. I understand what its like to be in pain, and I also know how bad it hurts when a doctor doesn't believe you.

Try a naturopath for some relief of symptoms and a healthier lifestyle, which can make a huge difference. There is no cure to endo, but there have been doctors who have seen women have it, then have it almost gone after proper surgeries and holistic care. Ultrasounds are useless, they only show endo in like 1% of the cases, surgeries have to be done by someone very skilled, or they cause more trouble and hysterectomies have been shown to leave symptoms behind, so be wary of that answer. I think the goal is: a good gyn dr., a good health regime for eating, exercise and stress relief and learn a lot about it, so you understand the disease. I loved the book "Living Well With Endometriosis" and the book "Women's Wisdom, Women's Bodies" by Christine Northrup.

I've just had my third lap last Tuesday and along with it my doctor did a presacral neureutomy. This surgery is suppose to help with the pain associated with endo. Nothing birth control seems to work for me, so this was my only option. If it's pain that you are constantly in, I would ask about this surgery.

Just a word of caution though, not all OB's do this surgery, you really need to find a very skilled surgeon who knows what they are doing.

I HAVE HAD ENDO FOR 22YRS THIS YEAR I AM IN CONSTANT PAIN EVERY MIN OF EVERY DAY. CODINE USE TO WORK FOR ME BUT SINCE MY LAST OP 2MONTHS AGO I NOW HAVE A REACTION TO THE CODINE SO I SUFFER ON IN SILENCE. HYSTERECOMY IS MY NEXT STEP BUT THAT ONLY WORKS FOR THE ENDO IN THE AFFECTED AREA I HAVE IT EVERY WHERE ELSE SO HYSTERECOMY WILL NOT GET RID OF THE REST OF THE ENDO. GOOD LUCK X

I just had my 4th surgery, and hopefully the last until I get a hysterectomy. I was in bed all last year not being able to breathe without severe pain- basically just living was a struggle. I saw several Drs and finally looked up a specialist online. I found dr Camran Nezhat in Palo Alto California. Being from Kansas, it was tricky getting there for the surgery, but it was worth it! It's only been a month, and I don't remember a time when I ever felt this good! He literally gave me my life back! In the waiting room there were five huge binders full of cards and letters from patients who were treated by him and never had any other symptoms after seeing him! He knew I wanted at least one more child and promised me I would wake up with ovaries and a uterus! He gave me a plan to stay pain free until I'm ready to have a hysterectomy since there still is endo in my uterus. I have no idea where you're from, but you should at least look him up!

I've struggled with chronic endo pain for 5 years felt like my life was over nothing helped until I tried cbd cannabidiol capsules they honestly have saved my life gave me so kind of normal back GP doesn't give them you order online completely legal as no thc only health benefits I would recommend anyone who has tried everything else to give it a go hope all goes well