Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
I CHOOSE TO ACCEPT THE THINGS IN LIFE THAT I CAN NOT CHANGE!
My point being, why worry when it sounds like there is nothing to worry about. Cheers!
An egg retrieval is not a surgery, nor is it "not smart" for a patient with endo. You don't ovulate; that's the whole point. They go in and manually take the mature oocytes before the follicles have a chance to rupture. The process of IVF was originally developed for use in women with severe endometriosis and is incredibly safe.
I would suggest if your boyfriend is really pushing this then go for an IVF consult with a fertility specialist. In most places IVF is not covered by insurance and can run from 8,000 and up typically not including the 2-4,000ish in meds you would need. Its really expensive. Then fertilizing and freezing the eggs is expensive with a yearly charge. Using a surrogate in the future is even more expensive on top of it all. All the money may make him think twice about it all.
For now I think the best idea would be to have a lap to clean things up. Its amazing how good I feel after one and stay on continuous birth control to help hold off endo and symptoms coming back. And if you are just using a normal OB/GYN for your lap, I would suggest consulting with a fertility specialist for your surgery. From my experience they typically are more successful cleaning up as much as possible and keeping your fertility in tack for the future.
Thank you lm I am using a specialist for endo and vulvodynia children are not really my thing and I dont want to get pregnant but told him I would ask and see what other people have to say. He was thinking if I did get a hysterectomy that it might be nice to freeze eggs but honestly I don't want to dump hormones or anything into my body as its not important to me but figured it would be fair to check it out.
http://www.health.ny.gov/publications/1127/#cycle
I don't think what you asked was wrong, but the wording was slightly confusing and in fact you have stated in the past that you don't want children, so I can see how people would be confused by your post (I was as well).
I have not read the article that you posted, but the fact that they stated retrieval is a "surgical procedure" does not mean it is surgery where they cut you open. Not all "surgical procedures" are treated equally. For example; I had a punctual duct cauterized (which is one of the ducts in bottom eye lid of your eye). All my Dr. did was burn the duct to close it up, it was literally a 2 min procedure. This was considered a "surgical procedure" even though I was awake, was not sedated, and there was absolutely no cutting. Do you see my point?
As for endo and fertility treatment. As Kdeezy said, it is perfectly safe for endo patients. Approximately 30-50% of patients with endo also suffer infertility, and many seek fertility treatment. The retrieval process is not surgery in the conventional sense, though may be referred to as a "surgical procedure". Also, Lupron used during fertility treatment is not used in the same way as it is for endo treatment. For one, the dose is much lower and doesn't/isn't meant to stay in your system as long.
Ok, so now I want to mention something else and I am not trying to be harsh, but may come off that way. I have noticed in many of your post you at times seem to be misinformed. I really encourage you to do a lot of research on endo and if you are interested infertility treatment. There are many websites that will explain things without being as difficult to fully understand as some medical articles are (I am not saying that to offend you, I just finished nursing school and there are many times I have a hard time understanding the point of medical journals, they can be very dense). I the reason I bring this up is because you have mentioned numerous times that you think a lap will make your endo worse. But the fact is. if done with a skilled surgeon, surgery would not make it worse, it should make it better (though it is true that some people do not respond to surgery). I know you mentioned you are using the Dr. who treated your vulvodynia, but the fact is that most Dr's are not skilled enough to treat endo. There are very few Dr's in the US that can properly excise endo. Endo implants are extremely small and require an extremely skilled surgeon to remove properly.
As a patient, you are your own best advocate, but you can't advocate for yourself without being properly informed, and that requires research. I also suggest you research why having a hysterectomy at a young age is not really good, which is why most Dr's are hesitant to perform it on young patients (aside from the fact that it NOT a cure for endo).
Many patients do not receive appropriate care (not just endo patients, all patients) because they don't know how to or aren't able to advocate for themselves.
Being armed with correct information is your best weapon in battling this disease.
Again, my post isn't meant to attack you or make you feel bad, and I don't see anything wrong with you asking questions, but want to point out that is seems you should do a little more research regarding this disease.
Good Luck!