Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
So irritated I've been in bed in such pain all day. For those of you who don't know I had to stop the progestin pill that was working for me as my state governor to save money on state aided RX plans he has kicked off any type of help for anything that could remotely be used for a birth control. Technically I can still get it but its over 100 dollars per month for 30 pills and I just can't afford it out of pocket.
I was switched to the NorQD which is cheaper out of pocket at about 50 per month, but was on it for 3 weeks and it didn't work at all. :( My pain started to come back and I just wasn't feeling well.
So last week I went to my doctor and spoke with my nurse practitioner and told her the situation. They put me on a low dose of Norethindrone for 2 weeks to see how that does and if it works then they will keep me on it and with this one they can also boost up the dosage if needed. I'm on my 5th or 6th pill as of today and I seemed to be doing pretty well with it pain wise, however last night into today I've been in awful pain.
I'm hoping that this is just a side effect of the meds finally settling in. I know when I started Lupron about a week later I was in agony and then it went away after a few days. Last night I felt normal lower abdominal pain mixed with feeling like I was about ready to have a period, it seemed to go away on its own. However since I've been on the progestin pill it seems have grown into my lower back.
So last night I woke up in so much lower back pain and up till now nothing has seemed to help. I've tried taking my pain killers and it hasn't touched it. I've tried taking just regular Ibuprofen and that hasn't worked wither. I've tried doing stretches, heating pad and I'm about ready to take a hot shower, but I'm soo uncomfortable.
I tried to call my doc today but because we are having a major snow storm everyone left early for the day so I have to wait and call tomorrow if I'm still not feeling well to see if this is just a side effect or whats going on.
I"m also scared because if this does work my 14 pills were almost 40 dollars and to get a full months worth I would assume would be double and I don't know how I"m going to afford them. I want to cry. :(
Is anyone else on Norethindrone? Did you have any side effects that went away.
I was switched to the NorQD which is cheaper out of pocket at about 50 per month, but was on it for 3 weeks and it didn't work at all. :( My pain started to come back and I just wasn't feeling well.
So last week I went to my doctor and spoke with my nurse practitioner and told her the situation. They put me on a low dose of Norethindrone for 2 weeks to see how that does and if it works then they will keep me on it and with this one they can also boost up the dosage if needed. I'm on my 5th or 6th pill as of today and I seemed to be doing pretty well with it pain wise, however last night into today I've been in awful pain.
I'm hoping that this is just a side effect of the meds finally settling in. I know when I started Lupron about a week later I was in agony and then it went away after a few days. Last night I felt normal lower abdominal pain mixed with feeling like I was about ready to have a period, it seemed to go away on its own. However since I've been on the progestin pill it seems have grown into my lower back.
So last night I woke up in so much lower back pain and up till now nothing has seemed to help. I've tried taking my pain killers and it hasn't touched it. I've tried taking just regular Ibuprofen and that hasn't worked wither. I've tried doing stretches, heating pad and I'm about ready to take a hot shower, but I'm soo uncomfortable.
I tried to call my doc today but because we are having a major snow storm everyone left early for the day so I have to wait and call tomorrow if I'm still not feeling well to see if this is just a side effect or whats going on.
I"m also scared because if this does work my 14 pills were almost 40 dollars and to get a full months worth I would assume would be double and I don't know how I"m going to afford them. I want to cry. :(
Is anyone else on Norethindrone? Did you have any side effects that went away.
I have been in pain and know the frustrations of trying to deal with the medical costs associated with endo. I hate to see people post and have no replies.. so even though I'm not much help, I just wanted to say hang in there and let you know I can relate.
I'm sorry that you're feeling this miserable. Were you able to get a hold of your doctor today?
@JMitchell-I actually went to planned parenthood last night. They were really nice and had a wonderful bedside manner but told me they can't prescribe me anything with hormones in it because of my breast cancer history. The doc that I saw said that she is going to write the pres of the new england chapter just to make sure there aren't any exceptions and the fact that my current oncologist and gynecologist are prescribing progestin pills and I've been on them for over a year now and being well watched. I'm also 10 years out with no re-occurrences. I'm not holding out much hope at this point. :(
@Lindsay- No this is nothing available in my state I've been to the moon and back looking for answers and help and have found nothing. My extreme rightwing batshit republican gov is also making more cuts to the system effective starting early next week. One of them being life saving overdose drug. He's only allowing hospitals/emts an allotted amount for an entire year after they run out thats that. His exact quote about this was "It there junkies then they deserve to drop dead anyway and if its accidental its your own fault for not learning how to read your medication" We can only hope he gets voted out.
@Alana3-Please do tell that to my moron gov. for some reason he doesn't seem to get it when the rest of my state tells him that. Maybe if you tell him??? lol Even tho the norethindrone and the ortho micronor aren't considered "birthcontrol" because you can still get pregnant on them, just for the mere fact that it has the female hormone progetin in it, that means it needs to be revoked of the market immediately on my RX plan.
I just don't get the morons that live here. They are against anytype of bc, they are all dead set against abortions and then they don't want to help you take care of it after you've forced the kid to be here.
i"m just beside myself. I don't know what to do...I don't have the money for the meds and no one can or will help me. What am I going to do when the pain comes back? I was up all night crying. I"m sick of my gov telling me what rights I'm allowed to have and then telling me that my life doesn't matter just go curl underneith a rock and die. I litterally have 2 phone calls to make this morning to other service agencies in Maine, but again I"m not holding my breath as the gov also cut there funding. I just want to go and crawl into my bed and not come out again for a while.