Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
Oh lord...where does the suffering end? I have been under TREMENDOUS stress for months with work, health and trials of Pain Management. The PM doctor will not treat my severe pelvic/vaginal/rectal pain because he "refuses to treat pelvic pain" (wink wink) He agreed to treat severe spinal/joint/BOB pain, currently with Oxycodone 15 mg 3 x day. It doesn't ease the pain. It seems to be more of a stimulant that changes your perception of pain.
Anyhow, on Monday of this week my eyelids became irritated. It happens anytime I use any eye make up other than Lancme. I knew better, but I tried a new eyeliner. I thought the irritation was because of that. The left eye cleared, but the right eye remained "angry" red and swollen, as it began to form blisters. By Wednesday, these red blotches and blisters started spreading across my temple of forehead. HOLY SHIT...Can this be? Please God NO don't let this happen. Don't let me have shingles...and of ALL places in my eye, where it can damage my cornea and cause blindness.
YES...It is SHINGLES full blown. The doctor says it will get worse before better. She examined me and wrote a "pamphlet" of prescriptions. She told me to FLY to the pharmacy and start immediately the antiviral, the 7 day dose pack of corticosteroids, and drops for my eyes. She wanted to write strong pain med, but I told her I was taking Oxycodone and couldn't violate PM contract. She said the pain may exceed even the Oxycodone and to call her if I need more. She told me the ALL STRESS must be avoided...NO WORK, NO WORRY through next week minimum. I laughed at the insanity of even her suggestion. She didn't. She said this level of stress will close my coffin. I could be so lucky, as I'm ready for what's promised on the other side.
IF YOU'RE WONDERING "What does this have to do with endometriosis?"---Read my journal and my posts of late. Shingles are a virus that remains dormant after childhood chicken pox. They can surface at any time due to compromised immune system (got it!) and extreme stress (got it!)
I'm taking a low dose of Neurontin in conjunction with the Oxycodone. I hope that the Neurontin will ease the sensitive nerve pain. IF ANYONE has suggestions to ease this suffering, PLEASE SPEAK UP. I didn't sleep at all last night...walked the floors as storms raged...AGAIN. We have yet another major tree blown down this morning. Our state of Mississippi as well as AR and AL have been RAVAGED for 2 months, causing much death and destruction. Thankfully, we had no loss of life or animals. However, our massive barn and workshop were decimated along with everything in them. Oops...no stress, right?
Thanks for listening=)
~~Pup
Anyhow, on Monday of this week my eyelids became irritated. It happens anytime I use any eye make up other than Lancme. I knew better, but I tried a new eyeliner. I thought the irritation was because of that. The left eye cleared, but the right eye remained "angry" red and swollen, as it began to form blisters. By Wednesday, these red blotches and blisters started spreading across my temple of forehead. HOLY SHIT...Can this be? Please God NO don't let this happen. Don't let me have shingles...and of ALL places in my eye, where it can damage my cornea and cause blindness.
YES...It is SHINGLES full blown. The doctor says it will get worse before better. She examined me and wrote a "pamphlet" of prescriptions. She told me to FLY to the pharmacy and start immediately the antiviral, the 7 day dose pack of corticosteroids, and drops for my eyes. She wanted to write strong pain med, but I told her I was taking Oxycodone and couldn't violate PM contract. She said the pain may exceed even the Oxycodone and to call her if I need more. She told me the ALL STRESS must be avoided...NO WORK, NO WORRY through next week minimum. I laughed at the insanity of even her suggestion. She didn't. She said this level of stress will close my coffin. I could be so lucky, as I'm ready for what's promised on the other side.
IF YOU'RE WONDERING "What does this have to do with endometriosis?"---Read my journal and my posts of late. Shingles are a virus that remains dormant after childhood chicken pox. They can surface at any time due to compromised immune system (got it!) and extreme stress (got it!)
I'm taking a low dose of Neurontin in conjunction with the Oxycodone. I hope that the Neurontin will ease the sensitive nerve pain. IF ANYONE has suggestions to ease this suffering, PLEASE SPEAK UP. I didn't sleep at all last night...walked the floors as storms raged...AGAIN. We have yet another major tree blown down this morning. Our state of Mississippi as well as AR and AL have been RAVAGED for 2 months, causing much death and destruction. Thankfully, we had no loss of life or animals. However, our massive barn and workshop were decimated along with everything in them. Oops...no stress, right?
Thanks for listening=)
~~Pup
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My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
No doubt that compromised immune system opened the door and STRESS invited the shingles in. Question is..."How do I get them to leave?" I don't know how I can endure this pain on top of all of my existing pain. Really...What choice do I have? Sorry...just needed to vent. Thanks, ladies...
~~Pup
This past weekend was without a doubt one of the most painful in my entire life. The usual suspects of relentless endo-related pain, along with indescribable torture of shingles in my right eye. I KNOW that this is my body's 911 CALL...but how does one "not stress" through the tribulations of this body? I spent most of the weekend in the darkness of my bedroom, with shutters closed, needing to cry...but that only makes my pain worse. The anti-virals and dose pak of Prednisone have wreaked havoc on my belly.
My actual eyeball looks as though it could bleed out. The "hot branding iron" pain sears throughout, as the blisters invade the inner lash line closest to the eyeball. The masses of "horror movie grade" mutations continue to multiply and spread across my forehead and right temple, into my scalp. I placed a satin pillow case on my pillow to ease the nightmare of my face "sticking" to the fabric and literally tearing blistered skin as I toss and turn through the night. Every morning I awaken (if I've slept at all) to my eye swollen shut and matted together. The pain and nerve meds have long-since dissipated through the long nght. I realize "Oh FUCK ME...I can't do this any more!" But what choice do I have?
My doctor said that she "hopes" we caught it in time because it can damage my cornea and cause blindness. I'm seeing my opthamalogist today @ 3:00. Oh yea...one more little happy thought...She said shingles can lead to Bells Palsy...I feel like a leper. I find myself comparing my situation to that of Job. I realize there is NO comparison to his suffering, but I find myself crying out to God..."WHY are you doing this to me...Do I not suffer enough?"
I am painfully aware that this wretched disease of endometriosis has far reaching ramifications. It robbed me (like so many others) of my dreams of having at least 2 children, creating our own little family to live happily ever after. By now those 2 children would have made me a Grandma. I'd have made a damn good mom and a wickedly wonderful Grandma=) It robbed me of my health and the ability to have a healthy relationship with my husband. It robbed me of my identity as a woman as surgery basically neutered me. It robbed me of the ability to grow old gracefully. Instead I've just grown OLDER than my years, becoming even more bitter with every passing year.
I can't justify this random babbling. The piercing pain is shooting through my head, eye, and ear. The fire pit beckons to me.
~~Pup
It is very painful and no one understand. Many people assume it is a problem with the elderly. Don't let it bring you down, stay strong! It will get easier. Strengthen that immune system - it will help.
How are you Mercy...If you were on Lupron at 17, you've suffered life long with this disease too haven't you? I guess my question is this...with "early" diagnosis (compared to most of us)...were you better able to "control" the progression? Also, has Lupron affected you adversely as you've aged? I would like to know more about your journey, if you'd share.
It took FAR OO MANY YEARS for me to be heard by GYNs, GIs, and UROs. Their neglect and apathy allowed endometriosis to consume my body and my life. I'm still fighting the good fight=)
~~Pup
I continue to suffer tremendously with SHINGLES in my right eye for almost 4 weeks now. I'm still taking Acyclovir and putting medicated drops in my eye, as well as low lose Neurontin for nerve pain. The nerve pain is like NOTHING I have ever felt. My eye, temple, forehead and scalp feel as though I have third degree burns (excruciating). This weekend I've been frightened of a facial stroke with severe tingling and/or numbness on the right side of my face. I FEAR Bells Palsy as there is danger with SHINGLES of the eye.
I don't mean to whine, but I am SO VERY SADDENED that my suffering is still so severe. With all of the GYN/GI/URO/ENDO/ORTHO/NEURO conditions that cause me life altering pain requiring PM with strong pain meds...THIS CAN BE the straw that breaks the proverbial camel's back.
I just went into the shower, so that I could bawl my eyes out without my husband knowing. THAT, by the way, makes the pain worse. I just need the release as I try to be so brave to lessen his concerns. I don't want him to know that the pain is making me consider suicide. I feel so DEFEATED in my battle against endometriosis and the ramifications of the disease. There's no doubt the stress I've endured while seeking PM contributed to the outbreak of SHINGLES.
I'm sorry for being such a baby about this. It's not like me=(
~~Pup