I can attest to that. I have minimal endo but also have problems with adhesions. And i've had horrible pain. The saying is "alittle endo can cause alot of pain and alot of endo can cause little or no pain at all". I know you are nervous. If in your heart you know you need a lap then make sure your gyne understands that and that you aren't leaving their office until you have a date set.

Yes, I have heard of women with stage 4 that dont feel much pain, it all depends on the person. I have stage 3 endo, with bad adhesion on my uterus, ovaries and Fallopian tubes and I get terrible pain through out the month. I envy those who only get pain during periods.

I had my first lap almost a year ago and I am having my 2nd at the endo of the month, I have a large tumor and cyst on my right ovary. Im curious to see how much Endo grew back in a year. But really it all depends on the person, some women go there whole lives not knowing they have it until they either have problems conceiving or have a hysterectomy.

I agree with whyme123, dont leave until you have a surgery set. If I were you I would just prepare for the worse, that way your not shocked about anything. I wish you the best of luck. :) Always remember you have us to go to when your worried, scared, nervous or just have questions.

HUGS
Ashley Nicole

Thank you girlies :)

I just want to make the right decision. I've been putting off going to see my gyne since May and I guess it was because I didn't want to be fobbed off again. My gyne is very good tho.

I remember after my 2nd lap he came in and said they found more endo but not loads and he said similar to you whyme, that some women have loads of endo but no pain while others have little patches but excrutiating. strange.

knowing a little of my situation, would you recommend a lap?
it's been 2 years and i think my mirena is running out.

thank you for your kind comments. i'm not normally this frantic or nervous. you guys are awesome :)

You're welcome Tori.
I personally would have another lap. Although I know that with each surgery they take out all the endo, adhesions and cysts they see i know it is going to come back i still like to know where i stayed every 2-3 yrs. I'm just funny like that. I can usually tell it's time when all the things i do to manage the pain stop working. I know what you mean about putting it off. I think you should go in. Even tho we suffer alot sometimes we have to kick our own butts into gear and go to doc and make them help us.

((HUGS))

I have stage IV endo with alot of pain...I also have Adenomyosis though and recently told I have PCO (poolycystic ovaries)...So I am lost as to how much much is attributed to each disease. I started off with period pain (horrible mind you) and now I am in pain daily...The worse my endo gets the more pain I am in. I'm on a bunch of narcotics now..and have had 4 surgeries in 14 months. My New doctor wants me to try and stretch it out to a year between!

I have a friend at my support group that has stage IV endo...she said her only issues are pain on her period and infertility.


My gynae said there's also no correlation between pain and amount of endo...actually ALL of them have said that!

I suggest seeing your doc...if you've lasted 2 years good for you! But it is good to get that clean out...and change things in your life for the better...I'm doing Gluten free at the moment and finding it does help with the bloating =) Also alot healthier for me!

I hope you get some good feedback from your doctor =) and as Ashley said...expect the worst that way you're not shocked...and you'll always have us! =)
x

I don't have much endo but I have A LOT of pain. Most of my pain is due to an Allen-Master's window located on my left side around my back abdominal wall. I think it's relally just luck of the draw on how much pain you do/don't have.

My Doctor did not stage my endo because I am not trying to get pregnant. What I saw in the images from the lap was a large amount of "gun powder" lesions, especially towards the back half of my body, and several substantial adhesions. Pain has been a problem for me, but not crippling. Yes, I am in some amount of pain for more days than not, but I don't think I am having the awful pain that many other endo girls have to deal with. My main problems are the GI symptoms caused by the endo.

My doctor says that the lesions caused by endo effect the nerves in the body. It is fairly random where the lesions show up, so it is fairly random who has wretched pain and who doesn't. All it takes is one rotten little lesion on a nerve to make things really painful.

I have between stage 2 and possibly even stage 3 and severe amounts of pain. even when I was at stage 1 i had a ton of pain!! lol