Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
hey there I know this is long but I really need the advice so please someone if you don't mind help me I'm almost 22 I have second degree endometriosis I have tried many forms of medications for treatment and have been unsuccessful I had surgery to remove and biopsy the endometriosis tissue almost a year ago I was told there was a lot of endo found ... the surgery and medications afterwards have failed too my doctor repeatedly tells me that I need a hysterectomy but because of my age he won't do it until I have a child first ... he claims that getting pregnant may make me feel better I don't want children however I feel like this may be only other option and my doctor keeps telling me that I should get pregnant so in a way it feels like henis pressuring me into having a child I am so desperate to ease the pain ... I have absolutely no life I was kicked out of high school before I could graduate because of my attendance due to pain I've never had a job I have no support from my family anymore they are fed up with the fact that I don't help with anything anymore cause I'm always in bed in so much pain I can't even stretch out I spend most of my time in bed in pain a lone because my boyfriend has to work which I completely understand....can anyone suggest anything ? Does pregnancy actually help? ... please help me
Have you been to a pain clinic? Talk to a pelvic pain specialist. There are a variety of nerve block options to help with severe endo pain. I was in the same position as you, and was desperate! The pelvic pain specialist saved me - he performed a superior hypogastric plexus block and my pain went from a 6-8 daily to a 1 or 2! That's not the only option either. So while it seems reasonable to only see your GYN for endo, I'd urge you to seek out a pain specialist.
Good luck and don't give up!!
It sounds like you don't want kids. That's ok, and a smart choice! Get a second opinion from a different Doctor. One who listens to you.
My husband encountered the same bias as a young man trying to get a vasectomy-- his dr. wouldn't do it because he thought my husband would change his mind and want kids! We had to shop around for a dr. who really listened to him.
Another way to think of it is this: imagine keeping your uterus, having a kid in hopes that the pregnancy will make your endo better, and then finding out that the pain's just as bad after having a kid-- it could really impact your ability to be a good mom!
Listen to your heart and your body: you deserve relief from this pain, and if a dr. thinks hysterectomy could make things better, it might be the better option.