Greetings and welcome to the group
I really don't have any pointers for and I don't want to be a Debbie Downer but having a lap is all good but eventually the endo grows back
Am due for my second lap since 2010 however the laparoscopic machine in the local hospital in my country the Bahamas isn't working
I have communicated with women in this group who have had 11 lap surgeries
I just seems to me that nothing gets better with this disease
Lupron is terrible most of the women in this group have been on Lupron at some point or another me as well
I got my three month Lupron shot in may of 2010 and got another shot shortly there after I gained around 30 pounds and by November of 2010 I had attempted suicide
It's a terrible drug it does nothing for your pain and drives you crazy
My best advice is welcome to the group stay connected with the ladies in here who live what you're about to live stay positive and give God thanks and praises for your blessings
Try to stay in bed for as long as you can your body will need the rest because as soon as the endo grows it will come back with a vengeance
I hope I haven't been too blunt or mean with you and if you ever need to vent we are all here for you

thank you for the truth. not too blunt at all. id rather the truth then a sugar coated hope to hang on to. i kinda had a feeling that i would get that for a response. i have been researching about endo and lupron sense july when the thought was first brought up. it really sucks that there isnt a cure and that there is really no relief. i just want to cry im in so much pain i just lay on the smaller of the 2 couches with ice and pain meds at my side. i just want this to be over. :(

Sorry you're feeling so crummy. I know the feeling! I recommend staying on top of your meds. Did your dr give you anti-nausea meds? If not, I'm sure you can call and ask. Take your medicine as soon as you can. If you wait till you NEED it, it's too late to keep the pain under control.

As far as endo goes, I think right now you are in kind of a depressing state. I remember it was so hard to deal with finding out you are diagnosed AND trying to recover from surgery. My only advice is to try to stay positive. I know it is hard to do. There are a lot of women on here who are in much worse pain than I am. There are also a lot of women with endo who are much better off than I am. Everyone is different, and everyone's endo grows back at different rates. See what happens for you and deal with it as it comes along. Hope you feel better!

Ronniliz I know the feeling
I have been asking God for a while why me
But I recently realized that God doesn't give us more than we can handle so therefor why not me
Many days I kick and scream and cry and wonder when will it end
I plead case to my doctor but it's like he is deaf and no one hears my pleas
My latest bought with this illness has had me in and out of the local clinics and the hospital emergency room within the last five weeks
Basically am given morphine drips and gravol shots and am told that there is nothing more that can be done for me
I can not work st this time because my pain is do severe and constant I have no money and am depressed alot because am not the independent woman I use to be
This illness wrecks havoc on your life your body your emotions your relationships and your bank account
I truly am sorry that you are in so much pain I wish I could take the pain away
Please be encouraged and know that we all love each other and we all know the struggle more than the doctors or our family and friends
Please feel free to stay in touch and vent as often as you need

i tried making the timing stretch to 5 hours instead of 4 but i think i just need to take it every 4 hours on the dot, it gets too bad if i wait. she didnt my mom has one that works well for me. now that i am home i may ask for one.

im trying to stay positive, and i know it could be WAY worse. i actually didnt have much this time. my doctor wants to do everything that she can to try to keep it away as long as possible. i wish that some of my friends of family understood what i was going thru they all claim they do but no one really understands unless they actually have it and go thru it. i think that the hardest part for me is that i am only 20 and i have this issue and have had the pain sense me sophmore year if high school. my boyfriend doesnt understand. he thinks i am over reacting and i love my profession but on my bad days its hard to get out of bed and stand behind the chair for hours on end.

i am so sorry that you are going thru all of that. i wish that there could be some relief for you. :( im very glad that we have found this site however, im not sure about you but i sort of feel human again when im on here i feel like FINALLY i have found people that understand and are truly sympathetic to the pain we all encounter on a day to day basis. if you need any one to talk to you can talk to me, im a good listener and i kinda have a feel for some of what you are going thru. ((hugs))

Yes indeed am glad I found you as well today was a terrible day for me
Maybe we can Skype each other when we need to talk I know I find myself needing to talk to someone and my girlfriends and my mother don't fully grasp the excruciating pain we endure
My skype name is serenity1225 if anyone wants to add me!!!

mine is ronniliz i think ill go on and look

I added you

I have had two laps in the last three months for endometriosis. The first surgery was the worst and I was in a lot of pain. What pain meds are you on? If you are on vicodin you can also take ib proffen I would take all the vicodin and the ibproffen it really helped me. It also helped to use a heating pad, I felt the heat worked better than ice. Also my dr gave me anti nausia medicine they will call you in some I'm sure I got it after both my surgeries. I hope you feel better soon!!

i am on vicodin, i find that i am less nauseous if i eat before i take the meds but its hard to get up and eat every 4-5 hours exp when your trying to sleep i am also on 3 diff antibiotics and that is tearing my stomach appart

Hey hun, sorry they found endo but glad you now have answers. You have to eat before you take the pain meds. I know its hard. After all my laps i lived on white rice, toast and gingerale and/or saltines just to have something on my stomach. Try to get some rest and recover then focus on treatment. It is really hard to make important decisions when you are in pain so don't think about the lupron right now. Can she possibly try putting you on birth control pills first?

(((HUGS))

yea I second the birth control idea first rather than Lupron. Birth control pills can help suppress endo with much less side effects. Lupron can have very severe side effects as you may have seen on this forum. Maybe try to talk to you your Dr. Happy your surgery is over and you have an answer. You'll feel better soon. In the meantime, just take it easy.

I was really one sided and wanna be more objective and explain a little better (im groggy no sleep last night); BC pills might wanna be something you try first, its a much less extreme treatment after surgery while Lupron is taken every month or 3 month through a shot, so if you have bad side effects, it will be in your system for months.
But on the other hand, some women have effective relief and minimal side effects with Lupron. Maybe google Lupron, and post a qestion here, "Lupron or BC pills after surgery?" See what the endo women have to say. And ALWAYS, ALWAYS research medical treatments. You'll make the right choice for you. Its hard to tell you what to do, everyone responds differently to everything! Lupron may be great for you, while its horrible for others. Try to focus on recovering now and resting. Take Care!

@whyme i try, its harder when i am at home cuz there really isnt a lot to eat. altho white rice sounds like amazing right now, i feel like all i do is sleep, and take meds. im already more mobile today. its easier to get around the house and to sit down and stand up. i have been researching endo and lupron sense about july of last year. they were trying to convince me to have the surgery sense then but i didnt have the support i have now. i had a controlling boyfriend that really could have cared less about it. my primary care doctor had been playing around with birth control sense i was a sophmore in high school (so about 5-6 years) and it wasnt doing anything for me. i am really scared of lupron but im afraid that it may be all that i can do to try to get this under control so that i can live my life. it sucks cuz i am so young. i just dont know what to do anymore. ((hugs))

@yankees its ok. you were stating your opinion that you feel strongly about. i would almost rather something more one sided then something sugar coated and surrounded by roses. i am super afraid of lupron the thought of a medication that shuts down my reproductive system sounds like no kiddos in my future (yes i have researched and i know that this disease causes infertiliy and that the lupron can help with treating that issue but it scares me,,) i just dont know what to do :/