Down Syndrome Support Group
Down syndrome is characterized by a combination of major and minor abnormalities of body structure and function. Among features present in nearly all cases are impairment of learning and physical growth, and a recognizable facial appearance usually identified at birth. Many other organ systems may be affected as well. If you or your child is suffering from Down syndrome,...
don't expect much from him....?
well they were WRONG, he has ALOT of medals from special olympics and can outrun me! he is smart and sees the true value in this life and that is love and the simple joys of life!!
don't look at what she CAN'T do rather than what she can and that is to show you the true meaning of life also..that in itself is a lesson that not alot of people can see or will even know. Us moms are truly blessed to have kids with DS, they show us unconditional love and I'd rather have that than anything else.
There are days where it will be really hard, physically, emotionally and spiritually to cope. But behind every cloud is the sunshine waiting to come out. All you need to do is look in your daughters eyes and see the love that is reflected back and do one of the simple little things that give them so much joy.
Jessie is 10 now, and was never expected to live to see the age of 1.
I think we are given these children so they can teach us about love and humility, about being able to see joy in the simple things in life.
Hang in there, my thoughts are with you.
I justwanted you to know that you are NOTa bad peson forthnking this way...in fact it is perfectly normal. Everyone goes through stages in their lives that will put you in this frame of mind. There are specific times...like at birth, next at 2 yeats old...again when the child starts school...the preteen years...etc etc. I have gone through every one ofthese stages. The difference I choose to do though..is allow myself to feel it..and then move on. I realized that my feelings are too obvious to others and I did not want others to think shewas less ofa person just becasue of my feelings at the time. I NEVER stopped loving her...I never will!! My daughter is now 26. She is a valuable person in this community and is loved and loves people and socializing. I canot go anywhere where she does not meet up with someone she knows and stops to chat with!! Going through all the different phases of life for any of us...is difficult..but having a disability is even harder. I stopped feeling sorry for her when others made comments, SHE is the one who wounts, not me...and SHE does not care one way or another what others thnk of her. I have raised her to be proud of who she is and eveything about herself. She does not know the meaning of the words "can't do it" becasue that is how I raised her..andthat is no diffeent from the way I raised my youngest daughter as well. YEs..ther are differences....and yes..there are going t obe hard times...but the happiness and pride far surpass any of the other thoughts that ramble through my head at diffent times in her life. I am not going to let you wallow in your sorrow for long...You can see foryourself. that just becasue she has DS does not make her loved any less by you...and isn;t that what is most improtant in life..to be loved and to love. Both things a child with DS is far more capable off that anyone else I know.
Your child WILL walk, talk and be a brat..jutlike everyone else..the timelinesin which this child does it may be different...but the job does get done eventually. I like to think of it as ..my daughter took the invaluable time to stop and smell the rosed before she moved on in her life.
Ok..I am done with my rant. Just know that ..this too shall pass and it is ok to be there when you are,,,you are normal and I know you still ove your child, no matter what.
PLease take gppd care,
Donna xox