Down Syndrome Support Group

Down syndrome is characterized by a combination of major and minor abnormalities of body structure and function. Among features present in nearly all cases are impairment of learning and physical growth, and a recognizable facial appearance usually identified at birth. Many other organ systems may be affected as well. If you or your child is suffering from Down syndrome, join the group and find support.

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  • juliannetthomas

    Health Insurance

    1
    Hey everyone, I'm looking for some advice on a health care plan for our baby girl due this December. I am 22 and my boyfriend is 28. This is our first baby and have been told from our sonograms and the materniT21 testing that she most likely will have Down syndrome. My boyfriend is very worried about her health coverage and whether or not he should be looking for a job with better benefits. Does...
  • GhostlyLydia

    IGNORE THAT LAST POST!

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    I realized that the questions would probably be easier to answer as one complete survey. So I have rewritten the questions, added a few more and voila!Please fill this out for me. Only 25 can respond, though. You must have Down Syndrome as a diagnosis, though.https://goo.gl/F2bPuH
  • GhostlyLydia

    Hello!

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    I am here because I would like some people who have Down Syndrome to help me answer a few questions. I am doing a research paper on how Down Syndrome affects linguistics and have created some polls for people with Down Syndrome to answer. The polls are completely anonymous, so there should be no worries about answering!Before I provide the links, I would like everyone to know that I have...
  • mell27

    my 6th baby

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    hi just looking for advice im 40 years old and due my 6th baby the week of my 41st birthday and have had 3 scans so far all showing high signs of down syndrome even by the fetal medicine specialists at the rvi in newcastle my pregnancy is very different to all my others but mainly due to a lack of movement, movement is happening but very faint compaire to my other pregnancys is this quite...
  • guitarman79

    Down Syndrome son

    1
    Hi everyone,I just joined.  Friend's of the family, theire son has downsyndrome, Not sure as to what kindanyway....I do know they don't have the chromezones we do.There's some stuff he does understand's and some he doesen't.I haven't thaught about it in 20yr's...But, when I used to go over to their house,  and we would be playing ninntendo, and when he thought he had the upperhand on me I'd...
  • MomNLove

    Husband Advice

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    My husband refuses to hold or interact with our 1-month old daughter with Down Syndrome. At this point he is barely talking to me. He doesn't want to be a father to a child with a disability, won't get counceling, and will not read anything I suggest. He doesn't want to change. What do I do? How can I help him (and me)?
  • volleyball15

    School

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    I am doing a project on down syndrome and I am really interested on what you as parents do for your children. It can be about anything too!! If you could message me that would be great!!
  • bumbledbees

    School

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    Hi all, I am curious to what kind of school your children attend and if inclusion is implemented within their classrooms? Do they go to public schools or schools specifically for children with special needs? How is this working for your child?
  • katiebelle1091

    What age were you??

    Just curious , but what age were you when you had your child with Downs Syndrome ?? I was 33 when I had Sam , Katie xxx
  • katiebelle1091

    Mymeg,

    2
    I don't if any of the old timers from the early days are still on here but I said I'd post anyway. One of the early church but rubbers mymeg ( Karen) passed away two days ago suddenly. She was mom to Meg a wonderful girl just through her second cancer fight . It's horrible her mother was snatched from her so suddenly. Anyway those of us who remembet Karen know what a great person she was . We...
  • krazykatt58

    Reality of Disability

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    It was never easy, but it is getting harder to deal with the emotions at this age of transition. There is so much guilt on my part for not having done "a better job:, and I have not been well. I thought I could have done a better job.I have gotten sick in these past few years when she was in middle school without a wrap. I am no support for her emotions dealing with this, and I am admitting...
  • kristinsmith

    suprised with ds baby... Heart defect

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    I took the blood tests. I took the ultrasounds... i was told all is well!!! Well here i am holding a baby with ds and av canal defect. Also her anus is in the wrong spot and she has to go through different surgeries. I cry alot to know she has to go through so much and she is so tiny... i never had a clue and im not sure what i would have done if i would have known. Im 25 and i have an 8th grade...
  • Msdee84

    Instagram Feel Free To Follow Our Journey

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    Hi All My Daughter Is Rocking An Extra Chromosome. I have an instagram to document our journey. feel free to follow her ... All.About.Soli
  • enchanting123

    Down Syndrome and loneliness

    4
    Does anyone ever feel totally alone in this world; I feel sometimes that it is just my son and me, and I try hard to fit in both worlds, but it is just not always possible. I don't have much support from family and friends;I feel that the world just don't understand. Always feel torn between my son with Down Syndrome and my husband and my two other kids. Just had to vent this morning, because I...
  • stephanie2373

    Still trying to Cope with DS

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    My daughter is 4 months old and she has down syndrome which got us by surprise. it is still hard for me to cope with it. She is already having therapy for her speech and physical. is it crazy for me to think she is going to reach her milestones just like any other kid if i push her ? this has been hard for me and i am still trying to cope with it. I love her so much and i just want the best for...