Funny but as light headed as I am I do my laying down exercises on the bed with the ceiling fan on. Does not bother me at all. Just now on television there was an image of sun sparkling on water that made me very uncomfortable but not dizzy, not vertigo. Just light headed.

Hi Peg and other dizzy friends, Always glad to read your posts.

The thing that's strangest for me about this condition is how I "almost" forget that I have this problem. Then, I'll move a certain way (sometimes losing my balance) or I'll have some visual stimuli . . . and then, I get a rush of that dizzy lightheaded feeling as if by body is reminding me "Not so fast kid, you're not out of the water yet!"

Have an appointment this month to see another ENT both for a second opinion and the VNG testing. Not looking forward to the testing as I read some of your posts about the dizziness and even nausea. Can't wait for that! Guess I'll just have to "suck it up" and put on my "big girl panties" if I want any answers from the testing.

Take care everyone!

Annelid I found the testing fascinating. Anything I felt passed almost immediately. I was so glad to get a concrete diagnosis instead of shrugged shoulders.

Peg, thanks for the positive perspective. My appointment for testing is August 12 and I am just a little anxious because I have to drive so far to get to the testing location - 100 miles one way.

The good news is that I have an appointment to see the ENT later that afternoon for the results, so I don't have to wait or make a second trip. Yeah!

Can you share the kinds of information I can expect to get from the testing? Maybe I'll try to do an internet search as well.

Thanks for your info!

Google ENS testing first.

What I got was the reassurance my hearing was perfect. Then a concrete diagnosis. Vestibular neuritis. I was so glad to get a diagnosis. They told me before I left the room. Maybe because my husband is a doctor and they both knew him. But in any case a diagnosis was wonderful.
It definitely showed a 38% weaker left ear as far as the vestibule was concerned.

Peg, glad you got a diagnosis! it certainly helps to know what it is that's making you feel awful so at least you can fight it....I had my ENG test done on the 25th and was found to have a 26% left unilateral weakness but my ENT thinks I have Meniere's disease.....a neurologist I was going to believes I have vestibular migraine. I don't have any hearing loss and when I had the hearing test done it was found to be normal, so I'm still leaning towards the Meniere's more than I am vestibular migraine, but regardless I'm hoping to get rid of whatever it is that I have.....

They used the word migraine with me too but I had a very odd sore throat for two weeks, then big vertigo for three days then this dizziness for 9 weeks now. I think the sore throat helped make the viral diagnosis.

You know what? In any case I am royally angry at this. Nothing is helping. I'm concerned it'll never go away.

Hi annelind, I'm just going to throw out one more possibility because it's the one on my mind. I have cervicogenic dizziness (neck-related). The ENT did help me figure it out, but mostly just from me describing when it strikes - not from any particular diagnostic test. The ENG test was inconclusive. Even the part where they click in your ears and measure how the neck muscle tightens, apparently that didn't show the problem. But since I figured out that it exists I've been paying closer attention. The BPPV vertigo is based on head position, but this other dizziness goes with neck position, so when you mentioned that you have trouble "every time I move" that struck a chord with me.

I haven't found a whole lot on the web about cervicogenic dizziness - there doesn't seem to be a consensus on treatment, but for me I've found that stretching exercises didn't help much (or maybe I need to do them longer to get an effect), but massaging the sternocleidomastoid muscle made a difference within a couple of days. VRT exercises don't seem to be doing anything either, but I should admit I am self-administering because the nearest therapist is 100 miles away.

Not all of your description matches a neck problem, but I thought I would throw it out because it might not be on the doctor's mind as a possibility. And if your problem is partly neck-related that could also explain non-results or conflicting results from tests or treatment.

Good luck!

Hi Dizzy Friends!

Thanks for the helpful posts. Peg and Glomanaich I will definitely spend time Googling both ENS testing and cervicogenic dizziness before my appointment for testing next week.

The first ENT also mentioned silent migraine, so that must be something that is in the mix when doctors are trying to determine the cause.

I am very interested in researching more about cervicogenic dizziness. The first PT I saw spent a lot of time explaining about how many patients she saw had some abnormal position of jaw, cranium, neck . . . often after extensive dental work done prior to the onset of the vertigo/dizziness (which I did).

I can't remember enough of the specifics to explain what she was describing to me, but it had to do with pressure points on nerves and the positioning of the jaw, skull and spine when your mouth is being propped open for an extended period of time.

She also mentioned how many of her older patients tended to have that forward thrusting neck position (which unfortunately, I have to remind myself about).

Through the years, I have had many spine problems, including the neck. So I am hoping that there might be a structural connection for me that's causing this chronic dizziness.

Thanks again everyone and take care.

While I am confident this would be my diagnosis, my doctorssssss are not confident in anything. And I have seen the best.

I am more or less inclined to believe that I am more concerned then they are.

More or less about this time every year, my issues act up and I get full ears, imbalance, just that complete off feeling. Takes a couple of weeks to really get back to normal.

Always leaves me guessing if this time it has gotten worse and stays worse. It has been 7 years since this started.

Maestro99: Any chance you may have seasonal allergies responsible for your condition? Just a thought . . .

It's only been two years for me since this chronic dizziness started. I keep hoping one morning I will wake up and I will feel "normal" again without this constant dizzy head.

Prayers for us all!

@annelind I am sure this is not seasonal. I have this all the time, but I take medication to control it. And I usually feel great. But most fall seasons, i get a setback and have to deal with the crap for a couple weeks. I can usually bear with it, but something also triggered this and so I have to wait for it to subside.

Not fun. Waiting for some normalcy again.

Hello Everyone, I definately have to say what a release of pain I feel finding this support group. Back in Feb 2014 my life changed due to Vestibular Neuritis. I use to get dizzy spells for a few years but they never last more than a few seconds and I was back to normal. I ignored those warning signs and never brought this up at drs appts. On this particular day I was working and it hit me like a ton of bricks. I have been light headed and dizzy everyday and it has now been 10 months. So days are better than others and it is definately a day to day process. Very discouraging when specialist who you hold at a high regard tell you that you have to just let it pass. Even more discouraging when you see people who say they have suffered for up to 5 years and counting with this. No one from friends to family understands what I go through. There words of encouragement and these doctors visits have started becoming of little comfort especially since a majority of my attacks I am alone. One thing I noticed a few of of have in common other than this dreadful dizzyness is a lack of vitamin D. I was told this about a year before the dizzyness became chronic to start taking more vatimin D and I did not. I took a multi vitamin with not enough as recommended by my doctor. I just want to say to anyone out there if you ever want to chat or just need to vent please message me or reply. I would love to have support and give support

This sounds very similar to my dizziness...viruses attack my body and my nervous system...but it's viruses my body can't keep dormant along with other viruses I catch. My doctor has me on an antiviral called FAMVIR every day. It has helped tremendously. I also did chelation for a couple of metals in my body. I got sicker before I got better, but I'm SOOOO much better now!!!

Good luck!

Hi, was diagnosed with Meneres 20 years ago..but it only consisted of slight dizziness and a little bit of nausea. Never really amounted to anything. Now..starting last May, I started getting dizzy while driving and the feeling like I was going to pass out. It happened a few times and they admitted me for a full work up, cardiac, blood work, MRI etc. Could not find anything. By fall it had basically stopped. In Dec I started true vertigo episodes with severe vomiting that lasted for hours.
Or if I went to ER they would give me Zofran, Valium and Meclizine.
That has always done the trick...just to get me home. The bad thing is I could sleep for days. Since December it has happened 3 more times in a week. It is horrible and there is not a worse feeling than that.
I now carry disvolable Zofran tablet, valium and meclinzine in my pocketbook. I am going to try PT this week for vertigo. It is my last chance at this point. I am desperate. From what I understand I do not have positional vertigo which is usually caused by the inner ear. I Had my ears checked by an ENT and also had the audio test.
I do have hearing loss (which I knew from 20 years ago along with the fullness feeling and tinitus. The ringing has become so much louder over the years. After doing research and reading everyone's blogs...It is so frustrating to know no one really has an easy answer. The thought of living like this is completely frustrating. YOu just never know when it is going to happen.
I just read something on a natural remedy called DiVertigo. I am going to stop and get it on the way home today. It is an oil that you put behind your ear and it is suppose to stop the feeling.
Like I said...I am desperate and will try anything.
I will post if I find it works.
Good luck to everyone.