I never tried to commit suicide, but when I was 18 and told her that I wanted to, my mother told me to "go ahead and do it".

My son is almost 18 and my daughter 15. I can't imagine treating either one like that.

Parents should be there for their kids. Unfortunately too often they're more concerned how they look like to other people out there in the community to care about their own kids.

Heartfelt hugs, Patti

Please don't give up. When people don't understand what you're going through they don't know what to do or how to help. Try and do research about the disease for yourself and with your husband so that maybe he can understand it more and you both can find different ways, groups or some type of therapy to help cope with what's happening. Journaling is a great outlet to help you release your thoughts and feelings so you don't hold them inside and cause yourself to have severe anxiety. Stay as strong as you can and try finding something positive to do that you enjoy and can help you relax. I pray you get some of the love, encouragement and support you need from family, friends and this site..Feel free to inbox anytime if you want to vent or just talk about anything.

I'm sorry your mother has been unsupportive, maybe she just doesn't know how to help. Maybe she's a jerk who doesn't care about her offspring, but usually that is not the real case. nobody is perfect, but don't put yourself in a poison environment if you don't have too. you've got to learn to set boundaries too, for your own self care. I know what you mean about men who want to turn it around to thier suffering, and when you need support they make it about them needing reassurance.

this is usually a safe place, I love it here on this website, if you stay and post alot you will run into people who are having a bad day and take it out on posters here, but usually people here listen and try to support the best they can

Not too sure how to help you ... your post indicates you are in need, .. but doesn't tell me (us) very many details. I respect that some details are none of my business. All I know is you have an incurable disease, you have a 'home' where you don't get much support and are even oppressed with threats and criticism and your mother has turned her back on you. Your husband does not seem to know how to help you.

I know you are new here ... and you have done a good job of getting started. Hopefully you can clarify and detail your situation enough where we can offer some real suggestions.

Do you live with anyone at home except your husband? If Mom turned her back on you, turn you on hers.

Seek all the help you need ... physically and emotionally from the medical profession. Seems that is the source for managing some of the most serious problems. Of course, you are welcome here too ... and we will do our best to give support.

thank you all so much for taking time to read and respond. I kept going to the dentist with what I thought was tooth pain until he had pulled all my teeth and now I have to wear dentures. which makes my self esteem lower than low. Only to still have the worst pain ever. I was then diagnosed with Trigeminal Neuralgia in both sides of my face. The side effect of the medicine are mentally more taxing than the pain it. I have horrible nightmares almost every night and suicide is all I can think about to make it all stop. I have a 14 year old son at home and my 18 year old daughter just moved 20 hours away with some guy she met online. which is a completely different ball game all itself. Dont get me wrong my husband is wonderful he just doesnt know how to handle me emotionally and so that leaves me with no one. I learned from a young child how to build walls up so hes never really had to deal with me being broken I used to be the strong one. Thats no longer the case. I have no desire to do or see anyone anymore.

Well ... let us take small steps ... one at a time. The neuralgia you have must be horrible .. and very disabling. There is a keyword. DISABILITY.

If you cannot work, and have not already done so, go to www.ssa.gov and educate yourself on making a DISABILITY CLAIM. Success will get you a monthly income check AND Medicare. THE ONLY THING that may prevent success is if or how much your husband earns. That would be the FIRST question you need an answer to. There is a phone number you can call to probably get an answer.

IF you file a claim, .. it will PROBABLY be denied. This is VERY common. When that happens, you get a lawyer who specializes in such claims. He will APPEAL the decision and help you IMMENSELY. You must have a denied claim first. The lawyer gets paid ONLY if you 'win'. You are then paid RETROACTIVELY to when you filed ... denial or not and then monthly thereafter. There is a CAP on how much he gets paid. I think it is about $5,000. It usually is covered in the first retroactive pmt.

Does this help you with pain? I don't know ... not a neurologist, but nothing wrong with a monthly income check and having Medicare benefits.

Now, on the neuralgia. Here is what I found:

"Because of the variety of treatment options available, having trigeminal neuralgia doesn't necessarily mean you're doomed to a life of pain. Doctors usually can effectively manage trigeminal neuralgia with medications, injections or surgery."

Whoever told you there is 'no cure', .. and they MAY be right ... but with Medicare, you should be able to get affordable second OPINIONS, and even surgery if you are encouraged by a doctor to do so. SS Disability COULD lead you to effective treatment. (one step at a time).

If husband can't deal with 'it all', don't ask or expect him to. I am sure you love each other. If he can't, ... he can't.

I know I am not suggesting anything that is earth shakeingly exciting .. but it CAN'T hurt to look into all this. It all DOES represent a BENEFIT to you.

Good luck, .. and if you end up with any questions, message me and I will try to answer.

thank you and Ive already started the process of filing a claim on for disability only to discover that my mother has already filed against mine claiming to be me and get disability. So that being said now I have to try and prove it wasnt me 2 years ago trying to get disability. Im just thankful she wasnt approved or it would be really bad. They even have my age listed as 62 which Im far from. It just hard to deal with knowing how far a mother would go to screw over her own daughter.

Hmmmm ... she may be headed for prison ... hopefully. You MIGHT want to talk to a lawyer JUST ABOUT THIS. I never considered this complication. WOW. Sounds like grounds for a CIVIL SUIT ... if she has any assets. Life is a soap opera.

I hope you can get this resolved and go ahead and gain those SS benefits.

Please realize you have a somewhat dysfunctional mother and you have been a strong person to deal with this and compliment yourself for your strength. Do read Men are from Mars Women are from Venus to review how men and women respond to stress. There seems to be some different treatments for your condition which you should consider.
http://fpa-support.org/learn/treatment-options/

You seem like a wonderful people a very nice person, a good wife, so please realize your worth to everyone.

If your husband starts to get annoyed, assure him that this is nothing I did, and that may help him reassure you.

I am amazed at the strength of a human when there is need; and I'm awed by the kindness and suggestions and encouragement one can find here. Makes my loathing of social media, instant information so very much more tolerable. I think it sounds like you are handling everything to the best of your ability, and I hope you are able to seek the options mentioned for pain management. Your marriage---can you discuss with a counselor to get you both on level footing? Or even some resources to help understand each other, prior to getting into the specific circumstance? My husband and I found this book VERY helpful: http://bit.ly/2eUWEK2 Hope it helps, and things start looking up. Small victories lead to large victories is my new catch phrase.