Hugs, meanie...deep sighs....

Your love for these boys is so beautiful. I hope it inspires the strength you need, when you need it.

OOX

PS---never lose your sense of humor, it's what saves our sanity!!!! We all need to joke and kid and be silly from time to time.

hugs beastie

I'm so sorry this is happening.

I'm hoping and praying with all my heart that the tests bring back as good a news as can be expected.I hope also that you give yourself whatever is needed in order to cope with the news you get.Many gigantic ((( Hugs ))) to you and your family my dear friend.

Oh Sweetie,

I'm so sorry.

We will all keep praying for those sweet little guys.

Love To You Beastie

huge hugs to you and the boys.

i hope the bloodwork comes back with a negative for this disease. sorry you're going through this.

Aww Beastie..I am so sorry to hear this news about the twins. They are adorable and I will keep them, your family in my thoughts and prayers...Love to you and them, for the coolest grandma ever...

I kept thinking that no news was good news.. apparently not..... they are low on a lot of nutrients and enzyems and high on others... They are looking for any fractures etc to their bones. These boys are so active and never seem in pain... I throw them around like rag dolls... I have been a lot easier on them since their teeth have become lose but damnit...... I just cant see this happening...

Seeings as its so rare, they are going to use them for guinea pigs and stick needles in them... My brother Clayton had a little girl named Hillery, my niece, she died when she was two years old of cancer... They used her for a guinea pig all the time at Primary Childrens Hospital to where she would cry and tell my brother and his wife that she hated them... I never want to see that again..

I just dont get it... How did they aquire this? and why... damnit... I want to know... where are the answers and why are they not in a hurry to get a diagnosis? Im so sick to my stomache...

lets hope that they have the mildest recorded case
I will light them another candle

oh ...........................................................


right, "why??????"

I don't get it ......................................

This is just so not right.

I'm at a loss for words, this makes my heart so heavy ....

not right

But .......... we're gonna see this through because this is how life is. It throws shit at us every Fing Day. Just like little Hillary. And we're supposed to eat it and ask for seconds. We're gonna get through this too somehow. It isn't What we get hit with so much as How we move through it that really Counts.

Extra loads of love to you and your family ...........

I'm wishing with every bone in my body x

No One Knows Why Bad Things Happen To Wonderful, Beautiful Little Children.

But Everyone On this board Loves You And Your Little Angels.

We Will Pray In Shifts If We Have To :-)

At least they know what is wrong so they can fix it...

I will keep those two little angels in my thoughts and prayers

HUGS

I am so very sad to hear this. Please don't think your light heartedness had anything to do with this latest news. It simply does not work that way.

I am doubly sorry hearing that you lost a niece to cancer at such a young age.

It may look like they use people with rare conditions as guinea pigs, but they can never do anything that harms the patient. Please take some piece knowing that what they learned with your niece may have helped them save other children.

Dear God,
Please be with our friend Beastie. Beneath that bear suit and all the dancing she is a wonderful woman who cares deeply for her family. We ask you to be with them, and also to be with the doctors who are treating the twins.
Amen

And amen to you dear friend. Please lean on me and the rest of us, we are honored to be your friend and will not take "no" for an answer!

Peace and gentle hugs to you