Deep Vein Thrombosis (DVT) Support Group
Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It can be caused by something preventing blood from circulating or clotting normally. Join the support group if you are coping with DVT and find others who are going through the same challenges.
Hi, everyone. I'm sitting her in an ER and wondering if anyone has any ideas on a strange pattern that has emerged. A quick history:
DV/bilateral PE a year ago (long plane ride, no genetic factors). Coumadin until last November then told I was free to go and have a nice day. Since then, this pattern I've noticed a handful of times has developed:
A dull ache starts in the the first PE spot in the middle left of my back, often after exercise on a treadmill. The pain gets worse and seems a lot like the PE pain, so much so that I usually can't sleep that night. The next day it hurts more and more. Hurts most on a deep inhalation. Then, about 24 hours later, my pulse will race for about 5 minutes and the pain will back down. It can happen again a half hour later and the pain backs down even more until it dissipates. What's going on?
Also concerning is that the level of intensity seems to be getting worse with each event. Tonight, the pain was terrible and I could barely breath during the heart racing part. I thought I would collapse in the wating room. 5 minutes later, my pulse had settled, vital were normal (100% O2 saturation!) but my blood pressure was a little high for me 150/58.
So, here I sit in the ER hoping I don;t get another CT scan. People at this sight have been such a wonderful combination of supportive and seriously smart and I've always appreciated the advice. Any thoughts?
Many thanks!
T.
DV/bilateral PE a year ago (long plane ride, no genetic factors). Coumadin until last November then told I was free to go and have a nice day. Since then, this pattern I've noticed a handful of times has developed:
A dull ache starts in the the first PE spot in the middle left of my back, often after exercise on a treadmill. The pain gets worse and seems a lot like the PE pain, so much so that I usually can't sleep that night. The next day it hurts more and more. Hurts most on a deep inhalation. Then, about 24 hours later, my pulse will race for about 5 minutes and the pain will back down. It can happen again a half hour later and the pain backs down even more until it dissipates. What's going on?
Also concerning is that the level of intensity seems to be getting worse with each event. Tonight, the pain was terrible and I could barely breath during the heart racing part. I thought I would collapse in the wating room. 5 minutes later, my pulse had settled, vital were normal (100% O2 saturation!) but my blood pressure was a little high for me 150/58.
So, here I sit in the ER hoping I don;t get another CT scan. People at this sight have been such a wonderful combination of supportive and seriously smart and I've always appreciated the advice. Any thoughts?
Many thanks!
T.
bulldogt
You never felt like this while on Coumadin? You definitely need that CT scan because your symptoms do sound like PE symptoms, and that\'s just nothing to mess around with. Please keep us posted!
Diagnosis: pleurisy. I was put on prednisone for 5 days. I was already aware of the crazy side effects but the memory of the pain mitigated that decision. After being on it 24 hours, it has helped tremendously, although I have a sudden and new urge to chase cars down the street.
So, where did it come from? When we were hunting around for the cause of the PEs last year, we did 2 CT scans, both of which showed a less than 4mm nodule in the lungs. The CT scans were 9 months apart and there was no change so it\'s been ruled benign, which I believe is the protocol for that size. However, both times, the reader and my doctor felt it looked like scar tissue - from a PE? Hard to say. The current theory on the source of the pleurisy is that when I was running, the pleura stuck to the lung and/or became inflamed. My doctor told me that the steroids should help and it\'s possible this won\'t happen again but I\'m still wondering is this now a chronic thing? Will it come back? Who knows? Any insights?
Thanks again for all your concern and help,
T.