Deep Vein Thrombosis (DVT) Support Group
Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It can be caused by something preventing blood from circulating or clotting normally. Join the support group if you are coping with DVT and find others who are going through the same challenges.
Are you wearing compression stockings? That can be helpful with keeping your leg from tightening up.
This kind of thing does get easier. I saw improvement up to two years out. You're only three weeks out which is really just a drop in the bucket in terms of clot recovery. When they say "exercise as tolerated," it doesn't sound like you're quite up to "tolerating" your pre-clot walking pace. Maybe take it a little easier for a while and then start amping it up a bit at a time. You might just be doing too much, too soon. Trying to go right back to your old pace sounds like it is too much right now.
Having said that, I think you might be doing too much too soon.
I had my first DVT in Sept. of 2002. Nine months later I would stop in mid stride as my leg would just not move.
I had my second clot in November, 2012 and it was much more localized and so I did not experience the leg freezing up.
After the second clot I tried to go back on my exercise bike and I developed chest pain. I got smart, jumped off the bike for a few weeks and now I am back to doing 10 plus miles a day.
Take it slowly.
After each of my 2 later clots, I was able to get around better after about one week, but they were much smaller clots.
Take your time, wear your stockings and let your body tell you when you are ready for more.
I think I am getting a little ahead of myself as I'm just desperate to be the old me again. It makes sense though i'm going way too fast for myself, i guess i need to be more self-disciplined! TossNTurn yes I'm wearing stockings, they gave me fitted ones whilst I was in hospital. Have to say I'm getting to like them more as my leg feels so much better with the support. Still are ugly as hell but who cares if they're helping, right?!
It's so inspiring when I come to this board and read everyone's stories. Some of you have had it a million times worse than me and have still managed to come to terms with it all! I hope one day my outlook on post DVT will be as bright. Until then I shall stay as an impatient worrying wreck!
Thanks again :)
I think it's great that you are just out there trying to regain some normalcy. It helps with your overall physical and emotional recovery.
It DOES get easier.
Cyced, did you have thrombolysis? I was told afterwards mine had failed but I could 'stagger about' more or less a day or two after so not sure it did fail really. I've heard that the treatment is like a miracle if it goes to plan. Maybe it's not too late for your doctors to do this for you?
Luckymommy, crutches would've helped me loads! I was never offered them in the hospital but this is most likely because I was trying to prove to them I could walk properly to get myself signed off and out of there. As I've got a bit better this week, I'll see how I go and if it goes back to how it was I'll get straight on at asking for some!!!
:)
I had a DVT last October and was in a tremendous amount of pain and immobility. At one point I could not walk without crutches. However, similar to you, I started trying to walk at my own pace immediately after the hospital. Personally, I saw huge improvements within weeks and they have continued since. Keep at it. Don't push yourself too much but being mobile early was helpful in my recovery.
Even though I am not back to 100% just yet, my mobility is not a serious issue. I can run and jog and do 45 min of cardio daily. I actually feel great. It is really motivating making gains and improvements.
PS: Do not worry about people watching you. My gym is very busy and I literally limped at a snails pace on treadmill at first.
Thanks, it's so good to read experiences like yours and how much a person can start to recover from something as debilitating as a blood clot. I'm nearly 4 months into my recovery now and I have to say, it's been a rollercoaster but I'm now seeing the light at the end of the tunnel. In the last month or so I've dramatically seen a change in my leg. I don't have to stop dead in the street anymore and I'm now managing even steep hills (though not very quickly)! Yes it still aches and tightens, swells at the end of the day but it's getting better :) i have to say also i'm so glad I listened to the wise words of people on here because it really got me through the hard times. I hope anyone reading this who is at the very beginning of being diagnosed can see some light too :)