Deep Vein Thrombosis (DVT) Support Group
Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It can be caused by something preventing blood from circulating or clotting normally. Join the support group if you are coping with DVT and find others who are going through the same challenges.
Brooklin
My INR has not been between 2-3 since I developed blood clot #3 on August 11. Last week it was 3.7 after a week's dosage of 3mg twice a week and 2 mgs the other 5 days. So, doctor says to just take 2mgs every single day for the past week. Just got my results and it was a 3.5.
Very discouraging.
I realized that I normally do not eat very much Vitamin K but I decided to eat what I normally eat instead of adding foods that were high in Vit. K
So, my question to all of you is should I add more foods that are high in Vitamin K? Would that bring my INR into range?
My doctor was supposed to get the nutritionist to give me guidelines on the food but I never heard from her.
It's maddening.
Very discouraging.
I realized that I normally do not eat very much Vitamin K but I decided to eat what I normally eat instead of adding foods that were high in Vit. K
So, my question to all of you is should I add more foods that are high in Vitamin K? Would that bring my INR into range?
My doctor was supposed to get the nutritionist to give me guidelines on the food but I never heard from her.
It's maddening.
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I think I mentioned it took me several months to get therapeutic when I first started warfarin (like almost 6 months). I had the opposite problem though. My INR was always below 2. For some people, they're sensitive to the drug, they metabolize the drug differently or there's a bit of body resistance to warfarin so it's not easy to thread that INR needle.
Doctor's office called and told me to skip tonight's dose and do 2mgs for the rest of the week and retest next Tuesday.
I told her that I never got the food guidelines that were promised to me by the doctor and she said she'd put it in the mail asap.
Quite frankly I cannot see myself eating a quarter of a cup of spinach every single day either.
I understand your nervousness at being at 3.5, since you had that bleed before, but realize that having that is unusual and it wasn't as if you just spontaneously started bleeding, there was another health issue involved, right? Remember that while 3.5 is higher than normal therapeutic, there are a lot of people who are safely kept therapeutic with a 2.5-3.5 INR range, I have in the past been kept in that range and am probably headed for it again. At the end of the day, my doctors are generally more comfortable with me having an INR of 4 rather than an INR of 2 because I clot so easily. So I just don't want you to feel like you're in some sort of imminent danger having an INR which is a little bit higher than therapeutic.
For the record, when doctors make small dosage changes to their patients, the long term result is usually more stable for the patient in the long run, because they're taking the time to slowly figure out what dose works for you, giving enough time between INR checks and dose changes to see what effect each change has. I would be a lot more concerned about a doctor who might, for instance, tell you to hold your Coumadin for the day to quickly lower it, then just have you resume the same dosing as before. That doesn't make sense, even though something like that might make you feel better because it would more quickly lower your INR, but it's harder to tell how much the dosage change affected you when you do that. Basically, that's the same principle as you deciding to throw in some high vitamin K foods which you don't normally eat - it just further confuses the matter from the doctor's perspective, it's another factor to add in to an already difficult to dose medication.
Your INR is headed in the right direction, so just keep on the path you're on, keep eating as you normally do, and be patient, it will get there. In a few months you'll probably have had this all worked out for a good amount of time and you'll think how silly you were to obsess over it so much.
My doctor told me to skip one day this week and then to go back on 2mgs for the rest of the week. Maybe that will do it.
Naturally, diet rich in K-vitamin is a healthy. Eating K-vitamin rich diet should reduce your INR. However, how much it decreases is diffcult to day. Generally, I advice people on warfarin not to adjust their dose (note that Im not a doctor) while on warfarin. However, in your case I just wonder that if you would increase your intake of vegetables, and keep that intake consistent (and thats important). This would lower your INR, which you would then compensate by larger warfarin dose. However, if you take a larger warfarin dose (perhaps 4-5 mg), it should be more easy to adjust that dose so you can keep stable INR. You can ask your doctor about this. Having said that, some people have difficulities in regulating their INR, and thus Xarelto may then be a better choice. Goood luck.
I have never tried to change my diet to the diet while on warfarin. . My diet was (and still is) rich n K-vitamin. Generally I never recommend change the diet while on warfarin In this case as the dose is only 2 mg, then so small differences in the dose can have such large changes in INR. As an example, a change from 2-2.5 mg is 20% change, which is large However, in my case, a change from 7.5 was 8mg is 6%. So to fine tune the INR, then (e.g. by vary the dose less than 10%), e.g. from 2-2.25 mg, one would need to break a one 2mg tablet in 1/4. If the tablet consists of a 1mg dose, then this may be of less problem. I have no idea how the dosage of the tablets are.
With warfarin, then in some cases if the dose is increased above certain threshold, the INR can increase more exponentially than linearly, e.g. lets say tha 2mg result in INR of 2.5, 2.25mg to INR of 2.8, but 2.5 may result in INR of 3.5.
In this case, as an experiment, I thought perhaps it would be good idea to revert to a more K-vitamin diet, which would result in a higher warfarin dose, that subsequently may be easier to maintain a more stable INR. I have no idea if this will work, but perhaps if would be a good idea to discuss this with a doctor.
In the end of the day, there is no single solution to DVT problems
Just my opinion.
I have to go there on Tuesday to have blood drawn so I will stop by the office to see if they have anything to give me regarding foods.
It's really a lost cause. I am tired of falling through the cracks. I sometimes wonder if anyone is doing their jobs these days. I was told on Tuesday that there would definitely be material in the mail for me but here it is, Sunday, and nothing. The doctors office is almost within walking distance.
I think as long as I stay away from eating lots of spinach, kale, brussels sprouts and broccoli I will be OK.
I have a rare blood type - A negative. Only 6 percent of the population has that type of blood. None of my doctors has ever mentioned it and just recently I read that if you have a rare blood type you might have a higher incidence of DVT's. I wonder if my blood type is also affecting my INR.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3626477/
Like you ask, the question is if it deos affect the INR. I have no idea, but if non-O groups have higher incidence of clotting, this means that the protrhombin time (i.e. the time it takes to clot) should be faster than for "normal" people and thus the INR lower. In your case, you only need 2 mg to actually increase INR (i.e. slow down the clotting time and increase INR), and sometimes you have gone over the therapeutic limits.
Have you undergone any blood tests for underlying genetic clotting factors. The thing is that some of these inherited genetic factors (mutations or not) make the INR test unreliable. just a thought.
By the way, in my opinion, you should also think about the health benefits of eating vegetables. The warfarin dose can always be adjusted.
I eat salad and mixed veggies. I never really ate much of the dark green veggies anyway so don't miss them.
You do not have to avoid foods with vitamin k. That is an old school approach to being on warfarin. What foods to eat and not eat is not relevant. It's about YOUR diet, the foods YOU normally eat, and being relatively consistent with your YOUR diet, which most people are regardless of being on warfarin. And it's about moderation when it comes to high vitamin k foods. There's no magic here.
I know it's frustrating. I've been there... for 5 plus months of low INRs when I first started warfarin. With some people it's tricky and can take a while. With that said, I do think though if you feel you'll have better luck with another doctor managing your INR, go for it. I ended up doing that, and it helped me achieve a relatively stable INR.