Deep Vein Thrombosis (DVT) Support Group

Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It can be caused by something preventing blood from circulating or clotting normally. Join the support group if you are coping with DVT and find others who are going through the same challenges.

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I thought I would share...

Daffnae
Daffnae
The following link is to a letter I wrote to my orthapaedic surgeons office to share my DVT/PE experience with them and to see if I can spark some interest in improving their practices around blood clot education and risk assessment.

I'm sharing this now because I'm a little nervous / excited about it today. I have received 2 phone calls so far thanking me for my letter, and the head nurse has asked that I call her back today to discuss it. I don't want to get my hopes up that I'm making a big difference, but I figure that even if a handful of people read the letter, then hopefully those people will at least be a little more aware.

http://fromkneetope.wordpress.com/2013/06/19/my-letter-to-tria/

Thanks!
rmb
rmb
WELL DONE!
TossNTurn
TossNTurn
Really a nice job on that letter. I hope it results in some changes! Keep us posted on how it goes!
Brooklin
Brooklin
Good for you! Most of us think that doctors are Gods and we think they know everything. They do not. I diagnosed my first blood clot and the very inexperienced doctor, I could tell, did not believe me, neither did the tech who could not find my massive clot either.
I actually sent a letter to the tech who did find my clot and saved my life.
I hope they listen.
deleted_user
deleted_user
Wow, that was some letter! Great job.
deleted_user
deleted_user
By all means doctors "practice" medicine. Nothing is for certain. I had a DVT at age 25 that I got while working out at the gym. Went to doctor and was sent home. 3 or 4 days later, I went back and was rushed to E.R. with a massive clot that by then, had stretched from my groin area to the middle of my calf. I survived and now I have no problem going with my intuition and not just accepting the physicians diagnosis if my body is telling me something different.
Daffnae
Daffnae
Thanks everyone. I called her back like she asked on Wednesday, but I got voicemail and haven't heard back from her yet. I will give her another try later today or Monday. If anything comes of this, I'll be sure to provide an update.

Have a great weekend!
Daffnae
Daffnae
The head nurse finally reached me. Here is the update. She indicated that both the CEO and COO of their organization have read my letter. Their next step is to review it with a larger group and to determine an action plan. One possibility is to use some of the material / approaches they use for total hip/knee replacements for all of their surgeries. She will be back in touch with me in a couple of weeks once they have developed an action plan.

I have to say it feels so good to feel like they are taking my suggestions seriously and that they are taking the time to keep me in the loop. I also let her know that I'm happy to get involved in any way if there is any role for someone outside of their organization.

Have a great weekend!
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