Deep Vein Thrombosis (DVT) Support Group
Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It can be caused by something preventing blood from circulating or clotting normally. Join the support group if you are coping with DVT and find others who are going through the same challenges.
Hi all,
I saw my haematologist today who gave me the results of some genetic tests (the ones they could do on warfarin) and the results of a Doppler and d-dimer test.
Fortunately, the genetic tests came back clear (no lupus anticoagulant or prothrombin gene mutation). There was protein C and S deficiency, but those two tests have to be done again when (and if) I come off warfarin. The d-dimer test also came back negative, so I was relieved about that.
Residual clotting showed up on the Doppler, so the haematologist wants to keep me on warfarin. She thinks I may have May Thurner Syndrome and is referring me back to the vascular doctor for a second opinion. (I am not sure if she can tell this from the Doppler or from the previous CT scan, or if it needs to be confirmed with further testing). She said that when I come back for the next visit (in March) we can discuss possibility of lifelong coagulation. At first I was only supposed to be on warfarin for 6 mths but now it will be a year, and she thinks that in someone my age whose clot has not resolved within the 6 months that it would be wise to stay on warfarin, and particularly with MTS it would be worth considering lifelong warfarin.
Anyone else with MTS advised to stay on lifelong warfarin? She also said I would need to get a stent fitted. I am not sure how definitive any of this is yet, but I would be interested in hearing from others who have MTS and how long they are on warfarin.
On another note, although all of this is a lot to take in, I am extremely grateful to be here and to be able to celebrate the Christmas holidays with my loved ones, and to see another year :) Wishing you all a very happy and healthy 2011, and thanks for all the support and advice, much appreciated!
I saw my haematologist today who gave me the results of some genetic tests (the ones they could do on warfarin) and the results of a Doppler and d-dimer test.
Fortunately, the genetic tests came back clear (no lupus anticoagulant or prothrombin gene mutation). There was protein C and S deficiency, but those two tests have to be done again when (and if) I come off warfarin. The d-dimer test also came back negative, so I was relieved about that.
Residual clotting showed up on the Doppler, so the haematologist wants to keep me on warfarin. She thinks I may have May Thurner Syndrome and is referring me back to the vascular doctor for a second opinion. (I am not sure if she can tell this from the Doppler or from the previous CT scan, or if it needs to be confirmed with further testing). She said that when I come back for the next visit (in March) we can discuss possibility of lifelong coagulation. At first I was only supposed to be on warfarin for 6 mths but now it will be a year, and she thinks that in someone my age whose clot has not resolved within the 6 months that it would be wise to stay on warfarin, and particularly with MTS it would be worth considering lifelong warfarin.
Anyone else with MTS advised to stay on lifelong warfarin? She also said I would need to get a stent fitted. I am not sure how definitive any of this is yet, but I would be interested in hearing from others who have MTS and how long they are on warfarin.
On another note, although all of this is a lot to take in, I am extremely grateful to be here and to be able to celebrate the Christmas holidays with my loved ones, and to see another year :) Wishing you all a very happy and healthy 2011, and thanks for all the support and advice, much appreciated!
I had stents fitted which resolved the MTS constriction completely til the warfarin therapy was botched afterwards, so now I'm a completely clotted lifer.
The deal was, once the stents were in, I would have been on Warfarin for 6 months whilst the stents got a lining so that they didn't attract clots. However, I clotted up (INR only 1.2, 1.3, 1.4 for several weeks) even before the bruising from the stent op had cleared, so it's lifelong now, although I hope madly for a miracle that the occluded leg will clear itself!!!
they 'suspect' May turner as cause of my dvt april 26th.
They stented me (april29th)immediately, after they used some infusion to dissolve the clot over a 24hour period.
I was on warfarin till Nov1st. I've had d-dimer and other tests will get the results end of Jan.
I should be enroute to Chile for Christmas but the snow has upset plans.
Haematologist gave me 2 innohep shots to take on the journey there and 2 on the way back, because of my recent dvt, just to be safe.
Hopefully i'll get on a flight after the 27th now..... fingers crossed.
Happy for you that you're closer to answers.
Happy Christmas.
Rheafun, I hope you enjoyed Chile, and best of luck with your follow up appointment.
Thanks, Dee :)