Deep Vein Thrombosis (DVT) Support Group
Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It can be caused by something preventing blood from circulating or clotting normally. Join the support group if you are coping with DVT and find others who are going through the same challenges.
Hello all - I have a clot in the popliteal and femoral arteries. Don't know if it is totally occluded or not. I was diagnosed 6 weeks ago. I was starting to feel not too bad and have started walking lots and even did a 5 km. I walked a slow pace but felt good. I feel now though that my leg is worse. It has started to get this tingly feeling in my thigh area and in my calf after I take my sock off and go to bed. The veins are getting bigger as well. I would guess that the clot isn't getting any smaller if my leg is using all these other veins now. I have being to the doctor and she doesn't seem concerned. My INR is at 2.6 and has being fairly stable. Is this tingly feeling normal? At the beginning of this nightmare I never had any pain or swelling in my thigh so can't understand why I am now getting this odd feeling at this point. Just when I thought things were coming along I feel I am now at a stand still. Could I possibly be pushing myself too much?
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Look at what my best friend did with my picture!
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We all have 24 hours in a day. How we spend these hours is important. Watching a little bit of a video about how sitting affects us made me aware of how much sitting and laying down I do. Gonna have to work on that.Your turn. Tell me another truth.
You have to remember that your body has undergone a great trauma, and also that everyone will heal at a different rate. I don't think the tingly feeling is too "weird," in my non-medical-expert opinion. Take care of yourself.
My first DVT was in 2005 and it took me about two years to feel back to 100%. I mean, I wasn't miserable that whole time, but that was the point where I could cross my legs again without thinking about it. The point where I could exercise without dropping into a limp. I had pretty acute pain and swelling for a long time. There's no way I could have even considered a 5K at six weeks out. Totally wouldn't have happened.
Your clot is probably dissolving through all this, but slower than you would expect. As it dissolves, blood gets into areas that were previously blocked (could cause tingling) or blood gets a chance to drain from areas that were previously flooded with blood (could also cause tingling). All that damaged tissue has to heal -- it won't do that the second the clot goes away -- and all your exercise might be moving blood through areas that are desperately trying to heal. I'm not saying the exercise is bad ... just that you might be feeling it because those healing areas are traumatized and are gonna hurt a little more to be put back into use.
It's like breaking an ankle ... it isn't going to feel 100% the first day you get the cast off. It takes a while to build everything back up and it is gonna be sore in the meantime.
Make sure you keep your leg elevated while you're sleeping. Also, check with your doc to see if she would recommend light heat or cold on the area. My doc recommended light heat and I have to say that felt really GOOD during recovery. Everyone goes through this process a little differently and part of the tough part can really be learning what you can and can't handle during recovery.
Hang in there! Keep us posted!
I have slowed down a bit - and have my leg up as I type this. 5 more months on blood thinners, already I am worried about going off! My doctor said my chance of having a recurrance was slim but from reading this forum most do. Is there anyone out there that hasn't reclotted?
I'd like to recommend that you don't push yourself too hard, and that you don't start worrying about everything at once. For instance, don't think about coming off coumadin months from now, but focus on what you can do today to make your health improve. How do you eat an elephant? One bite at a time. :)
Lord willing, you will feel better, and your stamina will return. I completed my sixth half-marathon last weekend! It just takes time, so be patient.
I've been on these boards for almost three years and I can't even tell you the number of folks who clotted once, were really active for their six months on warfarin and then disappeared back into their real lives once they were off. The norm is really to have one clot, be treated, and go on with life. Us weirdos with a long clotting history are really in the minority!
Hang in there! The anxiety about everything is pretty normal, but it starts to fade a little bit as you start to wrap your head around everything. Keep us posted on how you are doing!
And remember this site is just a very small group of people who've had clots. It's not representative of every single person who has ever been diagnosed with a blood clot.
Most people do not get a second doppler. The general thought is that once you've completed your course of warfarin therapy, the clot will have resolved.
As time goes on it will get easier for you emotionally and physically. Be patient and take a deep breath and try to just go with the flow.
Nobody ever told me that...
Yes I know, I'm not normal, I know.
:P to Toss.
I had been warned by my hemo that I would most likely reclot and she is the one that took me off the anticoags and a year later a second time around,the other leg.
But now, I'm a lifer and nobody even try taking me off of it.
BUT if you have no reason to clot again, do your six month and off you go and enjoy life Lwynn. If it was that easy, tell your mind that...
The mind does play funny tricks on us, makes things actually worst then they are. That's when you have to apply mind over matter.
:P right back atcha!
I ended up with a clot again 5 weeks post partum. Dealing with that now. I am waiting anxiously for my Denver trip to the Hematologist/Thrombosis Dr. We leave in 2 days, finally! I have been dealing with this clot for over a week. The OB drs here put me on Lovenox 160 mgs daily for my weight which is 165 lbs. And just said keep my feet up. This clot is a DVT directly behind the knee, I have had quite a few weird episodes since the clot appeared. Really looking forward to that doc trip for more answers (we are 7 hours away in the mountains, fun).