Crohn's Disease & Ulcerative Colitis Support Group
Crohn's disease is a systemic inflammatory bowel disease (IBD) of unknown cause, that results in chronic inflammation of the intestinal tract. It can affect the entire gastrointestinal tract from mouth to anus, and can also cause complications outside of the gastrointestinal tract. There is no known medical or surgical cure for Crohn's disease, but there are many medical...
I have had 2 years of stomach troubles.. started shortly after I had my son and had a medical procedure go bad.. I got bad LUQ pain followed by up to 30 bowel movements a day.. I felt like i was starving to death - i was eating A TON but it would all pass through, I was so weak I could barely put one foot in front of the other and my heart was racing! I was hospitalized and placed on IV fluids, changed my diet to gluten free and was scoped 2 weeks later.. that showed gastritis and esophagitis but otherwise normal - though my symptoms seemed to have improve.
I have had a few flares since then, and this past month being 2nd worst- bad pain when I eat.. EVERY time I eat, even water hurts..mostly my LUQ again..but mid right too.. it feels like I have been punched in the abd at times . when I eat it makes me need to have a bowel movement as well, up to 15 or so a day. everytime I eat I want to throw up, eating becomes not worth all the discomfort etc, I drop weight pretty fast when I flare, and I'm already thin.
My sister was just diagnosed with crohns as well. What are the chances that my stomach issues are crohns as well, with a sibling having a confirmed case.. (our symptoms are very similar). I also have a lot of muscle twitching, and some numbness (but all my vitamin levels checked out). Any advice is greatly welcome!
I have had a few flares since then, and this past month being 2nd worst- bad pain when I eat.. EVERY time I eat, even water hurts..mostly my LUQ again..but mid right too.. it feels like I have been punched in the abd at times . when I eat it makes me need to have a bowel movement as well, up to 15 or so a day. everytime I eat I want to throw up, eating becomes not worth all the discomfort etc, I drop weight pretty fast when I flare, and I'm already thin.
My sister was just diagnosed with crohns as well. What are the chances that my stomach issues are crohns as well, with a sibling having a confirmed case.. (our symptoms are very similar). I also have a lot of muscle twitching, and some numbness (but all my vitamin levels checked out). Any advice is greatly welcome!
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Look at what my best friend did with my picture!
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We all have 24 hours in a day. How we spend these hours is important. Watching a little bit of a video about how sitting affects us made me aware of how much sitting and laying down I do. Gonna have to work on that.Your turn. Tell me another truth.
Have you consulted with a GI doctor yet? If not, I'd do that so you they can get to the bottom of it.
Flares often involve bowel urgency and diarrhea. But you'll want to get a diagnosis, or at least rule it out.
I have been sooo strict about being gluten free x 2 years, we never ever eat out..... this past flare has been SOO painful! I was awakened all night last night with pain.. I'll eat and I can feel the esophagitis as the food goes down, but then about 10-20 minutes afterwards is AWFUL pain - mostly LUQ, but also mid right.. - is this a common place for crohns pain?? They had wanted me to do the pill cam, but things eventually seemed to calm down and I never did.. plus I worry about it getting stuck!
Do yall get joint pains? muscle twitches?
I had a "clean" colonoscopy 2 years before I became symptomatic. When blood started and D wouldn't stop, I had another scope and was Dx with moderate to severe UC. Within 3 years I was Dx again, but with indeterminate Crohn's Colitis. IMO it doesn't matter "what" I have, I just want to heal.
Gluten free is a good thing, you may want to look into the Specific Carbohydrate Diet (SCD) google it. I've been on the diet for almost a year and it has really helped! Last scope showed signs of healing.
I agree with the others, you need to get your own Dx. Good luck!
I'd make an appointment with a GI doc.
My flare-up from CD is constant going to the toilet, usually bloody stools or constipation. I usually have sver stomach pain and stomach cramping. The pain hurts bad enough to make me cry. I also have horrible gas with the nastiest smell followed by sever joint pains.