I have UC and when I'm flaring I have very bad joint pain, but even when in remission, I still have it in my hands. My GI said that's possible to still have joint pain even in remission

Also, my GI prescribed Sulfasalazine to help with the arthritis pain in my hands and once I was on it for a couple of months, it really helped me.

Thank you for your response! I have been on humira for over a year now and although my knees don't flare up..they still hurt all the time. I can't do squats or anything like that. I have no digestive issues at all either, but yet they said I have CD.

Just makes me wonder sometimes!

I wanted to take sulfasalazine but I am allergic to sulfa. Bummer!

I have UC (ulcerative colitis). I sometimes have joint pain. I get Remicade infusions. There was one time when I had joint pain for about a month. That sort of drove me nuts. The GI problems had subsided at that time and the joint pain was the main issue sort of thing. Sometimes I have skin rashes as the main issue.

Basically what it is for you is that you have inflammation in your body. Even if your GI tract is not flared up there is inflammation in other parts of your body and it is making your joints hurt. Many times when the GI problems are under control it means the inflammation is under control, but since you never really had that problem, it is hard to use that as a measurement for you. Even when one part of the body is not inflamed another part can be inflamed. Essentially what you have is a form of arthritis and you might need something to help you with that. Many times Humira or Remicade being taken for the GI problem also works for the arthritis problem, but you might need a little extra.

Basically though, no, it is not strange to have joint pain. I hope you are able to find some help for your joint pain.
Rachel

Hey you know joint pain isn't necessarily from food when you have IBD, right?

I'm not poopooing the diet. I know people here who have had success with it and it's worth a try for people don't want to take meds or have exhausted medication options. But, we just shouldn't dismiss extraintestinal manifestations of IBD as merely food related issues. There is tons of medical and scientific sources on line about extraintestinal manifestations and this disease.

Earlier in my UC I noticed that I'd get cold sores when flaring in my rectum and sigmoid colon. I didn't know ti was a common extraintestinal manifestation until I read about it years later.

For context, my reply in number #5 was specific to someone who posted in this thread something misleading and that person's post was subsequently removed after I posted (probably because they had carpet bombed about 10 other posts with the same exact thing).

I wanted to mention it in case anyone read what I wrote here and was wondering what the hell I was talking about.