hi pat,The lomotil sems to be working.
If fall into a deep sleep and not wake up when you need the washroom. Its all good , Hell its not like that's never Happen to all of us.
Just get that deep sleep You need it.
Hang in there you 2 .
I (we) are here with you both.
please read my newest post Trash It Now Foods.
http://www.dailystrength.org/c/Crohns_Disease_Ulcerative_Colitis/forum/9270370-trash-now-foods

In my worst CD flare, I was going to bed early, sleeping in and taking three hour naps in the afternoon. When I was awake, I could barely move. We hired a house keeper to come once a week because I could just not do it. I barely made it to my part-time job.
I can say that I am in remission now, feeling better. Cleaned up my diet (sugar really makes me tired & is just plain evil) and have some more energy, not tons of it but enough to keep me happy. I still need naps but not everyday and not as long. I'm back to doing my own house keeping and that makes me feel good.

Good luck to you and Pat!

Yeah, with my last UC flare, the fatigue was the worst part and no amount of sleep helped. It would initially, but then I'd get so drained again. It's not that kind of fatigue, to me anyway. It's mind numbing fatigue.

Is Pat anemic right now? Sometimes that and the disease itself just knock you out. I had to have an iron infusion with my last flare because the anemia was so bad.

I have UC, not CD but I still have the worry at times about making it to the BR in time. The thing is, I work in a nursing home and know a lot of people who, for one reason or another, can't make it most of the time so it's not so embarassing to me as it is to other people. After my first mishap, I went to Walmart to buy a large, washable, bed protector pad and then to Walgreens to buy adult size disposible pads and pull-on incontinant briefs. The washable protector stays on my bed all the time. The others I only use if things are bad. I like my sleep a lot!

I am really worried about Pat has he been to a doctor?
I felt like I had been trying to walk around underwater for the past two years !! Since I've gotten meds & am eating totally right I feel so, so much better & actually have energy.
I have UC.
But the energy suck is totally normal.
Has Pat been bleeding all week as well as in the john all the time?
Is he anemic?

I Sleep Sleep and want more Sleep, difficulties just keeping my eyes open! and still wake up tired. stomach pains and lack of energy for several days in a row.I am lucky to make it to work 2 days a week (wrk 12hrs Days in a auto plant) I don't speak to anyone the pains are just to Grate, my bum just plan raw Don`t Cant, even want to Walk. Stop eating cuz the stomach pains are the worst ever,and just puts my strait to the bathroom. My mind gos week and the day grow Longer.

Pat have you had The Doctor`s appointment yet , You know the follow up doctor's appointment from your emergency room hospitalization night,. This follow up doctor's appointment Is A Must of Most Importance, If not please call and make it the doctor's appointment NOW ! Please let Me Us Know what happen.
We All Here are worried and You.

Gosh, so sorry for the both of you! It is normal to be exhausted with crohns. Meds can make it worse. When I was on prednisone I felt terrible and had no energy at all! I know a lot of people have the opposite though.
In my opinion we are exhausted because our bodies are trying so hard to heal. He needs to rest, rest, and rest some more! If possible take time off of work and just go to bed. His body can't heal if it doesn't get rest and proper nutrition. Digesting food take up precious energy that the body needs too. Meat is especially taxing for the body. When I stopped eating meat my energy level increased dramatically.

Thats exactly how I have been feeling, minus the bathroom part. I have been SO tired all the time latley. Its been hard for me to get things done at work, and focus on school stuff.

Thanks so much for the reponse, you don't know how reading all these help me. To answer some questions: No emergency room visit, just a Drs clinic to get the Lomotil script. He is not bleeding. He has had 4 pints of blood on 2 other occasions. He has a fistula and touch wood that is not painful. Pat never has gut pain like i read here. His gut is sensitive now, but not overly bothersome. He uses insulin so no added sugar used here. He worked 2 hours today then called and I got him. We eat well, (I just dropped 66 pounds) and he records all food for his diabetic nurse. Use throw away bed protectors and depends when needed. I have post poned our Easter lunch til he is feeling better. Hugs to you all, Wendy

By the way, his GP is out of town for 2 weeks, no locum, and who know how long the GI wait time is!

Has he had his iron levels checked? I know that when iron is low, energy is also. If it is he may need an iron supplement or dessicated liver tablets if the supplement upsets his stomach. Would also suggest eating iron rich foods like red meat, nuts, dark green leafy vegetables, etc.

Hope things get better soon for you both.

Yeah, even if she's not seeing blood in his stool, he can still be bleeding. Sometimes, it's not visible. I think getting a blood count may be a good idea to see if he's anemic. Be careful with iron supplements as they can be really hard on people with IBD and if he's not well, I don't know. My doc tells me to stay away from the supplements.

Taking Pat at 6PM to see the clinic Dr. Pat wants the same meds for inflammation that he had 2 years ago as they really helped him. I can honestly say he has never felt this bad. I would consider this a flare for sure. He is going to ask for a blood test too. Funny thing he seems much stronger at night??? I made him liver last night.

yea i have UC and im ALWAYS tired. like all i want to do is sleep all day. and i always have RUN after RUN to the BR IN THE MIDDLE OF THE NIGHT ALSO. it just REALLY SUCKS :/