COPD & Emphysema Support Group
COPD is a progressive disease characterized by airflow obstruction or limitation. Emphysema is characterized by loss of elasticity of the lung tissue, destruction of structures supporting the alveoli and of capillaries feeding the alveoli. Both have symptoms that include shortness of breath, among other respiratory troubles. If you are a COPD or Emphysema sufferer, join...
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Over the last 2 years i know the last thing i needed was more oxygen as my sats were always high 90's and the problem was not being able to expel/empty the co2 out of over-stretched lungs..
So the term ''retainer'' is what describes people like me and PLB is the best way to deal with it........it has become second nature now and i don't even realise im doing it constantly without even thinking about it..
I had never thought that retainers do that; retain!
My fev #'s (almost normal) are high, but I need 02 24/7 because I don't "diffuse" the 02 I breath. (my dlco is 38)
that's why pursed lip breathing makes me feel worse instead of better! it must be because I have PF too that is restricting my lungs like a girdle!
and why you have so much rib pain from the hyperinflation!
it was weird that my FEV # kept getting better over the years, and i couldn't understand how i can improve. Even regular DR's focus on the FEV---it wasn't until last year that i learned that COPD+PF (CPFE) changes the Fev--- but my I joined a PF board & was told about it.
Sure enough, i went to an ILD specialist Pulm & it was confirmed.
I'm kind of confused how my FEV went from low when i was 1st dx'x & raised to to almost normal as my PF got worse, but it does. ,,, go figure!
here's a really good chart on what PFT tests dx.;
https://www.inspire.com/usr_res/CatLady1951/img/photo/62757/
i thought it interesting how they dx what we have & i could compare my copy of PFT to it & it was right on!
so sorry you are a retainer, but it sure beats lugging tanks everywhere.
ps i hope the link works
Take me for example: CHF, emphysema, and a touch of bronchitis. For years, even with FEV1% in the low 20s and on O2 24x7, I could always pass a 6MWT without O2*. Sitting around my SpO2 numbers were always 97-98%. Even had a cardio therapist tell me my dependency on Oxygen was probably psychosomatic. LOL. Removing my oxygen and going out to the kitchen oxygen would drop to 94-95%, but I was still good to make coffee, breakfast, do a little cleaning etc. Slowly but surely Id become more and more SoB, PLB helped but it would tend to get worse. Suddenly (5- or 10 pulses) my SpO2 would drop from 94 to 88 84% and I would be in trouble if I didnt get on O2 right away. And when I did get back on I was down for the count for 30 minutes to an hour till I got around to feeling like doing anything but breathe. (Ha)
I dont even have to be active to cause this sudden fall. I can just sit and watch TV without O2, SpO2 stays around 94/95% - ten, 30 minutes, maybe an hour on occasion then suddenly SpO2 drops like a rock and Im down for the count till my stats build back up and my body feels like it can move again.
So Im not on O2 24x7 to keep stats up per se, Im on O2 therapy to simply avoid what can only be called exacerbations. Is CO2 retention involved almost a certainty but Im far from a classic example? The moral of my silly story learn what YOUR body needs, what works for YOU and stick to it. Dont be too concerned if you dont fit some profile few of us do. There is just too much that is unknown about COPD.
here's another try;
http://www.everydayhealth.com/copd/copd-symptoms-that-need-attention.aspx
here's another try;
its a U-tube I thought was so interesting because it has a chart that shows how we are diagnosed with a PFT.
it's long but if you scroll to about 8 minutes it shows the cart;
https://www.youtube.com/watch?v=j_oRQS2dnck
One reason i love the FB group we are in...its immediate, spontaneous and good company, rather than only info related, where forums are great...but i need to keep checking back n its disappointing after a day or so no one or not many reply.......