COPD & Emphysema Support Group
COPD is a progressive disease characterized by airflow obstruction or limitation. Emphysema is characterized by loss of elasticity of the lung tissue, destruction of structures supporting the alveoli and of capillaries feeding the alveoli. Both have symptoms that include shortness of breath, among other respiratory troubles. If you are a COPD or Emphysema sufferer, join...

I don't think it's any surprise to the doctor. Although I went to a heart Doctor a couple of times with suffocating feelings thinking it was heart failure. Finally my g.p suggested trying the breath test and it said severe obstruction or whatever so I had an explanation which I was glad for. I just think it's more common than we know.
Several lung function tests since then have the confirmed the diagnosis and I am holding at moderate stage after five years.
The Drs and nurses at the hospital were all very kind and I don't remember thinking about bed side manner. Almost "buying the farm" with the embolisms made everything else sound like a piece of cake. Tsk tsp.
The Dr's office was flooded with just about everyone coughing all over the place. Tests were taken. I received a call about a week later stating I had emphysema as if it were a bad case of indigestion. (Interesting that there are similar experiences mentioned here. What are they thinking?)
The worse part was I still have no idea who called - could've been the cleaning lady. No further information, for example, next step would have been helpful. I cried for at least a week assuming I'd be dead the next day. I knew nothing!
I don't recall how long it was before I heard from the Dr's office to make an appointment, however, several years later I'm still here in spite of that callousness. (different Dr, different office)
They said I collapsed busted my head open bleed all over everything they rushed me to the ER and several days later I had a Pulmonary Doc and I was DX with Emphy I already had Asthma (as a kid). So that is what happened to me. It was very quick.
I live each day like yall doon 02, inhalers, nebulizers, I take every day as a gift.
I skipped everything she said except what was (in my opinion) the most urgent and that was the Pulmonary. He then ran various tests, x-rays etc. and he was the one to give the dx (stage 4, 17% capacity) but did so with the utmost sensitivity. I feel very fortunate to have someone with such a wonderful bedside manner.
Needless to say I went for a second opinion and he said I wasn't quite there yet but I should consider a transplant in the future.
So, thinking i might have sleep apnea I asked my GP of 17 years if i could have a sleep study done.
(and i kept telling myself i ought to stop smoking "before I got lung cancer"=DUH)
the weekend before the sleep study I went on a yearly camping trip & could hardly walk up the mountain that seemed to get steeper every year.
However, on that campout i got food poisoning & was sent to hospital for stomach xray.
as my dr was prescribing meds for e-coli the hospital called & said they "thought" they saw something in my lungs so dr sent me back for another lung xray & a spirometer.(they don't have in chamber pft's in hooterville)
...
She was very kind, telling me that i had emphysema & that she could handle it, i didn't need a "specialist".
She said if I quit smoking i could live 15 or 20 more years. (that was 2010. i was 55)
I had the sleep study & she started me on 02 24/7.
i quit smoking, and I went happily along my way; now feeling stronger with my 02 along. :)
2 years later i had severe exasperation, went thru severe pain (like i'm having now) for months. My BP went thru the roof high & the pain was so intense I insisted on seeing specialists for the pain & for my lungs.
She told me it was all in my head & I should see a psychiatrist.
At that point i "fired" her & as i walked out her parting words were, "by the way, you have pulmonary fibrosis and you'll have a short life & die painfully."
(i kid you not, a dr actually said that) :)
I found a new PCP, saw specialists, and joined this board to learn about this disease & how to care for myself. :)