COPD & Emphysema Support Group
COPD is a progressive disease characterized by airflow obstruction or limitation. Emphysema is characterized by loss of elasticity of the lung tissue, destruction of structures supporting the alveoli and of capillaries feeding the alveoli. Both have symptoms that include shortness of breath, among other respiratory troubles. If you are a COPD or Emphysema sufferer, join...
To not tell your loved ones until you are years and stages down the line is often seen as a betrayal of trust. Reactions to that are usually not pretty...
Hugs,
Dennis
I think it's important that first you have a handle on your condition. Such as, doing research, re-checking your outlook, accepting your diagnosis, getting medical/emotional support etc. If it's been recent then you probably have some work to do on yourself first.
I would want my mental and emotional state to be strong. I don't see a rush.
There will be a right time to tell her, and you will know . It would be better if it was done in person, but if not, let it be on a day your phone call is just to talk, not her calling you for help or advice. Tell her the doctor diagnosed you and also tell her this is a progressive disease, but it can be managed with proper meds, exercise, diet, ect, all of which you are doing, or will be soon. Let her know that in the future, there will be some lifestyle changes you have to make, and as it progresses, you may need help doing things. Also, let her know, people have been dealing with this disease for years, so it is not like it is going to take you right now !!! Do it gently, with love, and do not mention her troubles, because that has nothing to do with your illness, and may make her feel guilty if she can not get there to help you. She may or may not respond favorably to the news, but that is her choice. The more she , and you, get reliable information on the subject, the more she and you will understand, and it will take some of the scary away...
Hugs to you both
BJ
to tell her there are lots of treatments that will be of help to
you in dealing with it.
It would be cruel not to let her know. Try to do it when you are
more upbeat and not in a sad mood....not always easy....but
something all us mothers learn to do both with our little kids
and our big kids.
Birdcat
I told my children as soon as i got over the shock of being diagnosed.
We were able to talk about it openly and i felt it was better to tell them about it while i was in a healthy state of it and not sick where they would find out anyway and the hard way & worrying about me being sick.
my youngest daughter had the hardest time, but by telling them as soon as i knew, i was able to say, "i am no different than i was last week before i was diagnosed" and since i was put on 02 immediately i was able to tell the kids how much better & stronger it made me feel. (which was the truth)
no one wants the dx for themselves or a loved one, but at least once we are diagnosed, we can start doing things to care for ourselves & get the best treatments possible.
feel the responsibility to protect and nuture loved ones when they got sick.
I regret telling my parents ,because they are old and was devastating for them.My parents are brave people able to handle a lot but this was more sad for them than for me.
I was very honest about my fears and anxieties.
Ireyn ,the right time will come when you will be able to tell your
kid,With her health problems I just imagine the sadness .
Hugs to you and be brave,we all have to.
I just check in here to see what I should be doing and taking and follow that. Works for me : ) So farz
I haven't gone into my emphysema to any length with my family. But I've been diagnosed long enough so that discussions are met with their comfort in my acceptance, my information, and my attitude (somedays not so good, but then discussions can wait ).
It may also have something to do with how I've tended, throughout my life, to approach family with issues dealing with my ups and downs. I tend to wait until I have my ducks in a row - which as why my initial response was such. Much to do with comfort level i.e. what is "normal."
I tend to keep some things to myself, each person is different, it is your life, and you tell who and what you want to.
Once you have a handle on your diagnosis & understand it as well as you can, then I would have a Skype conversation with your daughter, so you can talk to her face to face. This way she can be reassured by the love for her in your eyes.
Jan