I received a friend request the other day. I thought this site had been closed. It was a wonderful blast from the past to see all my old friend's avatars! Now that I found y'all again I will be coming here regularly.
I've had some curves thrown my way since we last met as I'm sure most of you have also but the important thing is that I'm still going at it and haven't let it keep me down for long.
I'm turning 66 this Friday and now receive the full retirement I worked so hard to get not disability anymore so I'm very proud of myself especially since I had to do the last 2 years working on oxygen. My beautiful differently abled daughter Carol has been living with me the last 2 years and I have restored her to healthy young woman. She has went from 215 lbs. to 150 lbs. with no more edema and attends a very mentally stimulating day hab program. She is on a 2 year waiting list for an excellent NOT FOR PROFFIT residential facillity near Austin. Once she is there I can relax and not worry if my time should come who would take her and keep her safe from FOR PROFFIT HOMES. My last PFT had me at 17% lung function. About 6 months ago I gave up driving because of anxiety meds but I have become a pro at online ordering...almost as much fun as actually shopping. I have a rollator and I can put my little 02 bottle in the storage seat so I still go out on weekends with my husband but I tire easily. Unfortunatelly because of the price of my meds. We can't live together because he would be expected to spend all of his savings and have nothing for himself when I'm gone. I hear other countries actually pay the spouse to be the caregiver.
I no longer use puffers but instead use all nebulized medicines. The best I've ever had that has made substancial difference is called YUPELRI. It is new and cost $1,500.00 a month. Hard to believe I'm worth that much to Medicare. I pay $200.00 a month and they pay that much...amazing!
Anyway...I have my friends back and I can learn so much from you guys.
Take care...Love ya,
I have copd and I have been having an exacerbation for several weeks now. My doctor has been increasing prednisone doseage and now I am taking 40mg a day. I don't really feel much better and the prednisone is making me crazy. I can't sleep and I am eating, eating, eating. I would appreciate hearing about other experiences with prednisone and any advice on how to deal with the side...
everytime I am walking away from talking with someone I hear "what an ass!"