Learning to pace myself still challenges me and every day is different.

I get up tired every morning but some are better than others.

It is a roller coaster.
one day I'm up and moving around, the next day I can do nothing.
1 day at a time. Try to get a little exercise every day.
it tends to keep things level.

Seems every day can be different. Not much fun some days. Was so sob this morning but had to clear a part of the yard, Kicked my rear but several breaks later finished it. Had to get it done so my puppy and me could sit out and get some sun. Will be gone tomorrow. Still waiting for the roflumilast to kick in. Do hope soon. Best to you all...

Curt

I have learn to not plan ahead. Everyday once I am up and moving about determines my schedule for that day,
As we all have noticed that we have good days and bad days, On my good days I take it slowly and do the things I have put off. If I have any running around town, then I do that. On my bad days I catch up on my reading or watching movie or spending more time on the pc.
I do not let it get me down mentally nor do I dwell on the situation as I once did in the beginning of learning that this is what I have and what is to be expected.
I guess I just finally accepted what I cant change.
Hugs to all

Your comments really help. What Curt said about the breaks -- oh yeah, I forget about breaks sometimes and then can't move. Not just a break, a breakdown. And pacing myself, and taking one day at a time, and not planning ahead. Very helpful! Not planning ahead is taking a while to get used to, but brings more peace to my day. Still learning. Still trying. So that's something at least. Thanks! :)

DeeDee

make all plans in pencil! hehe.....you can always erase them!

Yup, I still am stubborn and forget to pace myself. Every time I have a good day-----I go all out and do way too much. The next day I am down and out. It feels like I have so many things to get done; when I am feeling well-----because they have been put off; from having bad breathing days.

I really like this one everyone should have a pencil

" make all plans in pencil! hehe.....you can always erase them! "

Don't bother writing anything...

:)

Curt

It is so hard. I have some very decent days and then some days when I feel like I'm suffocating. I don't think I will ever understand this disease. That's what makes it so frustrating sometimes.

I don't think anyone understands it, because if they did I think there would be much better treatments available and perhaps even a cure by now. Just my personal opinion.

I have to agree with all the comments. I have good days and bad days.When I feel up to it, I do what I can, such as laundry and house keeping. I'm sure general fatigue is part of the disease and we have to conserve our strength and use whatever energy one has, as it presents itself.

I agree with everyone's comments...well, I do plan ahead and when the time comes, if I can't handle that plan then I back out back out. I like to know I have a plan to have lunch with friends and am doing things, getting out of the house now and then The people in my life understand that and are very kind about it when I do cancel. Quite often knowing you are going to be doing something you can rest up for a day or two so you have energy. Then there are the days when you seem to hit the wall for no good reason.....that still, after many years of this gets me!! I know it happens and I just deal with it best as I can. I think having a little hobby of some sort that is simple and doesn't take mych energy is a great idea. Sewing is my thing and embroidery.hey you guys, plenty of men knit and did you know the first embroidery work done on fine robes and garnments for royalty was done by men?? You will find what works best for you, I would feel so useless on the bad days, the sewing and hand stitching gives me a sense of self worth.

I have come to realize that only we that have COPD can really understand the good and bad part of our lives.
I hate it when someone tells me that I need to wean myself off of the oxygen, that I am to dependent on it.
Why cant they understand that our lungs are not working normally and that if we had a choice we would not be using 02.
Sorry but had to get that off my chest. Now I can breath better..lol
Hugs Rita

yep, yep, yep. ugh. it is hard. want to do everything i used to, especially with family - husband, kids, grandkids, parents. i get mad or something, maybe not mad, maybe sad. just trying to keep going with mostly a smile. i can still love and laugh, sometimes i can still dance - oh yeah, maybe mostly in my brain, but it still feels good. thanks all. happy father's day. happy every day!
DeeDee