Common Variable Immunodeficiency Support Group
Common variable immunodeficiency (CVID) is a group of 20-30 primary immunodeficiencies (PIDs) which have a common set of symptoms but with different underlying causes. CVID's underlying causes are different, but the result of these are that the body doesn't produce sufficient antibodies in response to exposure to pathogens.
I just got my supplies for the infusion in 30 mins. I thought my doctor ordered 40 mg at a 10% solution but I received it in a 5% solution. So instead of 400 ml of fluid, I will get 800 ml. Now I am wondering if the concentration affects how you respond to the rate of infusion? Is it likely that I will still need to stay under 100ml/hr with a lower concentration or could I likely go up to 200ml/hr? Any thoughts appreciated.
By the way, the AAAAI recommends that the first infusion with a new product should be done in hospital or physician;s infusion suite. Most major reaction occur the first time you get a specific product. You might want to ask your immunologist about it. If you want a formal source to refer to, you can look at the AAAAI IViG tool kit.
When I started on IViG there were no 10% products, just 5%. 10% products are relatively new. I think it was introduced in 1997.
I'm able to infuse very rapidly. I get 80 grams (800ML) of Gamunex in less than 3 hours. My nurse has one patient who gets to a top speed of 500 ML/ Hr, but she won't let me get that fast, even though my orders allow it.
My question is who changed your meds;, the specialty pharmacy of your physician? I certainly would speech to you physician before you infuse.
I'd refer to the AAAAI's IViG tool kit for a reference. It is an official publication of the AAAAI and is considered the bible