Great postive attitude! Will keep you in my thoughts and prayers!

I haven't seen you on here in a long time. Thank you so very much for taking the time to think of others right in the middle of what you are going through. Good luck to you (hugs)

My blessings to you.Thank you for sharing this information.It is the first I've heard of here.In Feb. I was diagnosed with CVID and because I have a great immuno,I had a upper endo.surprise,surprise.I have Carcinoid cancer,neuroendocrine tumors.I did have the burping,trouble swallowing,too but was just told it was reflux.I have pernicious anemia(B12 deficiency) and high Gastrin levels that contributed to it.My father also had stomach CA, almost bled to death,but after surgery he went on to live 2 more decades.I have had screenings, and Thank heavens, no spread at this time.I have GI symptoms( the D)(Carcinoid Syndrome) that I take Prevalite powder for.I am grateful to my Dr. for the screening.I will hold you in my prayers.Again,Thank you for bringing this to lite.Stay in touch.Hopefully all will ask their MD's to be screened.Terri in MT

Just want to express my gratitude for all your thoughts and prayers. I'm also grateful to be here living and apparently tolerating both the chemo and radiation on day three. A little sick and a little pain but the meds help keep that all at bay.

So, as always, life is good, live it well... And thanks for listening...

I am so glad to hear you are tolerating your treatment well. That's great! I will continue to pray for you and send good thoughts your way! :-) Keep up the good work! :-) Your positivity is contagious and you are an inspiration and a shining light. Thank you for teaching me a lesson in humility. The "small stuff" has become even smaller....I am learning not to "sweat it!" :-)

Great news that your treatment is going ok so far! Big hug, and keep up that awesome attitude! :D

Thanks for sharing. My prayers are with you.
I am so very sorry to hear about the stomach cancerYou seem to be so upbeat and positive--what a great attitude. Hoping you will get through this and come out the other side well and strong again.
Hugs

I add my prayers for a full recovery. Thank you for trying to help us, during such a rough time yourself.

Blessings-

Julie

BuddhaMind,

You are a hero. I cannot begin to imagine how difficult this must be for you and your family.
I would guess that hearing your new diagnosis was devastating. You are a brave and wonderful soul for sharing with us. I wish that there were more I could offer you than written words alone. You are an amazing, loving, good person who did not deserve another stellar fight on your hands, but my instincts are that you will carry on in such grace and nail this thing until it is gone.

I am having an endoscopy on Wednesday finally after a few months of your symptoms. I was actually in the hospital for a week last month and they never did an endoscopy, even though I had very similar symptoms. Since then I have continued to struggle, but found a new doctor who immediately ordered the scope. Constantly feeling full, burbing or trying to, suddenly throwing up without warning, black stools off and on, and a wicked sore throat that comes and goes. Fatigue and nauseau that rules my life, and a few other just plain weird things that I doubt have any significance..
Does this sound familiar to you? When I was in the hospital I begged for a scope but was actually told, and I quote, " Why?. If it is an ulcer or something, we would just treat it the same way with these pills, Protonix. Have one later on if you want to go through all that." We, my family and I were stunned. I mean what the hell..?

Tell me how long you had symptoms before you got diagnosed? I assume that once you were vomiting blood things went swiftly... but who knows with some of the doctors I've encountered they might have dragged their feet.
Enough about my struggles.

I can't thank you enough for posting your story. I am hanging on your every word and praying for good things for you. As I said, you ARE a hero.

Fezzy, in my whole being, I hope that your situation is not like mine.

Bless your heart Fezzy! It's hard to say how long I had symptoms, probably not more than a few months. I also got sent home with protonix from my late night trip to the emergency room and was working on getting a gastro consult when I just wasn't any better off on Tuesday morning and headed back to the emergency room. Not sure if you've had a CT scan, but that was the thing that really got their attention with me.

If you want to talk, send me a phone number by message, or I can send you mine, just send a quick note. Holding you in my heart until then...

I'm a newbie here, but you will be in my thoughts and I will say a prayer for you. They're not shoveling dirt on us yet so we're all ahead of the game. Be well.

I have been having left side pain for a few months my doctors don't take it very serious they keep thinking its constipation but the pain keeps getting worse and I have taken the meds they have given me. finally with a change of doctors and two visits later they are ordering a sonogram but I have to wait another week to take the test. I really do hope that it is constipation I don't want any more problems. but its sad that they don't listen you know. also I have noticed that alot of ppl on here have problems with there spleen and if you look up what your spleen does it has to do with your immune system anyone else think that that is a strange coincidence. also budda I send you good thoughts of better days to come. I'm not one for saying how sorry I am for you because I hate it when ppl do that to me. but I will keep you in my thoughts and hope for the best for you.

Fred, I am so glad that the treatment has been tolerable. You are totally my hero and role model, dear one. Were you told how long this first round of treatment will last?

Sending you much love and the blessings of the Medicine Buddha your way.

Had my IVIG yesterday and if it hadn't been for being tethered to the bag for six hours I'd say it was my best day in a week. I think the steroids helped a lot. I understand they aren't great for general use, but I have to wonder why I wouldn't want to use them all the time!

In any case, I'm still getting my head around the cancer stuff. Made the mistake of reading some things on advanced stomach cancer today! Ouch! It just sounds bad. On the plus side, at this point I'm pretty convinced that I am not bleeding internally at all and I attribute that directly to the chemo and radiation. Probably more the radiation, but if it is already doing something to the big tumor, I can be hopeful that the other stuff in my lungs and liver are also getting some ass whooping by the chemo (and those lymph nodes too!).

So, overall I'm good and I appreciate everyone's support. It's amazing the positive power of so many people aiming best wishes, prayers, thoughts and ideas my way. :o)

Ok, enough out of me. I'm grateful for life. Live it well, and thanks for listening.

Fred, darling don't read too much if it's negative. Fill your head with positive stories, and I know there are lots of them. Like Mark's post! It's good policy to keep your mind on what you want. NOT what you don't want. You are on my prayer list. You are in my good thoughts and where I direct healing energy! xoxo