Common Variable Immunodeficiency Support Group
Common variable immunodeficiency (CVID) is a group of 20-30 primary immunodeficiencies (PIDs) which have a common set of symptoms but with different underlying causes. CVID's underlying causes are different, but the result of these are that the body doesn't produce sufficient antibodies in response to exposure to pathogens.
I start my treatment next week, Privigen Sdv/inj 200ml 10% 20GM, My doctor is going to have it administered in his office for the first infusion then I need to choose an infusion center for the remaining infusions. He does not like to start with SubQ because he likes to really boost the antibodies the first few times especially since flu season is not far off.
I am a little nervous but my DH has decided to go with me for the first infusion. I am in Austin so if anyone has experiences they want to share with me good or bad in the area I would appreciate it. I know the center can make a big difference in your experience.
Marilyn
I am a little nervous but my DH has decided to go with me for the first infusion. I am in Austin so if anyone has experiences they want to share with me good or bad in the area I would appreciate it. I know the center can make a big difference in your experience.
Marilyn
since starting i am on antibotics much less so that is good news....
Have you considered having a nurse come to your home once a month. I've done home IViG for the past 26 years without a problem. Unless you are on Medicare it is a viable option.
Can you recommend a nursing organization (national) that will provide or coordinate this service?
The specialty pharmacy who delivers your drugs will coordinate it all, They all have access to nursing.
Personally I found an individual nurse from my infusion center who started moonlighting with me 26 years ago and we have been "together" ever since. (yes my wife of 30 years knows. no need for any puns about sticking and such)
I am a huge fan of looking at the qualifications of nurses. There is an advanced certification, certified infusion nurse (CRNI) If you can find one, all the better. I've never looked but then may have a where to find one on their website.