Jeez Kelli, now I'm going crazy thinking about this I have

something is going wrong with this crazy comment box, everything i type keeps disappearing

Im sorry we probably gave you information overload. I would focus on talking to your doc about increasing your dosage since your levels are so low and you are SO fatigued that your quality of life is greatly impacted.

> I would focus on talking to your doc about increasing your
> dosage since your levels are so low and you are SO
> fatigued that your quality of life is greatly impacted.

^^^ This. Absolutely agreed.

Also -- if your doctor isn't reacting to these levels, in my opinion, they are not up-to-speed with minimal acceptable trough levels for CVID patients. I would, at this point, suggest a referral to a different immunologist for a "second opinion".

Yeah, thanks you guys. In a nutshell thats what I need to do. I had read and reread everything both of you sent me and "THOUGHT" I had everything figured out and had these questions to give you and I typed on here my big elaborate question, and I swear I hit the "add" button and it all disappeared! Urgh, I was SO mad! What I wanted to ask was this: What does this little thing (

> What I wanted to ask was this: What does this little thing ( "


heh... "To be continued!"

< what does this thing mean, my levels are

FYI, the forum software "eats" the angle brackets, because it interprets them as HTML (and subsequently tries to strip-out any HTML from the posts).

Stuff inside angle brackets probably won't paste correctly.

I'm in the twilight zone! Lol, nothing is posting. I'm going to somehow find a doctor around here that knows how to deal with CVIDS. Thks.

Vortek, could you please private message me? I tried to figure out how to do it but couldn't. I am from Canada and have a question for you.

Thanks

Ditto-I know how confusing this can be, but eveyone here seems to have given some pretty good advise and details to follow up on. Have you visited the IDF website? Even some of the generic info on webmd.com provides a really good starting point. Also, Cunningham-Riddle's article is CVID GOLD. Full of info, and we can understand it.

As my immunologist suggested today...I am shopping for a new primary care doctor to 'manage' all of my specialists {I currently have 8 or 9}. Dr B suggested an Internist rather than a Family practice doc because family practice docs are really generalized, and the Internists have more specialty experience. He agreed with my metaphor/analogy: like spreading peanut butter-too thin, you have the family practioner; nice and thick and evely spread, you have the internist.

Vortek-please forgive us American yanks-we tend to get envious of your healthcare system. We know, like ours, it has its faults...but down here in the US, we have so many who are without any healthcare at all, and die needlessly while our lovely politicians gripe over how 'socialist' universal healthcare is. Easy for them to do since their healthcare is FREE. Even our military are short-changed. I can say that from EXTENSIVE experience. Yet, I am grateful for the what the military insurance can provide me. So, please don't think our comments are thoughtless ;)

Also, another great resource can be the website for the brand of IG you get. Also, I highly recommend IG Living magazine-it covers all PIDD's as well as numerous autoimmune diseases, and is wonderfully detailed with info. In the back, they include a wonderful list of other resources-websites for support groups and info. I look forward to my next issues in themail like a model anxiously waits for her next Vogue issue!

Shoshi