Common Variable Immunodeficiency Support Group
Common variable immunodeficiency (CVID) is a group of 20-30 primary immunodeficiencies (PIDs) which have a common set of symptoms but with different underlying causes. CVID's underlying causes are different, but the result of these are that the body doesn't produce sufficient antibodies in response to exposure to pathogens.
Thought I might start a thread that we can just sign in and whatever our day is , share it with others. Life with any chronic illness can have its ups and downs ... not all days good nor all days bad . How is your day ? How was your week ?
I will try and post how was your week every Friday . Please join in .
I received my 3rd treatment Ivig about a week ago on a new brand . I had a few ug days after treatment ( I must remember those are rest days ) with an energy burst following . Went to the gym once I felt better and it was awesome .. however I overdid it and crashed the next day .I must remember to pace myself ... I think that might help . Worth a shot to give that a try I think ..When I get energy I think I can manage much more than what I can actually handle so I think slow and steady may be helpful ? We will see next week . I'll let you know how it worked .. mind you I do Ivig in the hospital not subcutaneously so I get that huge build up , then it levels out , then dies out lol . Guess I will have to look at that more closely and not get myself discouraged and by understanding the process that Ivig takes in my body then I can maybe work a plan that makes me feel even more positive . Cool .
I don't use too many precautions at the gym other than wash my hands a lot ... clean the equipment before and after with wipes that I bring .... I also go at low attendance times of the day. If I hear a lot of coughing sneezing etc I do carry a mask in my gym bag .... it is there if I feel I need it . Lately ( maybe because it is flu season ) I am more aware that protecting myself from germs as best I can is a very good thing and being proactive in my health care.
Overall , once the initial side effects past I have had a good week .
How has your week been ?
Kidney area pain on Sunday & Monday onwards turned out to be peptic ulcer(s), treatment seems to be working as each day the pain is a little better....the same can't be said for my joint pain. I am in Canada - one day was -25 C, the next -2....today we're back down to -16. Too many fluctuations.
I do SubQ Hizentra but when I'm sore & grumpy, shoving a needle in is no fun - but at least I'm not getting pneumonias anymore. Today my sinuses are painful - woke up with a sinus headache - but they are very dry. They tend to hurt when I don't feel good, like my lymph nodes do under my chin (had those all checked out, all ok).
I agree physical activity is extremely helpful - but today will probably just be a treadmill day, followed by a good stretch or some yin yoga. It helps but the first step is the hardest, lol !
Got my flu shot this week - hopefully it helps somewhat !