Thought I might start a thread that we can just sign in and whatever our day is , share it with others. Life with any chronic illness can have its ups and downs ... not all days good nor all days bad . How is your day ? How was your week ?
I will try and post how was your week every Friday . Please join in .
I received my 3rd treatment Ivig about a week ago on a new brand . I had a few ug days after treatment ( I must remember those are rest days ) with an energy burst following . Went to the gym once I felt better and it was awesome .. however I overdid it and crashed the next day .I must remember to pace myself ... I think that might help . Worth a shot to give that a try I think ..When I get energy I think I can manage much more than what I can actually handle so I think slow and steady may be helpful ? We will see next week . I'll let you know how it worked .. mind you I do Ivig in the hospital not subcutaneously so I get that huge build up , then it levels out , then dies out lol . Guess I will have to look at that more closely and not get myself discouraged and by understanding the process that Ivig takes in my body then I can maybe work a plan that makes me feel even more positive . Cool .
I don't use too many precautions at the gym other than wash my hands a lot ... clean the equipment before and after with wipes that I bring .... I also go at low attendance times of the day. If I hear a lot of coughing sneezing etc I do carry a mask in my gym bag .... it is there if I feel I need it . Lately ( maybe because it is flu season ) I am more aware that protecting myself from germs as best I can is a very good thing and being proactive in my health care.
Overall , once the initial side effects past I have had a good week .
How has your week been ?
Anyone have enlarged lymph nodes? Is this normal with cvid? My left armpit node is enlarged. I had an ultrasound in Dec dr said probably beign, I go back next month for follow up ultrasound and will get a biopsy. Also saw my hematologist he felt it said it wasn't that big and they moved which was good and looked at all my lab work said everything looks normal. I know there is an increased risk...
Hello,Just wanted to know if anyone else had this issue. I've only had two infusions and have noticed I've lost about 3-4lbs. My diet hasn't changed much except not drinking alcohol as much and eliminating dairy. Will my weight go back up after a few months once the ivig treatment starts working? Thanks for listening