I do, and have never been into sports. I have had tendonitis in both elbows from things like knitting, stapling things in a store, and manually rolling down the window on my car....oh, and steering my car!

It seems like there was another area of my body that I had tendonitis in too, but I can't remember what. I know I've had problems from sprains and tendon rips too, but those were from falls and things like that.

tamiller.....my daughter started running track in middle school, by 9th grade she was top 5 in the state. in the summer before her 10th grade yr she started getting weird stuff...her legs would cramp (not normal cramping) cramping to the point that when she finished she would have to be carried off the track after reaching the finish line. took her to many docs she ended up having compartment syndrome surgery on both calves. long story short she has continued to have difficulty with running. she did graduate last spring after 5 yrs on a full track (and cycling) scholarship. she continued to have many problems and was never able to reach what she had done before getting sick..but her coach and team mates were so moved by her devotion to something that was not easy for her, her scholarship was never taken away. she now is able to tolerate cycling better. this past spring her cycling team placed 6th in nationals (she was 1 of 3 girls on the team)

she was dx with cvid in her freshman yr of college after a bout of scarlett fever.

now she is in pharm school...she has found she is able to have less go wrong with her muscles cycling instead of running... i personally think the wear and tear is easier on the body cycling than running. she still runs and cycles to keep her stress under control and she thinks it helps with the daily aches and pains.

she is 23

looking back i strongly believe cvid was the root to her difficulties. i think the excess stress on the body caused by extreme sports is worse for cvid people than others. "normal" people have trouble with their body keeping up think how hard it is on bodies that already dont work correctly.....

just my thoughts
hope this helps...

I had a nasty cast of plantar fasciitis that took me through the gammet of treatment options, and was finally healed after wearing a cast for a month. It was at least an 8 month ordeal start to finish. I've also been in physical therapy for a 'twist' (for lack of a better term) in my pelvis ... it may have come about as the result of having given birth to my son (who is almost 7 now). My whole gate was off, and one of my legs even measured shorter than the other as a result. It was very painful for me to exercise (the treadmill was/is my torture device of choice). And lastly, I went through physical therapy this past spring for a shoulder injury that I suffered from throwing the tennis ball to my dog!!! Never had THAT happen before and I've been throwing the tennis ball to her for years!! It just got injured and did not heal. And, quite honestly, I'm not sure if it's better even now, however, it does not hurt as much as it used to. But I have discovered that certain exercises can really irritate it.

All of these injuries were WEIRD in my opinion, and VERY slow to heal. I am convinced it has to have something to do with my CVID status. I will ask the immunologist about it next week when I have my first appointment.

ALSO .... here's something interesting ... way back in 2001, I had something happen to me that landed me in the hospital. It started out with general achiness all over - sort of flu-like. But after a couple of days, it turned into terrible muscle pain. It felt like I had exercised all of my muscles to their maximum capacity and they were just HURTING all over. After about 4 days of this, I took myself to the ER and they discovered that my CPK level (muscle enzyme) was in the 600 range!! Normal is 40-170. Needless to say they admitted me as they were worried about kidney damage, organ failure, etc. Over the course of the following week my CPK level came down and got back to normal ... but I NEVER got an answer from my doctor as to what that was all about!! Most likely a virus, but who knows? Has anyone outt here ever had a similiar experience?

Thanks Tamiller for posting your comments and questions. You are definitely NOT alone! ;-)

Thanks Princess, pconville, and Mimidge. What you all say does indeed help me! I never really thought about this before, but I've had the tendonitis for close to a year now, but it just won't heal. I've also had plantar faciitis for close to a year, that just won't heal. Then there is the tennis elbow, which I've had on and off for 10 years!

I really haven't been able to run outside for close to a year. I can usually run on the treadmill ok, if I stretch well before and after. Pconville, I recently got a 2nd hand bike, paid $100 to have it tuned up, but have yet to ride it because of my tendonitis. As soon as that is healed, I plan to start riding it, however, it has been 20+ years since I've ridden a bike (other than the stationary ones in the gym)!

I'm definately going to talk to my doctor when I see him in a couple of weeks about all this. I'm also going to ask him about Sub-Q as well.

Again, I can't thank you all enough! I've had this stupid disease for 5 years now, without knowing much about it. Now, I feel like I have a reason for why all these things are happening to my body!

Tammy