well glider that is one problem I've never had. I wish I could send you some extra pounds. good luck with your research. I hope you get it figured out and can gain the weight you need.

hugs and much love
deb

I'm sorry you are having to start the medication and that you are still losing weight. I have no advice to offer as that is one problem I do not have! Lol. Steroids work as a great appetite stimulant for me unfortunately. I'd be glad to donate you 100 extra pounds! :) I'm praying that they make the right choice for you and that you are able to gain weight.
Love, big hugs and fattening chocolate,
Ashlee

I was prescribed Marinol but havent startef it yet was hoping for more feed back mydelf. Please keep us posted. Im hesitant about starting till i hear peoples review. Good luck.... thanks ill be keeping eye out on you posts :-)

Oh Glider I am sorry. My doc had me on TPN 5500 calories a day & I didn't need extra calories to gain weight..Like Ashlee the steroids really give me an appetite...Hope they figure out something for you soon..

Have you tried cannabis for appetite stimulant? At the infusion center I go a couple people were really losing weight, and their doctors recommended it for the side effects of chemo. Another woman was chiming in how she used it too for some other disease..Can't remember the disease, but she didn't have any appetite and lots of pain and her dr recommended it. Just a thought..

Hope you start to feel better soon..
HUGS
Cheryl

From what I found out one is a steroid derived from a naturally occurring hormone, and the other is a derivative of marijuana. Not too comfortable with a product of marijuana though from what I'm hearing that one has the least side effects and often helps people with nausea as well. On the other hand I react to oral steroids and cannot take them, and we don't know if the second option will cause similar symptoms. I'm just putting it off as long as possible! I don't like admitting that I can't control an issue on my own:) So on another note, if anyone has experience with insulin issues, and glucose monitoring I could use some piece of mind there!! I guess there has been concern that the damage to my pancreas can be causing issues with my insulin production as well as the lack of enzymes we already know I have. Apparently this can happen in my condition, and typically becomes an issues in your 20s and 30s. Anyways I just have to do glucose monitoring right now, and am not excited. I don't like poking myself, or making myself bleed! I truly don't understand all the logistics in insulin related problems either, but would love to hear any experience y'all may have. Hope everyone is doing well:)

Glider, I have to monitor myself ever since the TPN.. On TPN I actually needed insulin for three days, but then my body corrected the problem, because of that I still have to monitor it, but only once a month now..before I had to do it 6 times a day..

It really is more scary watching someone do it than actually doing it..

What type of enzymes are you on? I take Zenpep 25000 X5 with each meal..I was only taking 2 and my dr upped it to 5 in Dec, it really made a difference..

Good things to eat, for those with pancreas problems, baked sweet potato, you can add cinnamon to it, puree it and add fat free half & half, tastes like a pudding... still adds the calories you need with no fat..

Feel free to ask questions I have been doing this for awhile now. The pancreas can cause lots of problems..Don't know if you get the pain with it or not..Some people are in constant pain & others just get it occasionally. Others not at all..Go figure..

Wish you all the best & hope you can start gaining some weight soon..
Hugs
Cheryl

I am on creon 24000 and take 5 with meals and 3 with snacks. I can't break down proteins, carbs, or fats. They are concerned about insulin now. I've had several bouts of pancreatitis. I have abdominal pain among other lovely issues if my enzyme dose is too low. I've been dealing with enzymes for years. I think the issues for me got really bad when I was 10. So I'm used to managing the pancreatic insufficiency and having to keep on weight. My weight has been a lot harder to maintain, and I was told the pancreas can continue to incur damage over time, and this is the age many people with my condition start having more issues including insulin problems. So joy! I will definitely message you if I think of some questions. I'm waiting for the supplies for glucose monitoring to come in so haven't started any of this stuff quite yet:) Thank you for replying!

Hi Glider,
I hope you find the balance you need for your Pancreas. It sounds very complicated and challenging. And very uncomfortable beyond the weight loss.

Reading this thread was quite educational for me as I don't have experience with this but it gave me some ideas for sharing with a friend. Take care of your self. Sending you a hug - Zen

glider- I have been insulin monitoring for a decade ,now 4x /day...I too do not like stabbing my fingertips (it hurts!) but i also use my fingers alot ..so I stick in the pad of my hand (at the base of the thumb-I hardly notice and the effects aren't constantly being re bumped as with the fingertip...I can also donate several pounds lol...