I found out I had CVID about a year and a half ago; I started out on Octagam and they have been fine tuning my 'cocktail' ever since.
I ended up premedicated with Aleve, Zantac, Zyrtec three days before and three days after, as well as steroids immediately preceding and following my Miracle Potion; however, my side effects of fatique, aches and other flu-like symptoms were so extreme and lasted so long they decided to change products.
For the past two Infusions, I've received Gammaguard with the same pre-meds, and my reactions haven't been as severe, but I'm still down for at least two days, totally unable to function. I get my Infusions on Wednesdays and the ailments don't hit until the weekend, and then I crunch.
Anyone else have an experience of such delayed reactions, and what are your experiences with Gammaguard?
I'm tired of feeling so crappy ☹️
Hi, I am very happy to have people to talk to and help with support as i live in KW Ontario and we have no support groups here at all. In the one and a half years I started and found out I have Primary Immune Deficiency (at age 53), low igg,iga,igm, I have never met anyone with this. Since I have started Hizentra home infusions 3 months ago every week I infuse 40 in three sites. I have a lot of...
i was dignosed with cvid in february last year i’m 17, i feel like no body understands what i go through i’m always sick, i get an infusion every 3 weeks im just glad other people understands what it’s like