Hi, I know that there are several on the board who work, but I'm not one of them. I'm technically employed because my employer will not fire me, but they also won't allow me to return to work. I don't draw SSD because I've not worked long enough as I'm 26 and became more severely ill when I was 24. My immunologist thinks that I may be able to work a part time desk job, but I don't know. I think he is hesitant to say I cannot work due to my age. Some days are good and I think I could work, but some days are very difficult. I help stretch my husband's income by couponing and we live with my parents. We don't have any children yet and don't know if we will have any. We have a beta fish and are considering a low maintenance indoor dog. Doing much housework is also difficult due to my breathing problems. I'm thankful to have a lot of help.

I am out of work currently, looking for something part-time. I have anxiety issues that are affecting my return to full-time work currently. Trying to deal with PTSD and CVID and a move to a new area has taken its toll on me. I have been unable to secure a part-time job because I am limited by physical limitations. I have not secured unemployment because I have been unable to reach a "person" in the state I came from to get it started. Everything is done online I guess and it keeps kicking me out of the system. It has been very frustrating. I guess right now I'm trying to figure out just what I can and can't do...I would prefer to work at least part time though.

I work full time at a nonprofit and travel lots for my job. I have been a bit of a workaholic and this last year I am slowing down to a regular 40 hours/week.

15 years ago I had the most wonderful job as a labor & delivery coach. Was trained by the hospital & doctors, and training to teach the labor & delivery classes & had just finished my training for lactation specialist at the hospital when I was dx with hemochromatosis, stage II cirrhosis, cardiomyopathy, kidney failure, grand mal seizures, COPD, two herniated discs and colon cancer.. All within the same month..Needles to say I could no longer work, while some things have gotten better, other things have gotten worse.

My doctors all say without my positive outlook on life and a strong will to live I wouldn't be here. But I say it's my faith that carries me through.
That and surrounding myself with positive people.

So no I no longer work outside the home..But there are days when just walking to the bathroom is a job, or just breathing is a job, does that count?

Good discussion..

I work full time...well full time and a part time job and I'm a single mama, 2 cats, a dog, own a home haha I live as normally as I possibly can manage :)

I have not worked since 2009 and then I was working PRN (as needed and I was on the on-call rotation) I was fortunate to make good enough money that I was able to support myself.

I was pulled off the floor and my director essentially .told my I wasn't fit to work. I knew i had a lot of fatigue issues and it killed me to work a full 8 hour day and be laid out for 3. My fatigue and cognitive function was like I had a manual instead of automatic. The fatigue start a decade before and became progressively worse to the point of losing my career.

I got disability last year. I think I accepted several years ago I wouldn't ;t be able to work full time.

Now Im not sure I will be able to work at all. I just started ivig, but without working in my profession I would never make the money I would need to support myself. My disability check isn't enough to live on. I am single and it's just me. This has me really scared, as I do not have help with anything. All shopping, chores, paperwork,ect...making money falls on me.

It is a scary time and have always been a hard worker. Now sitting on the couch is about it. Getting to doctors appts is a major ordeal for me.

I work fulltime as a hydrologist for the federal government. It's mainly office work with occasional work in the field.

My hands are full but I work part time out side the home. I have a eight year old with some sensory issues. A 18 Year oldvwith horriable endo. A husband two cats and a dog :) I work once a week cleaning a church and some ebay on the side.. I'm horriable worried about my future. I wish I could find simething I could do frim home. I also don't have enough credits for diability but there is no.way I could keep a full time job. I work one evening and sleep for tqo.days uggg wish I had less fatique.

I am a full time student majoring in Respiratory Care Technology. I work at the hospital twice a week. I will graduate in 6 months. I am also a consultant for a mental health organization where I help to train facilities that work with youth in new initiatives and program structure. This requires conferences, meetings, and travel. I had been working prior as a surgery technician for a vet clinic as well but left last year so I would be healthy enough to finish school. I have a pet, but otherwise live alone:)

I work fulltime as a nurse in an orthopaedic clinic. If you had asked me two years ago I would have told you I would not be working now. I started Hizentra about 1 year ago. I have only missed 5 days this year due to illness! Yeah my vacation days went to real vacations and doctors appt. I look forward to this year being even better! I whole year with only 3 rounds of antibilotics!! I am so thankful for a great PCP for finding the low Ig's. I love my job and could not imagine not being a nurse!

Just last week I took on a sewing student for about 10 hours a week. I barter with her parents for house cleaning and heavy chores.
I have a 16yr old daughter that does online school at home and a 12yr old son that I wake every morn and feed and drive to school.
I once had a full garden and chickens that I let go of this month. Many years of couponing, grinding my own flour and meat.
Both my kids are adopted special needs

I work part time as a jewelry designer and own my own business. Sometimes it can be really profitable and other times not so much. This last year things went really downhill for me and I have not been able to work as much, but luckily I have a lot of loyal clients who need custom orders, etc.

I used to work a lot and make decent money and take trips and travel. But I have not been able to do that, as of late.

Just started IGG so we shall see where things head.