Hi CoogeeMum,

Many of us that are going through or having completed FOXFLO chemo for colon cancer are experiencing neuropathy. Mine acually got worse after I completed chemo (big surprise to me!). Fortunately, there is a lot of dicussion on this topic in ther forum. See here: http://dailystrength.org/search?q=Neuropathy+chemo&community=Colon+Cancer&t=discussion

Nurse Patty, on this forum, is heading a study on post chemo neuropathy you may want to look into. http://dailystrength.org/c/Colon_Cancer/forum/3904909-chemoinduced-neuropathy

If you hear of any good treatments for neorophay reversal - post the results here!

Mike

Hi CoogeeMum,

Many of us that are going through or having completed FOXFLO chemo for colon cancer are experiencing neuropathy. Mine acually got worse after I completed chemo (big surprise to me!). Fortunately, there is a lot of dicussion on this topic in ther forum. See here: http://dailystrength.org/search?q=Neuropathy+chemo&community=Colon+Cancer&t=discussion

Nurse Patty, on this forum, is heading a study on post chemo neuropathy you may want to look into. http://dailystrength.org/c/Colon_Cancer/forum/3904909-chemoinduced-neuropathy

If you hear of any good treatments for neorophay reversal - post the results here!

Mike

Hi...I finished chemo in June. My neuropathy seemed to get worse after I finished to. Especially my toes. In the last week or so I have seen some improvement. It seems to be at its worst when I'm overly tired. Not sure of the correlation between the two but who knows.

I just signed up with Nurse Patty on the neuropathy treatment trial she is running. You basically take these nutitional supplements twice a day.

I'll let you know how it goes.

Thanks,
Mike

Received my suppliments today. It turns out you can purchase them online here: http://www.neuropathysolutions.com/. While you are in the study they are free. I let you know in a few weeks if I have any relief from the numbness.
Mike

Thanks Mike,
My neuropathy is getting worse (now 4 weeks post chemo). My fingers and toes are numb, and I'm starting to drop things. it is worse after I've been for a long walk, and my heels are hurting too, not sure if this is related. I'm in a neuropathy research project at hospital, but they havn't mentioned any supps. I'll ask them next appt.
CM xxx

My neuropathy is just starting. I'm 6 cycles into the Foxflo. Left hand and left foot are on and off numb. Lite massage seems to help, but I've blod clots issues so anything other than lite is an issue. Has anyone tried professional massage to work the metal out of the muscle and ligaments per chance?

Not yet Carrie, but I intend to. I've read massaging can help, so I'm going to book in for one. Hope the rest of your treatment goes well.
CM xxx

Hello Carrie just checking to see how you are doing w/blood clot issue? I had a severe face, neck, back an scalp outbreak from the Vectibex, them mouth an tongue ulcers from the xeloda... it has been ugly and painful, but dr said that is a good sign its fighting the cancer... Hope so. Hugs SB

when people say neuropathy, are they referring to numbness? I am 2 months into FOLFOX and have no numbness yet, but definitely experience pain and tingling brought on by cold. And I live in Winnipeg so this is a problem!

My neuropathy during Chemo (during warm months) was in my throat. I quickly learned to stop drinking anything cold. Chemo ended early September and the throat problem went away. Somewhere along the line I started getting numbness in fingers and toes. That numbness is now spreading to the heel of my hand and down the center of my feet to the heel of my feet. An Oncology nurse told me my unsteadiness of balance and occassional falling is probably due to the neuropathy. It certainly has effected my typing skills and ability to pick things up, dropping things and doing fine things that require feeling like getting a driver's license out of a tight wallet pocket. Touching anything below say 60* or very hot hurts. The Oncologistd told me the Neuropathy may be a permanent side effect of the Chemo. (I'm still waiting for the fun part to come!)

Hi
I finished chemo for colon cancer in March 2008. The NEURO became much worse. So bad in fact my hands and feet were numb. I dropped everything and could barely type. I tried everything. The supplements you talk about on this discussion, and the REBUILDER electronic stimulator. It is now December. In 3 months I will be a year past Chemo. My hands are better, but ends of fingers tingle are hurt when exposed to hot or cold. Especially water related. As for my feet - not a good story. I can only walk without pain for about 1 hour. They are always numb, I cannot feel the bottom of my feet and they feel like I'm wearing ace bandages on them. I have basically given up on miracle cures. I am trying to eat blueberies every day (or brocolli or other antioxidant type food). These are damaged nerve endings. Sometimes nerves DO NOT regenerate and we must learn to live with it. That is where I am now. All of those cures really did not work for my feet. But - tell yourself - Cancer or Numb Tingling Feet? I'll take the bad feet over the cancer. Let us know everyone elses experience.

Thanks for everyones reply, it helps to know your not alone. I've also been having foot pain after I've been sitting for a while, and when I wake up in the morning. I find it difficult to walk, but once I'm up and about, it improves and I'm okay (apart from the sandpaper feeling on the soles of my feet). Does anyone else have difficulty walking?

Corbon, neuropathy is numbness and tingling. But the FLOFOX makes everyone hypersensitive to cold. On new years eve, we got into our car - it was abut 30 degrees. I had the hyper reaction. I felt like my throat was closing and I almost passed out. So be careful. Wear gloves, hats and heavy coats - even when in the frozen food aisle at the store.