I was treated with an oral chemocalled xeloda ...You may see if you could possibly switch...Some side effects but nothing like you have experienced

I take Xeloda day 1 through 14, and then 7 days off. Day 1 I also get an IV infusion of Oxaliplatin. It's definitely the Oxaliplation that is causing the severe cold reaction.

Wow....I had stage 3. Took 8/pills per day 4 am and 4 pm with a week off for 6 months....neurapathy was and still is an issue...but nothing else, going for my 5 yr. CT scan on the 23rd....wish you well.

I'm new to this board, just signed in for the first time today.
Diagnosed with stage 3 colon cancer., had emergency surgery which ended with a ostomy (reversible post chemo).

I've also just finished 2 rounds of chemo and both rounds have flattened me far more than I expected. I am also experiencing the issues in my throat and basically drink room temperature water and herbal tea to get fluid into me. But staying hydrated hasn't been easy. My nurse thought I was dehydrated in the first round and that was part of what made me feel worse - I'm not sure if that was the case.

I am also really struggling with feeling unwell. Malaise, fatigue, nausea, headaches. The first round this subsided about one week in, the second round it has lasted longer. It really scares me what will happen in future rounds if I feel this bad already in only 2 rounds.

Anyone have suggestions about how they have coped? What you tried to help manage side effects? I'm also worried what this will do to me emotionally if I continue to feel so unwell.

Thanks for any responses and sharing

Remember your adding some powerful drugs to your system. It does take time for your body to adjust. Unfortunately our bodies are all unique. for.me to explain my journey, would be just that....MY journey
I could not see myself with a port, and to sit with intravenous in me for an hour or so was not my cup of tea...I chose Xeloda an oral chemo. See my story above...This past week, ,I.met with.my Oncologist, I have been told I'm cancer free I'm in remission. It has been nearly a 6 year journey. I must say I have had no restrictions I played golf, swam, ridden my bike. Your body will adjust. And you will be fine..I have a lot of faith in God, I called on Him often
..Ron

Jellybean71, hun I feel your pain. I'm sitting here waiting for round 4 to start.
Talk to your Dr. Tell him/her all your side effects, thoughts and feelings. I have had the exact same feelings and side effects that you do. It's a mental battle as much as a physical battle. I swear I'm quitting treatment every time. ;) Surround yourself with a great support system. Without them, and God, I wouldn't be able to manage. Hang in there. You are not alone. (((hugs))) This too shall pass. If you ever need to talk, reply here and I'll be here for you. :)

Try things at room temperature that's what we had to do until my partner's side effects became less severe. warm milk room temp fruit drinks room temp flavored waters

I totally understand. Just completed 6 months of that. Yes, everything has to be room temp or warmer. It's not pleasant to drink room temp juice, soda and sweet tea, but there's not much you can do to get around it. Hot chocolate?

Water is most important. I got dehydrated a couple times and ended up back in the hospital - took them 4 days to get my magnesium and electrolytes evened out. Water just wasn't palatable. I ended up having to force myself to keep drinking fluids. Brothy soups also added some fluids - chicken, ramen, beef barely ...sometimes just broth with a little rice in it.

It didnt help that nothing tasted right either. I'd crave something particular, but when I went to eat it or drink it ...just didn't taste right. So I rarely felt like food and drinks hit the spot.

Hang in there. Sorry I didnt have any magic answers.