Cleft Lip / Palate Support Group
Cleft is a congenital deformity caused by a failure in facial development during gestation. It can be treated with surgery shortly after birth with highly successful results. Cleft occurs in somewhere between one in 600 and one in 800 births. Cleft occurs in several severities and is divided in two major categories: cleft lip and cleft palate.
JonSnyder
Does anyone else feel like you just can't express how you feel as a cleft person to others, and frustrated because of this? I mean, people who are members of racial minorities can identify with this as in public if they wish to, but I have the impression that if I were to ever chime in about my feelings as a minority, people would just blow it off, maybe not even accept that having a facial difference qualifies you as a minority. "You don't face discrimination," they might say. While some with facial differences may indeed face discrimination, this isn't something I've faced myself. I'm not sure how you would describe mockery from classmates, coworkers or strangers -- maybe it's prejudice, scorn or in some cases just plain hate. But those things are hard to quantify, and again I think it'd too easy for folks to just say "that's just people for you. Some people are just born prettier than others. Find some way to compensate or something. Sink or swim." Etc. It's too easy to make it sound like you were just looking for pity.
Yet a facial difference is something quantifiable. I think, too, there's something distinct that we learn from it. You learn that just because something might look damaged on the outside, doesn't mean that there isn't a whole center of the universe within. That's what it means to be alive; you're a center of the universe. (I read that browsing the first few pages in a library of the Gulag Archipelago by Aleksandr Solzhenitsyn. just so you know it's not mine.)
Almost everyday at work I have to listen to people (well, mainly one person, but he gets an audience easily enough) making jokes about others' looks. He says some woman is a "nightmare in the face" and people laugh next to me; what am I to say? If I was clever enough, quick and witty enough, if I had some resource of ideas and phrases other people had come up with to draw upon, I would say something in defense of the human spirit, how it's demeaned by focusing on the physical.
It's difficult to go against the grain of a whole culture. Earlier tonight I read an article on cracked.com about different ways our memory can be fooled, and the first one was the power of repetition. Like how Al Gore never actually claimed to have invented the Internet, but the misinterpretation of a single remark and its repetition as an urban legend became one of the more well-known components of his public image. We live in a modern world where a mantra is constantly going on, "pretty, pretty pretty." Nobody really thinks about it. Nobody questions whether our worth is determinable solely on the basis of some outer biological characteristics, our genetic ability to pass them on. We are relegated to the status of cogs in a Darwinian machine by this! Of all the truly astonishing things our brains can do, the most important thing any of us can do ... is breed??
A virus can breed. As humans we can adapt to many different functions, including promoting sanity in a crazy world. Just wish I could say it in twelve different funny ways of ten words or less.
Yet a facial difference is something quantifiable. I think, too, there's something distinct that we learn from it. You learn that just because something might look damaged on the outside, doesn't mean that there isn't a whole center of the universe within. That's what it means to be alive; you're a center of the universe. (I read that browsing the first few pages in a library of the Gulag Archipelago by Aleksandr Solzhenitsyn. just so you know it's not mine.)
Almost everyday at work I have to listen to people (well, mainly one person, but he gets an audience easily enough) making jokes about others' looks. He says some woman is a "nightmare in the face" and people laugh next to me; what am I to say? If I was clever enough, quick and witty enough, if I had some resource of ideas and phrases other people had come up with to draw upon, I would say something in defense of the human spirit, how it's demeaned by focusing on the physical.
It's difficult to go against the grain of a whole culture. Earlier tonight I read an article on cracked.com about different ways our memory can be fooled, and the first one was the power of repetition. Like how Al Gore never actually claimed to have invented the Internet, but the misinterpretation of a single remark and its repetition as an urban legend became one of the more well-known components of his public image. We live in a modern world where a mantra is constantly going on, "pretty, pretty pretty." Nobody really thinks about it. Nobody questions whether our worth is determinable solely on the basis of some outer biological characteristics, our genetic ability to pass them on. We are relegated to the status of cogs in a Darwinian machine by this! Of all the truly astonishing things our brains can do, the most important thing any of us can do ... is breed??
A virus can breed. As humans we can adapt to many different functions, including promoting sanity in a crazy world. Just wish I could say it in twelve different funny ways of ten words or less.
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Yes, the way we were born is "just the way the cookie crumbles" but it can be challenging when some people treat us differently as a result. To me, the unpredictability of it is sort of tough. I mean one person may truly not notice beyond a thought, and another may treat you like you had some special upbringing.
The myriad advertising campaigns in this country also do nothing to promote individual acceptance and self worth, so I do agree with your point there as well.
These days things are very different. I have lived my youth and as I grew older, the teasing and stares stopped. Our "looks" oriented society has boomers taking tucks, here, there and everywhere just to get jobs. This being the case, I think there must certainly be some discrimination against people with clefts, depending on where they live and work and their temperaments. Some people just have the ability to lead and charm and overcome, whatever is in front of them. That's who I am now but it's not who I was when I was younger.
I think there will be some who face discrimination and I think it's much harder for you younger folks who haven't lived their youth years yet. There is an insane obsession about looks and I think people don't stop staring and judging when they become older nowadays!
This is all the more reason for us to look deeper into the center of our own universe and see things as they REALLY are and not as the "looks" based society sees us or tries to define us. We must define ourselves and remember that our clefts are only a very small part of our entire being. I have not seen one single person on this site who is anything less than stellar! We need to own and define our identity and have confidence. Mary Poppins said, "I have confidence, in confidence, alone, besides which you see, I have confidence in me!"
I really believe that our own attitudes about our appearance can affect others in such a way that they may not discriminate, either personally or professionally. A little like the Emperor's New Clothes, whose tailors convinced him he was dressed in royal robes. He believed it, even though he was stark naked!
Let us all believe in ourselves and hold our heads high. We can convince others that we define ourselves and in the process we can convince ourselves.
I will leave you with the most amazing example I know of, my sister. She was born with cleft lip only and endured teasing and all that goes with an unrepaired cleft. When I emancipated myself at age 18 and had surgery my parents finally consented for her to have her lip repaired. This brave girl was popular in high school, a student body officer, cheer leader and the list goes on. All before her repair! Talk about attitude... she had to have it and I am so very proud of her even though that attitude gets in the way sometimes. Just ask her kids!
Not everyone has my sister's sort of temperament and although she is younger, I learned from her and I will always look up to her for that. I'll have to ask her about some of her come backs. Of course she had a sister who was ready to take on anyone who teased her, in grade school. Just look at my avatar. So I guess we helped each other to believe in ourselves. End of soliloquy!
At age 23, I was able to afford braces for myself, and had a pretty normal looking smile from then forward, however my self esteem has remained low and I have been and stayed in abusive relationships due to feeling "less than worthy".
Finally, at age 57, I have recognized the pattern and decided to make positive changes in my life. I try to pay kindness forward, be considerate of others and mostly, accept others for who and how they are. I refuse to let another person put me down.
I find this group's posting very inspirational! Thanks so much for sharing!!!
Hugs
@ Landon: advertising actually wasn't what I had in mind, although I think you make a great point by bringing it up. The extreme repetition of those messages surely has a subliminal affect on all of us. I was thinking of just the patterns of thought that pass between people. Sort of like the idea of the "meme", a thought structure that seeks to replicate itself like a gene. Or a virus.
I've seen a couple commercials lately that actually struck me as truly artistic. I wonder if this is a new trend that could emerge. Similarly I wonder if we can't do better than the memes that typically float around about cleft lips and palates, facial differences and disfigurements. None of them really cut to the chase. I think there is potential to craft something better that will take hold in the collective consciousness.
I completed my volunteer orientation at the Children's Hospital and should be able to volunteer with their craniofacial dept clinic possibly as soon as tuesday, and every other tuesday afterward. It's turning out to be a bit more formal and regulatd than I expected, although the navy should've prepared me well for that by now. I can't talk about any details concerning specific patients outside of the hospital or befriend any of them on social media, so no inviting them to Daily Strength. But I'll still somewhat psyched, regardless. Don't know how it will be, as I've never been around more than one person with a cleft at a time before, and that very rarely.I'll let you know how it goes...
Gosh Bumblebee I am happy that my sincere efforts have helped!