Cirrhosis Support Group
Cirrhosis is a consequence of chronic liver disease, most commonly caused by alcoholism and hepatitis C. Ascites is the most common complication of cirrhosis and is associated with a poor quality of life, increased risk of infections, and a poor long term outcome. Liver damage from cirrhosis cannot be reversed, but treatment can stop or delay further progression and...
I Apr., 2010, I was placed on the transplant list in Houston and started out pretty high on the list because o the HCC. While I waited, 2 cheoembolizations (TACE) were done, where they injected chemo directly into the tumor. Both times, the tumor was shrunk significantly. Since the chemo was enclosed in my tumor, the only side effects I felt was extra tiredness for about a month while the chemo was killing cancer cells. I was also put on pills called Nexavar, which is a traget treatment for liver cancer, but I had had side effects from that, so I couldn't stay on it. However, many people don't have sever side effects, and Nexavar helps to stop down and sometimes stop the growth of the cancer. Both of the treatments I mentioned do not heal the HCC, only slow down the growth or maybe even stop it from growing and spreading.
I was on the transplant list only 3 months. Now, 2 years later, the Hep C, which doesn't go away with transplant is attacking my new liver. The cancer has not returned. People who don't have Hep C usually do much better after transplant.
If they can't remove part of your liver because of the location, or if the HCC has spred to the lungs or bone, the chemo I mentioned, as far as I know, are the only options. Stay in close touch with your docs and listen to them.
I'll be praying for you, and I hope you will keep in touch. We all care. Marilyn
I have an MRI every six months along with a new Alpha Fetoprotein test to watch for things. So far it's been 5 1/2 years with nothing, but cirrhosis does put you at a higher risk.
They watch for tumors, so far none. But if they do start appearing, I believe 5cm is the cutoff point where they start considering a transplant.
Marilyn is much more experienced in this area, just thought I'd add my $.02 worth.