Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
If I lived in a world with less pain I could, Rock my grand babies when they needed,Be employed & contribute financially,Participate in more lovemaking,Grow gardens again,Experience less depression,& more self worth,Live in a cleaner home,Not have dangerous needles put in my spine,Enjoy more family & friends events,Dance again,Climb mountains & swim in rivers again,Cook & Bake,Not have to watch my children experience the hereditary illness which causes myself & them severe life altering pain,&
"The Chilling Effect."
"If I Lived in a World with Less Pain, I Could..." Campaign
Location: Facebook
Time: 12:00AM Thursday, September 1st
I certainly could make this longer but it was for a post on Face Book so I tried to cover as much as I could in a small space. Kind of of like my days with pain... what and how can I do what is needed in my life with the least amount of physical activity so it gets done, but I don't pay for it in out-of-control pain. (Which has not been possible lately. The pain is getting worse)
They are trying to say my conditions have improved since they last awarded me my disability, (awarded!!?? Sounds like you're winning something doesn't it?)
I now have to do more than before to get to all the doctors appointments before 40 days is up, needed to see, of which the list is forever long) Heart doc, stomach doc, heart surgeon, pain / spine doc, trauma therapist, then the list of legal services and disability law office to get representation in line in case they continue with this untruth and I can barely get up to sit at the computer and try not to feel as if I am completely isolated from the world, my friends, my family, my freekin' life.
I don't want to cry in desperation anymore. I don't want to be treated as if I am a liar and some kind of criminal because I can't work for a living anymore. I don't want to have to push my body so far to do all these things so it is in insane pain and the meds don't work.
I'm sorry this post is so long and whiny. I am not usually giving in to this down-beat emotional energy part of the pain experience.
However, I can't ignore the facts all the time. I try to just look at what good I can find in this experience and pain is a tough place to look for good. But I just ignore, to the best of my ability that most of my days are wasted on pain. That my home is so dirty because I can't keep it clean like I used to. That my garden is being overrun by weeds. That I have to ask other people to do my part of the work of life or let be undone. That I have no ability to give much in an intimate relationship anymore, that I cannot be the grandma I want so badly to be, full of energy and involved in their lives all the time
I hope there aren't too many of us going through this part of the experience right now. I hope most of us have our needs met and are not being threatened about taking it all away.
I hope most of are able to find the hidden jewels of God's wisdom in all of what we are experiencing.
I sure don't like feeling this crippled. Disabled yes, but I do not want to feel as if I am crippled to the point of desperation and no life enjoyment at all.
Sorry for all the venting.
Go check out this month's American Pain Foundations If I lived in a world with less pain I would........ info. Get involved if you can. Even if it is only to finish the sentence and share it with friends.
In Love Light Truth & Service,
TerrieAnn
ralop
"The Chilling Effect."
"If I Lived in a World with Less Pain, I Could..." Campaign
Location: Facebook
Time: 12:00AM Thursday, September 1st
I certainly could make this longer but it was for a post on Face Book so I tried to cover as much as I could in a small space. Kind of of like my days with pain... what and how can I do what is needed in my life with the least amount of physical activity so it gets done, but I don't pay for it in out-of-control pain. (Which has not been possible lately. The pain is getting worse)
They are trying to say my conditions have improved since they last awarded me my disability, (awarded!!?? Sounds like you're winning something doesn't it?)
I now have to do more than before to get to all the doctors appointments before 40 days is up, needed to see, of which the list is forever long) Heart doc, stomach doc, heart surgeon, pain / spine doc, trauma therapist, then the list of legal services and disability law office to get representation in line in case they continue with this untruth and I can barely get up to sit at the computer and try not to feel as if I am completely isolated from the world, my friends, my family, my freekin' life.
I don't want to cry in desperation anymore. I don't want to be treated as if I am a liar and some kind of criminal because I can't work for a living anymore. I don't want to have to push my body so far to do all these things so it is in insane pain and the meds don't work.
I'm sorry this post is so long and whiny. I am not usually giving in to this down-beat emotional energy part of the pain experience.
However, I can't ignore the facts all the time. I try to just look at what good I can find in this experience and pain is a tough place to look for good. But I just ignore, to the best of my ability that most of my days are wasted on pain. That my home is so dirty because I can't keep it clean like I used to. That my garden is being overrun by weeds. That I have to ask other people to do my part of the work of life or let be undone. That I have no ability to give much in an intimate relationship anymore, that I cannot be the grandma I want so badly to be, full of energy and involved in their lives all the time
I hope there aren't too many of us going through this part of the experience right now. I hope most of us have our needs met and are not being threatened about taking it all away.
I hope most of are able to find the hidden jewels of God's wisdom in all of what we are experiencing.
I sure don't like feeling this crippled. Disabled yes, but I do not want to feel as if I am crippled to the point of desperation and no life enjoyment at all.
Sorry for all the venting.
Go check out this month's American Pain Foundations If I lived in a world with less pain I would........ info. Get involved if you can. Even if it is only to finish the sentence and share it with friends.
In Love Light Truth & Service,
TerrieAnn
ralop
-
My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
I will make it through, I always do, but I sure am feeling the wear on my "stubborn" nick name and my ability to not fall into full victim.
I wish this disability process had a better foundation to make it easier for the people who need the disability, to get it, keep it, and not be pushed and pulled and thrown around by a messed up system, till we just can't see the light of day anymore. Disability is there for people like me, but they make the process almost impossible for anyone who hasn't the communication experience, and then wear you down with the, "You don't need it" crap.
I definitely must keep close spiritually or this one is going mess me up. I am so tired, and the pain is getting so bad these last 2 years again. It's getting to the point like it was one of the first years where I spent the whole year in bed. A whole year of my life in a bed is insane. I am only 51 yrs old and that year was back when I was in my early 40's.
It's just not right what this pain thing does to you. Can't take quite enough meds to make it go away or you won't be conscious anyway. There is no one thing, nor combination of things, I can do, to get more than an hour or so of relief where it's not so bad that you aren't thinking about it being there and needing to stop what ever you are attempting to do.
Recently, just waking up is too painful to want to deal with. I remember now what the last bouts/flare-ups were like. I try to forget and move on, keep positive and look for all the little things that filled my heart with joy in the day. Stay in the moment and survive, seems to be my way.
Well, I have to go now and listen to this disability guy with tons of info to help with the process, and attempt to fill out papers and call docs etc. Not to mention a load of laundry which is a huge deal these days.
Love to all of you. Prayers with Tipper as always. I will post this guys info. I don't where I came across it but it is good stuff.
In Love Light Truth, & Service,
'Stubborn' TerrieAnn
ralop