Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
One of the million things I've tried to help me manage and cope with my pain better is to, like many of you, work with different therapists/psychologists/psychiatrists, and it's not like it's ever fun to talk about how much I'm hurting and what that does to me but it definitely can be interesting (good and bad) to reflect back.
Long story short, i was thinking back to try to describe what kinds of feelings and emotions went along with a few of my most vivid memories of when I was coming to the realization that my pain really wasn't going away. Meaning the time, or time period, when I understood my life had made the drastic change from life before chronic pain and life after chronic pain. They are some small but momentous moments for me and when I think back to some of these instances, the feelings are still tangible to me -- utter DISBELIEF that this was my body and there was no way out...it felt completely SURREAL, like a true out of body experience like I was hovering above my body, just watching myself crying, and realizing that this is my life and my body body now...I definitely felt SHOCK trying to comprehend what was actually happening to me...all the while feeling this intense physical (and emotional too of course) PANIC like my body way tying to get out of itself, as literally as I could feel as if I was crawling out of my skin...OVERWHELMED is an understatement, but like all of my physical/emotional/and spiritual senses were so overloaded and u equipped to wrap my head around what was happening that I kept feeling like I was going to black out...plus ANGER, SADNESS,
I'm sharing this because I'm interested to hear from you guys what it was like for you when you came to that crossroads in your life...going from (if ever) living life without chronic pain to the live you are living now. I know for some it was one specific event, some gradually came over time, and some born into this, but if you're interested in sharing I'd love to listen :)
Long story short, i was thinking back to try to describe what kinds of feelings and emotions went along with a few of my most vivid memories of when I was coming to the realization that my pain really wasn't going away. Meaning the time, or time period, when I understood my life had made the drastic change from life before chronic pain and life after chronic pain. They are some small but momentous moments for me and when I think back to some of these instances, the feelings are still tangible to me -- utter DISBELIEF that this was my body and there was no way out...it felt completely SURREAL, like a true out of body experience like I was hovering above my body, just watching myself crying, and realizing that this is my life and my body body now...I definitely felt SHOCK trying to comprehend what was actually happening to me...all the while feeling this intense physical (and emotional too of course) PANIC like my body way tying to get out of itself, as literally as I could feel as if I was crawling out of my skin...OVERWHELMED is an understatement, but like all of my physical/emotional/and spiritual senses were so overloaded and u equipped to wrap my head around what was happening that I kept feeling like I was going to black out...plus ANGER, SADNESS,
I'm sharing this because I'm interested to hear from you guys what it was like for you when you came to that crossroads in your life...going from (if ever) living life without chronic pain to the live you are living now. I know for some it was one specific event, some gradually came over time, and some born into this, but if you're interested in sharing I'd love to listen :)
I always looked forward to the solitude, and watching and talking with the Deer in the area.
I was a Volunteer at Music Venue, 5 blocks from where I was living. The other Volunteers, the patron's & the Music made my Best Summer Ever.
Then I had some strange happenings in my rt thigh. Was numb, then burning, then zings going non stop. 5 days later, I broke out in rash and blisters on my rt butt cheek.
My PCP Dx'd Shingles. I was stunned at 53, coming down with this crap.Started on AntiVirals right away, along with Prednesone and Percocets. I thought I was doing everything right, to get thru this attack.
The severe pain stayed with me into Winter. Way Depressing.
Was Dx'd with PHN Nerve Pain, that has stuck with me 2 years later. Have been thru many Nerve Meds, Anti-Seizure Meds and more, and the nerves are still fried and sending pain signals to my brain 24/7.
The rash and blisters are gone, but the nerve pathway from my spine to skin is always shouting-Ron, your azz is on Fire!
I have a team of 6 Dr's, and none have given me hope that this will go away. Fried Nerves rarely heal themselves.
It seems I am in the 10% of PHN cases, that do not resolve.
Have not been able to sit or drive much, and the meds I am on long term, scramble my thinking.
The upside of all this is I was forced to move 300 miles away to live with Family. I now have the time to spend my Nieces and Nephews and their Beautiful Families. I have time now to perfect my BBQ recipes.
It could be worse.