Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
Sweetheart... ScottishK......... I am soooo sorry you are experiencing this at a time in life when you are most vulnerable and in so much physical pain already.
I can't give much advice upon what to do about a flaky PM doc. It should be against the law for them to put us thru anything like that. I wish there were more serious consequences for professionals who aren't up on this simple set of behaviors... on time... listening to patient, caring to be more sensitive to med changes and the monetary cost, not to mention the physical, emotional, and psychological consequences we experience.
There are messed up people in all walks of life and this doc is just one out of many well meaning people.
I was allergic to the Lyrica and it worked really well on the nerve pain so I was devastated to have to not take it. The new med Opana.
was not working but I am not sure why. It could have been the dosage change and he didn't switch it correct for me or my body just couldn't handle the switch from immediate release perc's to the time released mixture the Opana is of morphine and perc's. I also have an immed release morphine with my ER morphine and he wanted me to cold turkey both the immed release stuff. I was ill enough to go to ER. He wants to try again and I am paranoid and I believe I should be. DT's and not enuf pain control is what I as a pain patient am deathly afraid of. I do not want to have to experience either of them and I should never have to.
Our medical professionals are aware enuf of the issues and it should never happen. There is all this said about terminal cancer patients shouldn't have to be in any pain at all.... how .... if they thought this thought through to the end.... could they then tell us we must live ... LIVE!!! everyday and nite.... every minute... conscious of it and it goes on for years, decades....... Live with pain????? Where's the logic in this statement?
It is running around the professional magazines and local news papers with the new drug protocols all the states are beginning to put into practice to stop the deaths from pain med overdoses. I had 2 stays in hospital with out of control pain before they fixed it. Ignorant is too nice a word for what I experienced.
What I do not like is if we take part in our own health care as in being forward in our approach or knowledgeable about our experiences in what works and doesn't work we are red flagged as addicted and pill poppers rather than acknowledged for participation in a healthy way in our diagnosis and plan of care.
I wish I could say something diff. I do have a good set of docs in an awesome PM Clinic now..... but my previous experiences with the first 6 yrs of C.P. are nothing short of living in a nightmare and I am constantly afraid it will happen again.
I am so tired of being made to feel less than human, not worth competent medical care, as if I have chosen this illness and all the insanity that comes with it. My whole life has been destroyed and I have had to learn to be happy while living on funds so far below the poverty line I don't exist, with limitations physically which bring down the quality of my life experience too far for acceptance.
My C.P. may not be the complete cause of it but if there were more services for me and my family to learn how to cope with an illness such as this we may have been able to curtail the end of my 18 yr. intimate relationship.
When people look at us and only see addicted fools they haven't got a freekin' clue just how wrong they are. The truth is that this illness just like many others doesn't care how intelligent you are or the color of your skin, young/old, large/small, well to do financially / no funds it comes and robs you of the life you knew and demands of you to learn a new life.
Chronic Pain is not a choice.... no one would ever choose this.
I feel the Powers that Be / God........ somehow our stories need to get out into the world and as with other illnesses we need help and medical care not ignorance.
With all that said....... ScottishK....... My friend.... You are loved, you count in this world..... and you are not alone..... please hang in there and try to get your needs met.
In Love, Light, Truth, & Service,
Stubborn TerrieAnn
I can't give much advice upon what to do about a flaky PM doc. It should be against the law for them to put us thru anything like that. I wish there were more serious consequences for professionals who aren't up on this simple set of behaviors... on time... listening to patient, caring to be more sensitive to med changes and the monetary cost, not to mention the physical, emotional, and psychological consequences we experience.
There are messed up people in all walks of life and this doc is just one out of many well meaning people.
I was allergic to the Lyrica and it worked really well on the nerve pain so I was devastated to have to not take it. The new med Opana.
was not working but I am not sure why. It could have been the dosage change and he didn't switch it correct for me or my body just couldn't handle the switch from immediate release perc's to the time released mixture the Opana is of morphine and perc's. I also have an immed release morphine with my ER morphine and he wanted me to cold turkey both the immed release stuff. I was ill enough to go to ER. He wants to try again and I am paranoid and I believe I should be. DT's and not enuf pain control is what I as a pain patient am deathly afraid of. I do not want to have to experience either of them and I should never have to.
Our medical professionals are aware enuf of the issues and it should never happen. There is all this said about terminal cancer patients shouldn't have to be in any pain at all.... how .... if they thought this thought through to the end.... could they then tell us we must live ... LIVE!!! everyday and nite.... every minute... conscious of it and it goes on for years, decades....... Live with pain????? Where's the logic in this statement?
It is running around the professional magazines and local news papers with the new drug protocols all the states are beginning to put into practice to stop the deaths from pain med overdoses. I had 2 stays in hospital with out of control pain before they fixed it. Ignorant is too nice a word for what I experienced.
What I do not like is if we take part in our own health care as in being forward in our approach or knowledgeable about our experiences in what works and doesn't work we are red flagged as addicted and pill poppers rather than acknowledged for participation in a healthy way in our diagnosis and plan of care.
I wish I could say something diff. I do have a good set of docs in an awesome PM Clinic now..... but my previous experiences with the first 6 yrs of C.P. are nothing short of living in a nightmare and I am constantly afraid it will happen again.
I am so tired of being made to feel less than human, not worth competent medical care, as if I have chosen this illness and all the insanity that comes with it. My whole life has been destroyed and I have had to learn to be happy while living on funds so far below the poverty line I don't exist, with limitations physically which bring down the quality of my life experience too far for acceptance.
My C.P. may not be the complete cause of it but if there were more services for me and my family to learn how to cope with an illness such as this we may have been able to curtail the end of my 18 yr. intimate relationship.
When people look at us and only see addicted fools they haven't got a freekin' clue just how wrong they are. The truth is that this illness just like many others doesn't care how intelligent you are or the color of your skin, young/old, large/small, well to do financially / no funds it comes and robs you of the life you knew and demands of you to learn a new life.
Chronic Pain is not a choice.... no one would ever choose this.
I feel the Powers that Be / God........ somehow our stories need to get out into the world and as with other illnesses we need help and medical care not ignorance.
With all that said....... ScottishK....... My friend.... You are loved, you count in this world..... and you are not alone..... please hang in there and try to get your needs met.
In Love, Light, Truth, & Service,
Stubborn TerrieAnn
I agree with you people treat us like crap, were additic to pills, we fake pain for pills. Family and friends shy away from us because they are convinced where all in it for the high. I agree with you I never would have chossen to be injured I would love to have my body back I did when I was 19, it's hell. That's something I never understood people who are dieing get all the pain killers in the world but the living be damned!
Opana is not a mix of morphine and percs. Opana ER is oxymorphone hydrochloride. It is similar to, but different than, what you were on. (I am a chemist and sure about this.) It is long-acting and normally a short-acting med is given with it. I'm not sure why your pain doc stripped you off all short-acting opioids. That was dumb.
I agree that docs who red-flag us for being knowledgeable and involved with our care, our a travesty to their profession. Docs who under-medicate or don't Rx opioids at all are violating their Hippocratic Oath. I wish it bothered them.
Keep up the search and if medication cost is an issue, say so upfront. Docs are aware that this is an issue for some, and they will Rx meds that come in generic instead of the pricey new stuff that doesn't work any better.
Good luck!
I just moved an hour away from my pain management Doctor, but I am still going to keep on seeing him. He is amazing, he treats me with respect, and that is all that matters to me, the driving doesn't bother me..... I'll do whatever I have to do to keep him. Let's hope that Scottish finds a good Doctor soon! Hugs,