Kris, I am feeling your pain. Been gone from home all week and did way too much walking and now paying for it with major foot pain and muscle spasms in my calves that won't let up alone with the fibro pain.
I knew that I over did it yesterday.
I sure hope that you get some relief !!!
Cindi

Hi Kris, I am in a lot of RSD leg pain tonight/this morning. I am paying for my activities just like you. I got some very bad news from the surgeon this week. My right arm (righty) is supposed to wither away over a period of years. The muscles will seriously atrophy. I wanted to tell you a good story, but the gravity of my situation only lets me tell you the story of my failing health.

I hope both you and Cindi get some relief.

Hi Kris, i really feel for you because i know what its like to hit that brick wall and by the sounds of things thats where your at. First things first, you are allowed to feel like this, your only human and what your going through is so tough on so many levels, physically and emotionally. But when i'm at that stage ,alongside the guys here that give me support i always think the thought that theres always someone out there worse than me..... I myself have had first hand experience of this. When my daughter was born 11 years ago she was our much wanted third child and our first daughter. When she was 3 weeks old she went into heart failure because the hospital had failed to diagnose that she was born with very complicated heart desease. Anyway she was rushed up to the main hospital in Northern Ireland and she was diagnosed up there. But she was so ill she couldn't have the operation that she needed until she stabilised, she was very ill. So we were offered accomodation in the CLIC unti. We didn't know what that was at the time but its the childrens cancer ward. So of course it was such a shock and everything goes through your mind. Was it something i did while pregnant, why her? Why our family? What had we ever done to anyone? That night when we went to the accomodation and we walked through it i was hit like a tonne of bricks by the realisation that yes, my daughter was seriously ill, and yes she had to have a major operation, but how many of these wee children didn't even have that chance at life? From there on in I looked at things differently. That i was blessed to still have and thankgod after numerous operations still do. She still had more to go through, but she is my INSPIRATION and all the little children out there that go through the hell of their illnesses.
I know the pain you go through daily but i also know that fibro will not kill you, some people don't have that luxury. I don't mean to be condescending, and i hope this helps you change your thinking behind this desease we have.
My prayers and best wishes go out to you, Lisa xx

sorry kris i think its fibro you have if not i apolagise for the mix-up Lisa xx

No need to apologize, but no it's not fibro that I have. When I was 10 I got ran over by a truck and broke 190+ bones so in addition to the steel, titanium and other appliances they put in me I have arthritis not only in my joints, but also in all of the breaks that have healed. Also I have degenerative disc disease that has destroyed all but 1 disc in my spine. And to top it all off I have Ehlers Danlos Syndrome, which is effectively destroying a majority of the connective tissue in my body including but not limited to my joints, parts of internal organs and as of late my heart.

I also realize that there are always people out there in worse shape than me, I often volenteer at the children's cancer ward at our local hospitals. Seeing the strength and courage that those children display is life changing.

And I have always had a very high tolerance for pain but more and more lately I am finding myself pushed to my limits and beyond. I'm just struggling at this point in time and trying to get through it all....

Kris.....

aw hun big hugs! Youve been through so much-you are such a trooper! I know youre feeling bad...but try to think of the good times you have, family, friends etc....whenever I feel low I always think its worth it to be with them...and that pulls me through. Be kind to yourself and make sure you rest up...any chance you can see pain management if that may help? Keep us updated and I hope youre feeling better soon!
Huggles x

this is maddie.are you still up and awake.

Yeah Maddie I am still up, just wasn't paying attention...lol

Well Kris... Here is a story for you

One day, when my kids were about 4 years old, they were outside playing. It was a beautiful summer day, not too hot with a nice breeze.

My daughter was doing her "x-peer-ments" in her wheelbarrow full of water. She was throwing in apples and flowers and rocks. She had the bottle of almost gone dish soap. She had pots and pans and collanders. She was like a little pasty red headed witch in the yard.

My son is having a grand ol time. He has on his cowboy boots, his belt and my dads' reacher as his "gun" (you know, I was one of those new age moms that did not believe in buying guns for my child...he made his own LOL)

He was running around, shooting grass and apples. He was threatening his sister that he was gonna take her "x-peer-ments" away from her. Typical big brother stuff

The next thing I see is my son, chasing the cat, with only his cowboy boots and belt on. No underpants! I go down in the yard (thank God we lived in the country!) and find out what is going on.

I approached my son, with his pasty naked baby butt running past me and ask "what are ya doin honey?"

Well... He had figured out that he could "aim" when he was going potty. HEHEHE
So, he was chasing the cat trying to pee on it. Oh my dear! I was shocked and trying desperately not to laugh

Of course, I stopped him and told him the importance of being kind to animals and not to pee on them. Also, of course, he could not in any way get the cat because how far can an almost 4 year old pee?

He immediately said "saw-we kiddy" and went and pet the cat. He was willing to put his underpants back on as well.

However, being the "new age" mom that I was, I decided that it was only natural for a boy to want to "aim"...so, I used it to my advantage

I put ping pong balls in the potty. They don't flush you know. He got to "play" when he went potty and, as mom, I got to help him make sure that all his mess was in the toilet!

My son, who is almost 18, still talks about how cool it was to try and hit the ping pong balls when he was little. His friends that he tells the story to all get jealous and say "I wish my mom would have done that!"

I am also happy to report that he is a huge animal lover and to this day, feels bad about chasing the kitty.

I have to tell you... there is no site in the whole world funnier and cuter than a fat little baby bottom running through the yard with only cow boy boots and a belt on!

Great story! Now I'm smiley.... Love you duckie!!!

Tooo funny duckie!

Kris, I am sorry you are in this spot. You worked hard and your body is playing revenge.

You must be very strong to have accomplished so much after such a set back at 10. Pull out the good memories to pull you through this hard time.

Prayers and positive energy being sent you way. Hugs -RJ

ducky,

that is great. I used cherrieos cereal for one to aim. He wanted to sit the rest of his life. When a younger one was training, we told him that he could get one of those prizes that the other got only if he used the potty standing up.

Just a cute story to add to the "How to Aim" stories.

First day home with my son. My 5 year old daughter was so excited! She wanted to help with everything. So I was changing his first diaper and she was sitting on the bed. When I took it off she gasped and started shaking her head, she stated" Well..... I guess God glued that thing on there!' and left the room still shaking her head. :)

From the mouth of babes!

Hope you are feeling better! Hugs -RJ

Hi Kris,
I'm doing the same, but I actually had FUN yesterday. A tree in your house is not a laughing matter. God sure does, however, have a great sense of humor!

Lets see: what have I learned today?
That the Olympic pool is kept at a constant temperature between 77 and 82 degrees....
That a couple is building a 70,000 sq. foot house with 7, yes 7, kitchens. And a 1000 ft. shoe closet- that's bigger than the apt. we live in!
And they don't have any kids- just the two of them. They are building a sushi kitchen- a kitchen just for sushi! Obviously, they don't see the rest of us struggling along in teeny, tiny homes, but are grateful we at least have a roof over our heads!

Hope you feel better soon, and remember that God never gives us more than we can handle. It could be worse....and it is for some people. Thankfully, not me.

(((Hugs)))
Sandy

My youngest son took forever to get potty trained, but once he was, I almost wished for the diapers back. One day I was walking past our bathroom door and there stood my youngest against the far wall with his "item" in his hand, his back arched and peeing for all he was worth.
"What are you doing?" I yelled. Calmly he replied "Shooting for distance".
**Sigh**

Cheers,
~Shelly